Ben Wilfond - Publications

Affiliations: 
 

171 high-probability publications. We are testing a new system for linking publications to authors. You can help! If you notice any inaccuracies, please sign in and mark papers as correct or incorrect matches. If you identify any major omissions or other inaccuracies in the publication list, please let us know.

Year Citation  Score
2016 Korngiebel DM, McMullen CK, Amendola LM, Berg JS, Davis JV, Gilmore MJ, Harding CO, Himes P, Jarvik GP, Kauffman TL, Kennedy KA, Simpson DK, Leo MC, Lynch FL, Quigley DI, ... ... Wilfond BS, et al. Generating a taxonomy for genetic conditions relevant to reproductive planning. American Journal of Medical Genetics. Part A. 170: 565-73. PMID 26889673 DOI: 10.1002/ajmg.a.37513  0.6
2016 Grady C, Nogues I, Wiener L, Wilfond BS, Wendler D. Adolescent research participants' descriptions of medical research Ajob Empirical Bioethics. 7: 1-7. DOI: 10.1080/23294515.2015.1017059  0.6
2015 Peay HL, Scharff H, Tibben A, Wilfond B, Bowie J, Johnson J, Nagaraju K, Escolar D, Piacentino J, Biesecker BB. "Watching time tick by…": Decision making for Duchenne muscular dystrophy trials. Contemporary Clinical Trials. PMID 26546066 DOI: 10.1016/j.cct.2015.11.006  0.6
2015 Wilfond BS, Fernandez CV, Green RC. Disclosing Secondary Findings from Pediatric Sequencing to Families: Considering the "Benefit to Families". The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 43: 552-8. PMID 26479565 DOI: 10.1111/jlme.12298  0.6
2015 Wolf SM, Branum R, Koenig BA, Petersen GM, Berry SA, Beskow LM, Daly MB, Fernandez CV, Green RC, LeRoy BS, Lindor NM, O'Rourke PP, Breitkopf CR, Rothstein MA, Van Ness B, ... Wilfond BS, et al. Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 43: 440-63. PMID 26479555 DOI: 10.1111/jlme.12288  0.6
2015 Taylor HA, Kuwana E, Wilfond BS. Is It Ethical to Enroll Cognitively Impaired Adults in Research That Is More Than Minimal Risk With No Prospect of Benefit? The American Journal of Bioethics : Ajob. 15: 64-5. PMID 26479112 DOI: 10.1080/15265161.2015.1075801  0.6
2015 Melvin AJ, Mohan KM, Wald A, Porter K, Wilfond BS. Research Recruitment of Adult Survivors of Neonatal Infections: Is There a Role for Parental Consent? The American Journal of Bioethics : Ajob. 15: 58-9. PMID 26479109 DOI: 10.1080/15265161.2015.1075798  0.6
2015 Taylor HA, Kuwana E, Wilfond BS. Recontact and Recruitment of Young Adults Previously Enrolled in Neonatal Herpes Simplex Virus Research. The American Journal of Bioethics : Ajob. 15: 56-7. PMID 26479108 DOI: 10.1080/15265161.2015.1075795  0.6
2015 Magnus D, Wilfond B. Commentary on Kim Miller. Clinical Trials (London, England). 12: 564-6. PMID 26419904 DOI: 10.1177/1740774515607368  0.6
2015 Welch MJ, Lally R, Miller JE, Pittman S, Brodsky L, Caplan AL, Uhlenbrauck G, Louzao DM, Fischer JH, Wilfond B. The ethics and regulatory landscape of including vulnerable populations in pragmatic clinical trials. Clinical Trials (London, England). PMID 26374681 DOI: 10.1177/1740774515597701  0.6
2015 McCullough LB, Brothers KB, Chung WK, Joffe S, Koenig BA, Wilfond B, Yu JH. Professionally Responsible Disclosure of Genomic Sequencing Results in Pediatric Practice. Pediatrics. PMID 26371191 DOI: 10.1542/peds.2015-0624  0.6
2015 Grady C, Eckstein L, Berkman B, Brock D, Cook-Deegan R, Fullerton SM, Greely H, Hansson MG, Hull S, Kim S, Lo B, Pentz R, Rodriguez L, Weil C, Wilfond BS, et al. Broad Consent for Research With Biological Samples: Workshop Conclusions. The American Journal of Bioethics : Ajob. 15: 34-42. PMID 26305750 DOI: 10.1080/15265161.2015.1062162  0.6
2015 Kelley M, James C, Alessi Kraft S, Korngiebel D, Wijangco I, Rosenthal E, Joffe S, Cho MK, Wilfond B, Lee SS. Patient Perspectives on the Learning Health System: The Importance of Trust and Shared Decision Making. The American Journal of Bioethics : Ajob. 15: 4-17. PMID 26305741 DOI: 10.1080/15265161.2015.1062163  0.6
2015 Mann PC, Gospe SM, Steinman KJ, Wilfond BS. Integrating neurocritical care approaches into neonatology: should all infants be treated equitably? Journal of Perinatology : Official Journal of the California Perinatal Association. PMID 26248128 DOI: 10.1038/jp.2015.95  0.6
2015 Botkin JR, Belmont JW, Berg JS, Berkman BE, Bombard Y, Holm IA, Levy HP, Ormond KE, Saal HM, Spinner NB, Wilfond BS, McInerney JD. Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents. American Journal of Human Genetics. 97: 6-21. PMID 26140447 DOI: 10.1016/j.ajhg.2015.05.022  0.6
2015 Schneider JL, Goddard KA, Davis J, Wilfond B, Kauffman TL, Reiss JA, Gilmore M, Himes P, Lynch FL, Leo MC, McMullen C. "Is It Worth Knowing?" Focus Group Participants' Perceived Utility of Genomic Preconception Carrier Screening. Journal of Genetic Counseling. PMID 26093606 DOI: 10.1007/s10897-015-9851-7  0.6
2015 Wilfond BS, Magnus DC. The potential harms and benefits from research on medical practices. The Hastings Center Report. 45: 5-6. PMID 25944197 DOI: 10.1002/hast.440  0.6
2015 Boss RD, Henderson CM, Wilfond BS. Decisions regarding resuscitation of extremely premature infants: should social context matter? Jama Pediatrics. 169: 521-2. PMID 25915579 DOI: 10.1001/jamapediatrics.2014.3813  0.6
2015 Cho MK, Magnus D, Constantine M, Lee SS, Kelley M, Alessi S, Korngiebel D, James C, Kuwana E, Gallagher TH, Diekema D, Capron AM, Joffe S, Wilfond BS. Attitudes Toward Risk and Informed Consent for Research on Medical Practices: A Cross-sectional Survey. Annals of Internal Medicine. 162: 690-6. PMID 25868119 DOI: 10.7326/M15-0166  0.6
2015 Taylor HA, Kuwana E, Wilfond BS. Protecting research subject welfare in preventive trials for autosomal dominant Alzheimer's disease. The American Journal of Bioethics : Ajob. 15: 83-4. PMID 25856618 DOI: 10.1080/15265161.2015.1011009  0.6
2015 Shah A, Porter K, Juul S, Wilfond BS. Precluding consent by clinicians who are both the attending and the investigator: an outdated shibboleth? The American Journal of Bioethics : Ajob. 15: 80-2. PMID 25856617 DOI: 10.1080/15265161.2015.1011007  0.6
2015 Taylor HA, Kuwana E, Wilfond BS. Navigating parental permission for neonatal research. The American Journal of Bioethics : Ajob. 15: 76. PMID 25856614 DOI: 10.1080/15265161.2015.1011003  0.6
2015 Taylor HA, Kuwana E, Wilfond BS. Challenging cases in research ethics. The American Journal of Bioethics : Ajob. 15: 75. PMID 25856613 DOI: 10.1080/15265161.2015.1011002  0.6
2015 Cho MK, Taylor H, McCormick JB, Anderson N, Barnard D, Boyle MB, Capron AM, Dorfman E, Havard K, Reider C, Sadler J, Schwartz P, Sharp RR, Danis M, Wilfond BS. Building a Central Repository for Research Ethics Consultation Data: A Proposal for a Standard Data Collection Tool. Clinical and Translational Science. PMID 25758372 DOI: 10.1111/cts.12268  0.6
2015 Wiener L, Viola A, Wilfond BS, Wendler D, Grady C. Contrasting views of risk perception and influence of financial compensation between adolescent research participants and their parents. Journal of Empirical Research On Human Research Ethics : Jerhre. 10: 49-58. PMID 25742666 DOI: 10.1177/1556264614563249  0.6
2015 Amendola LM, Dorschner MO, Robertson PD, Salama JS, Hart R, Shirts BH, Murray ML, Tokita MJ, Gallego CJ, Kim DS, Bennett JT, Crosslin DR, Ranchalis J, Jones KL, Rosenthal EA, ... ... Wilfond B, et al. Actionable exomic incidental findings in 6503 participants: challenges of variant classification. Genome Research. 25: 305-15. PMID 25637381 DOI: 10.1101/gr.183483.114  0.6
2015 Sharp RR, Taylor HA, Brinich MA, Boyle MM, Cho M, Coors M, Danis M, Havard M, Magnus D, Wilfond B. Research ethics consultation: ethical and professional practice challenges and recommendations. Academic Medicine : Journal of the Association of American Medical Colleges. 90: 615-20. PMID 25607942 DOI: 10.1097/ACM.0000000000000640  0.6
2015 Magnus D, Wilfond BS. Research on medical practices and the ethics of disclosure. Pediatrics. 135: 208-10. PMID 25583909 DOI: 10.1542/peds.2014-3578  0.6
2015 Graham KL, Howell MD, Marcantonio ER. Opportunities and challenges for reducing hospital revisits Annals of Internal Medicine. 163: 727. DOI: 10.7326/L1551542  0.6
2015 Mc Glanaghy E, Di Pietro N, Wilfond B. Pediatric Clinical Trial Activity for Antipsychotics and the Sharing of Results: A Complex Ethical Landscape The Science and Ethics of Antipsychotic Use in Children. 91-124. DOI: 10.1016/B978-0-12-800016-8.00005-2  0.6
2014 Taylor HA, Kuwana E, Wilfond BS. Ethical implications of social media in health care research. The American Journal of Bioethics : Ajob. 14: 58-9. PMID 25229593 DOI: 10.1080/15265161.2014.947820  0.6
2014 Taylor HA, Kuwana E, Wilfond BS. The obligations to report statutory sexual abuse disclosed in a research study. The American Journal of Bioethics : Ajob. 14: 50. PMID 25229589 DOI: 10.1080/15265161.2014.947806  0.6
2014 Taylor HA, Kuwana E, Wilfond BS. Challenging cases in research ethics. The American Journal of Bioethics : Ajob. 14: 49. PMID 25229588 DOI: 10.1080/15265161.2014.947804  0.6
2014 Taylor HA, Kuwana E, Wilfond BS. Ethics of continuing to provide a drug on an open-label extension study for an "unapproved indication". The American Journal of Bioethics : Ajob. 14: 56. PMID 24730500 DOI: 10.1080/15265161.2014.889956  0.6
2014 Taylor HA, Kuwana E, Wilfond BS. The ethics of disclosing to research subjects the availability of off-label marketed drugs. The American Journal of Bioethics : Ajob. 14: 51. PMID 24730496 DOI: 10.1080/15265161.2014.889943  0.6
2014 Camp KM, Parisi MA, Acosta PB, Berry GT, Bilder DA, Blau N, Bodamer OA, Brosco JP, Brown CS, Burlina AB, Burton BK, Chang CS, Coates PM, Cunningham AC, Dobrowolski SF, ... ... Wilfond BS, et al. Phenylketonuria Scientific Review Conference: state of the science and future research needs. Molecular Genetics and Metabolism. 112: 87-122. PMID 24667081 DOI: 10.1016/j.ymgme.2014.02.013  0.6
2014 Grady C, Wiener L, Abdoler E, Trauernicht E, Zadeh S, Diekema DS, Wilfond BS, Wendler D. Assent in research: the voices of adolescents. The Journal of Adolescent Health : Official Publication of the Society For Adolescent Medicine. 54: 515-20. PMID 24630932 DOI: 10.1016/j.jadohealth.2014.02.005  0.6
2014 Magnus DC, Wilfond BS, Caplan AL. Accepting brain death. The New England Journal of Medicine. 370: 891-4. PMID 24499177 DOI: 10.1056/NEJMp1400930  0.6
2014 Wilfond BS. Tracheostomies and assisted ventilation in children with profound disabilities: navigating family and professional values. Pediatrics. 133: S44-9. PMID 24488540 DOI: 10.1542/peds.2013-3608H  0.6
2014 Botkin JR, Lewis MH, Watson MS, Swoboda KJ, Anderson R, Berry SA, Bonhomme N, Brosco JP, Comeau AM, Goldenberg A, Goldman E, Therrell B, Levy-Fisch J, Tarini B, Wilfond B, et al. Parental permission for pilot newborn screening research: guidelines from the NBSTRN. Pediatrics. 133: e410-7. PMID 24394680 DOI: 10.1542/peds.2013-2271  0.6
2014 Guon J, Wilfond BS, Farlow B, Brazg T, Janvier A. Our children are not a diagnosis: the experience of parents who continue their pregnancy after a prenatal diagnosis of trisomy 13 or 18. American Journal of Medical Genetics. Part A. 164: 308-18. PMID 24311520 DOI: 10.1002/ajmg.a.36298  0.6
2013 Wilfond BS. Quality improvement ethics: lessons from the SUPPORT study. The American Journal of Bioethics : Ajob. 13: 14-9. PMID 24256524 DOI: 10.1080/15265161.2013.851582  0.6
2013 Wilfond BS. Oxygen and estrogen. The Hastings Center Report. 43: insidebackcover. PMID 24249476 DOI: 10.1002/hast.234  0.6
2013 Taylor HA, Wilfond BS. Managing disclosure of research misconduct by a graduate student to a university mental health professional during a clinical counseling session. The American Journal of Bioethics : Ajob. 13: 68. PMID 24024820 DOI: 10.1080/15265161.2013.828534  0.6
2013 Taylor HA, Wilfond BS. The ethics of contacting family members of a subject in a genetic research study to return results for an autosomal dominant syndrome. The American Journal of Bioethics : Ajob. 13: 61. PMID 24024816 DOI: 10.1080/15265161.2013.828523  0.6
2013 Taylor HA, Kuwana E, Wilfond BS. Challenging cases in research ethics. The American Journal of Bioethics : Ajob. 13: 60. PMID 24024815 DOI: 10.1080/15265161.2013.828521  0.6
2013 Burke W, Antommaria AH, Bennett R, Botkin J, Clayton EW, Henderson GE, Holm IA, Jarvik GP, Khoury MJ, Knoppers BM, Press NA, Ross LF, Rothstein MA, Saal H, Uhlmann WR, ... Wilfond B, et al. Recommendations for returning genomic incidental findings? We need to talk! Genetics in Medicine : Official Journal of the American College of Medical Genetics. 15: 854-9. PMID 23907645 DOI: 10.1038/gim.2013.113  0.6
2013 Wade CH, Tarini BA, Wilfond BS. Growing up in the genomic era: implications of whole-genome sequencing for children, families, and pediatric practice. Annual Review of Genomics and Human Genetics. 14: 535-55. PMID 23875800 DOI: 10.1146/annurev-genom-091212-153425  0.6
2013 Lev O, Wilfond BS, McBride CM. Enhancing Children against Unhealthy Behaviors-An Ethical and Policy Assessment of Using a Nicotine Vaccine. Public Health Ethics. 6: 197-206. PMID 23864909 DOI: 10.1093/phe/pht006  0.6
2013 Wilfond BS, Magnus D, Antommaria AH, Appelbaum P, Aschner J, Barrington KJ, Beauchamp T, Boss RD, Burke W, Caplan AL, Capron AM, Cho M, Clayton EW, Cole FS, Darlow BA, et al. The OHRP and SUPPORT. The New England Journal of Medicine. 368: e36. PMID 23738513 DOI: 10.1056/NEJMc1307008  0.6
2013 Mann PC, Woodrum DE, Wilfond BS. Fuzzy images: Ethical implications of using routine neuroimaging in premature neonates to predict neurologic outcomes. The Journal of Pediatrics. 163: 587-92. PMID 23623529 DOI: 10.1016/j.jpeds.2013.03.055  0.6
2013 Doorenbos AZ, Starks H, Bourget E, McMullan DM, Lewis-Newby M, Rue TC, Lindhorst T, Aisenberg E, Oman N, Curtis JR, Hays R, Clark JD, Baden HP, Brogan TV, ... ... Wilfond BS, et al. Examining palliative care team involvement in automatic consultations for children on extracorporeal life support in the pediatric intensive care unit. Journal of Palliative Medicine. 16: 492-5. PMID 23540309 DOI: 10.1089/jpm.2012.0536  0.6
2013 Melvin AJ, Edwards K, Malone J, Hassell L, Wilfond BS. Role for CTSAs in leveraging a distributed research infrastructure to engage diverse stakeholders in emergent research policy development. Clinical and Translational Science. 6: 57-9. PMID 23399091 DOI: 10.1111/j.1752-8062.2012.00444.x  0.6
2013 McCormick JB, Sharp RR, Ottenberg AL, Reider CR, Taylor HA, Wilfond BS. The establishment of research ethics consultation services (RECS): an emerging research resource. Clinical and Translational Science. 6: 40-4. PMID 23399088 DOI: 10.1111/cts.12008  0.6
2013 Rosen D, Wilfond B, Lantos JD. Obstructive sleep apnea in a 17-year-old with profound cognitive impairment. Pediatrics. 131: 581-5. PMID 23382443 DOI: 10.1542/peds.2012-1489  0.6
2012 Mai PL, Malkin D, Garber JE, Schiffman JD, Weitzel JN, Strong LC, Wyss O, Locke L, Means V, Achatz MI, Hainaut P, Frebourg T, Evans DG, Bleiker E, Patenaude A, ... ... Wilfond B, et al. Li-Fraumeni syndrome: report of a clinical research workshop and creation of a research consortium. Cancer Genetics. 205: 479-87. PMID 22939227 DOI: 10.1016/j.cancergen.2012.06.008  0.6
2012 Janvier A, Farlow B, Wilfond BS. The experience of families with children with trisomy 13 and 18 in social networks. Pediatrics. 130: 293-8. PMID 22826570 DOI: 10.1542/peds.2012-0151  0.6
2012 Wilfond B. Predicting our future: lessons from Winnie-the-Pooh. The Hastings Center Report. 42: 3. PMID 22777968 DOI: 10.1002/hast.56  0.6
2012 Beskow LM, Fullerton SM, Namey EE, Nelson DK, Davis AM, Wilfond BS. Recommendations for ethical approaches to genotype-driven research recruitment. Human Genetics. 131: 1423-31. PMID 22622788 DOI: 10.1007/s00439-012-1177-z  0.6
2012 Wolf SM, Crock BN, Van Ness B, Lawrenz F, Kahn JP, Beskow LM, Cho MK, Christman MF, Green RC, Hall R, Illes J, Keane M, Knoppers BM, Koenig BA, Kohane IS, ... ... Wilfond BS, et al. Managing incidental findings and research results in genomic research involving biobanks and archived data sets. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 14: 361-84. PMID 22436882 DOI: 10.1038/gim.2012.23  0.6
2012 Wilfond BS, Diekema DS. Engaging children in genomics research: decoding the meaning of assent in research. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 14: 437-43. PMID 22323071 DOI: 10.1038/gim.2012.9  0.6
2011 Tabor HK, Brazg T, Crouch J, Namey EE, Fullerton SM, Beskow LM, Wilfond BS. Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment. Journal of Empirical Research On Human Research Ethics : Jerhre. 6: 41-52. PMID 22228059 DOI: 10.1525/jer.2011.6.4.41  0.6
2011 Beskow LM, Namey EE, Cadigan RJ, Brazg T, Crouch J, Henderson GE, Michie M, Nelson DK, Tabor HK, Wilfond BS. Research participants' perspectives on genotype-driven research recruitment. Journal of Empirical Research On Human Research Ethics : Jerhre. 6: 3-20. PMID 22228056 DOI: 10.1525/jer.2011.6.4.3  0.6
2011 Tarini BA, Tercyak KP, Wilfond BS. Commentary: Children and predictive genomic testing: disease prevention, research protection, and our future. Journal of Pediatric Psychology. 36: 1113-21. PMID 21816897 DOI: 10.1093/jpepsy/jsr040  0.6
2011 Tercyak KP, Hensley Alford S, Emmons KM, Lipkus IM, Wilfond BS, McBride CM. Parents' attitudes toward pediatric genetic testing for common disease risk. Pediatrics. 127: e1288-95. PMID 21502235 DOI: 10.1542/peds.2010-0938  0.6
2011 Bookman EB, Langehorne AA, Eckfeldt JH, Glass KC, Jarvik GP, Klag M, Koski G, Motulsky A, Wilfond B, Manolio TA, Fabsitz RR, Luepker RV. Comment on "Multidimensional results reporting to participants in genomic studies: getting it right". Science Translational Medicine. 3: 70le1. PMID 21325615 DOI: 10.1126/scitranslmed.3001516  0.6
2011 Goldenberg AJ, Hull SC, Wilfond BS, Sharp RR. Patient perspectives on group benefits and harms in genetic research. Public Health Genomics. 14: 135-42. PMID 20938159 DOI: 10.1159/000317497  0.6
2011 Richer J, Ghebremichael MS, Chudley AE, Robinson WM, Wilfond BS, Solomon MZ. Research use of leftover newborn bloodspots: attitudes of Canadian geneticists regarding storage and informed consent requirements. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 13: 305-13. PMID 20921895 DOI: 10.1097/GIM.0b013e3181f69da0  0.6
2011 Myers RE, Manne SL, Wilfond B, Sifri R, Ziring B, Wolf TA, Cocroft J, Ueland A, Petrich A, Swan H, DiCarlo M, Weinberg DS. A randomized trial of genetic and environmental risk assessment (GERA) for colorectal cancer risk in primary care: trial design and baseline findings. Contemporary Clinical Trials. 32: 25-31. PMID 20828635 DOI: 10.1016/j.cct.2010.08.013  0.6
2011 Tarini BA, Tercyak KP, Wilfond BS. Response to the commentary: Children and predictive genomic testing Journal of Pediatric Psychology. 36: 1128-1129. DOI: 10.1093/jpepsy/jsr073  0.6
2011 Wilfond BS, Carey JC. Parental requests for intervention in children with lethal conditions Clinical Ethics in Pediatrics: a Case-Based Textbook. 174-180. DOI: 10.1017/CBO9780511740336.031  0.6
2011 Wilfond BS. RE: Growth attenuation: Health outcomes and social services Hastings Center Report. 41: 7-8.  0.6
2010 Wilfond BS, Miller PS, Korfiatis C, Diekema DS, Dudzinski DM, Goering S. Navigating growth attenuation in children with profound disabilities. Children's interests, family decision-making, and community concerns. The Hastings Center Report. 40: 27-40. PMID 21155109  0.6
2010 Wade CH, Wilfond BS, McBride CM. Effects of genetic risk information on children's psychosocial wellbeing: a systematic review of the literature. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 12: 317-26. PMID 20445458 DOI: 10.1097/GIM.0b013e3181de695c  0.6
2009 Beskow LM, Grady C, Iltis AS, Sadler JZ, Wilfond BS. Points to consider: The research ethics consultation service and the IRB. Irb. 31: 1-9. PMID 20034184  0.6
2009 Opel DJ, Brownstein D, Diekema DS, Wilfond BS, Pearlman RA. Integrating ethics and patient safety: the role of clinical ethics consultants in quality improvement. The Journal of Clinical Ethics. 20: 220-6. PMID 19845192  0.6
2009 Opel DJ, Wilfond BS, Brownstein D, Diekema DS, Pearlman RA. Characterisation of organisational issues in paediatric clinical ethics consultation: a qualitative study. Journal of Medical Ethics. 35: 477-82. PMID 19644005 DOI: 10.1136/jme.2008.027896  0.6
2009 Goldenberg AJ, Hull SC, Botkin JR, Wilfond BS. Pediatric biobanks: approaching informed consent for continuing research after children grow up. The Journal of Pediatrics. 155: 578-83. PMID 19595370 DOI: 10.1016/j.jpeds.2009.04.034  0.6
2009 Wilfond BS. Policy in the light: professional society guidelines begin the ethical conversations about screening. The American Journal of Bioethics : Ajob. 9: 17-9. PMID 19326303 DOI: 10.1080/15265160902790575  0.6
2009 Opel DJ, Wilfond BS. Cosmetic surgery in children with cognitive disabilities: who benefits? Who decides? The Hastings Center Report. 39: 19-21. PMID 19213189  0.6
2009 Wilfond B, Ross LF. From genetics to genomics: ethics, policy, and parental decision-making. Journal of Pediatric Psychology. 34: 639-47. PMID 18647793 DOI: 10.1093/jpepsy/jsn075  0.6
2009 Wilfond BS, Thomson EJ. Models of public health genetic policy development Genetics and Public Health in the 21st Century: Using Genetic Information to Improve Health and Prevent Disease. DOI: 10.1093/acprof:oso/9780195128307.003.0004  0.6
2008 Wilfond BS. The Genetic Information Nondiscrimination Act: fear factor or fantasy island? The Hastings Center Report. 38: 11-2. PMID 19192707  0.6
2008 Hull SC, Sharp RR, Botkin JR, Brown M, Hughes M, Sugarman J, Schwinn D, Sankar P, Bolcic-Jankovic D, Clarridge BR, Wilfond BS. Patients' views on identifiability of samples and informed consent for genetic research. The American Journal of Bioethics : Ajob. 8: 62-70. PMID 19003716 DOI: 10.1080/15265160802478404  0.6
2008 Hull SC, Wilfond BS. What does it mean to be identifiable? The American Journal of Bioethics : Ajob. 8: W7-8. PMID 19003695 DOI: 10.1080/15265160802519538  0.6
2008 Denny CC, Wilfond BS, Peters JA, Giri N, Alter BP. All in the family: disclosure of "unwanted" information to an adolescent to benefit a relative. American Journal of Medical Genetics. Part A. 146: 2719-24. PMID 18831063 DOI: 10.1002/ajmg.a.32362  0.6
2008 Kelley M, Fryer-Edwards K, Fullerton SM, Gallagher TH, Wilfond B. Sharing data and experience: using the Clinical and Translational Science Award (CTSA) "moral community" to improve research ethics consultation. The American Journal of Bioethics : Ajob. 8: 37-9; discussion W4-. PMID 18570101 DOI: 10.1080/15265160802109397  0.6
2008 Wilfond BS, Carpenter KJ. Incidental findings in pediatric research. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 36: 332-40, 213. PMID 18547202 DOI: 10.1111/j.1748-720X.2008.00277.x  0.6
2008 Wolf SM, Lawrenz FP, Nelson CA, Kahn JP, Cho MK, Clayton EW, Fletcher JG, Georgieff MK, Hammerschmidt D, Hudson K, Illes J, Kapur V, Keane MA, Koenig BA, Leroy BS, ... ... Wilfond BS, et al. Managing incidental findings in human subjects research: analysis and recommendations. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 36: 219-48, 211. PMID 18547191 DOI: 10.1111/j.1748-720X.2008.00266.x  0.6
2008 Lanken PN, Terry PB, Delisser HM, Fahy BF, Hansen-Flaschen J, Heffner JE, Levy M, Mularski RA, Osborne ML, Prendergast TJ, Rocker G, Sibbald WJ, Wilfond B, Yankaskas JR. An official American Thoracic Society clinical policy statement: palliative care for patients with respiratory diseases and critical illnesses. American Journal of Respiratory and Critical Care Medicine. 177: 912-27. PMID 18390964 DOI: 10.1164/rccm.200605-587ST  0.6
2008 Tarini BA, Burke W, Scott CR, Wilfond BS. Waiving informed consent in newborn screening research: balancing social value and respect. American Journal of Medical Genetics. Part C, Seminars in Medical Genetics. 148: 23-30. PMID 18200521 DOI: 10.1002/ajmg.c.30164  0.6
2007 Wilfond B. Ethical considerations about observational research in children. The Journal of Trauma. 63: S146-51; discussion . PMID 18091208 DOI: 10.1097/TA.0b013e31815acd60  0.6
2007 Henderson GE, Churchill LR, Davis AM, Easter MM, Grady C, Joffe S, Kass N, King NM, Lidz CW, Miller FG, Nelson DK, Peppercorn J, Rothschild BB, Sankar P, Wilfond BS, et al. Clinical trials and medical care: defining the therapeutic misconception. Plos Medicine. 4: e324. PMID 18044980 DOI: 10.1371/journal.pmed.0040324  0.6
2007 Wilfond BS. The Ashley case: the public response and policy implications. The Hastings Center Report. 37: 12-3. PMID 17966832  0.6
2007 Myers RE, Weinberg DS, Manne SL, Sifri R, Cocroft J, Kash K, Wilfond B. Genetic and environmental risk assessment for colorectal cancer risk in primary care practice settings: a pilot study. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 9: 378-84. PMID 17575504 DOI: 10.1097/GIM.0b013e3180654ce2  0.6
2007 Comeau AM, Accurso FJ, White TB, Campbell PW, Hoffman G, Parad RB, Wilfond BS, Rosenfeld M, Sontag MK, Massie J, Farrell PM, O'Sullivan BP. Guidelines for implementation of cystic fibrosis newborn screening programs: Cystic Fibrosis Foundation workshop report. Pediatrics. 119: e495-518. PMID 17272609 DOI: 10.1542/peds.2006-1993  0.6
2006 Ravitsky V, Wilfond BS. Disclosing individual genetic results to research participants. The American Journal of Bioethics : Ajob. 6: 8-17. PMID 17085395 DOI: 10.1080/15265160600934772  0.6
2006 Wade CH, Wilfond BS. Ethical and clinical practice considerations for genetic counselors related to direct-to-consumer marketing of genetic tests. American Journal of Medical Genetics. Part C, Seminars in Medical Genetics. 142: 284-92, discussion 2. PMID 17068807 DOI: 10.1002/ajmg.c.30110  0.6
2006 Botkin JR, Clayton EW, Fost NC, Burke W, Murray TH, Baily MA, Wilfond B, Berg A, Ross LF. Newborn screening technology: proceed with caution. Pediatrics. 117: 1793-9. PMID 16651338 DOI: 10.1542/peds.2005-2547  0.6
2006 Bookman EB, Langehorne AA, Eckfeldt JH, Glass KC, Jarvik GP, Klag M, Koski G, Motulsky A, Wilfond B, Manolio TA, Fabsitz RR, Luepker RV. Reporting genetic results in research studies: summary and recommendations of an NHLBI working group. American Journal of Medical Genetics. Part A. 140: 1033-40. PMID 16575896 DOI: 10.1002/ajmg.a.31195  0.6
2006 Loud JT, Weissman NE, Peters JA, Giusti RM, Wilfond BS, Burke W, Greene MH. Deliberate deceit of family members: a challenge to providers of clinical genetics services. Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology. 24: 1643-6. PMID 16575016 DOI: 10.1200/JCO.2005.02.6203  0.6
2006 Grosse SD, Boyle CA, Kenneson A, Khoury MJ, Wilfond BS. From public health emergency to public health service: the implications of evolving criteria for newborn screening panels. Pediatrics. 117: 923-9. PMID 16510675 DOI: 10.1542/peds.2005-0553  0.6
2006 Shoff SM, Ahn HY, Davis L, Lai H, Douglas J, Fost N, Green C, Gregg R, Kosorok M, Laessig R, Palta M, Rock M, Rosenberg M, Tluezek A, Wei LJ, ... ... Wilfond B, et al. Temporal associations among energy intake, plasma linoleic acid, and growth improvement in response to treatment initiation after diagnosis of cystic fibrosis Pediatrics. 117: 391-400. PMID 16452358 DOI: 10.1542/peds.2004-2832  0.6
2006 Henderson GE, Easter MM, Zimmer C, King NM, Davis AM, Rothschild BB, Churchill LR, Wilfond BS, Nelson DK. Therapeutic misconception in early phase gene transfer trials. Social Science & Medicine (1982). 62: 239-53. PMID 16000230 DOI: 10.1016/j.socscimed.2005.05.022  0.6
2006 Ravitsky V, Wilfond BS. Response to open peer commentaries on "Disclosing individual genetic results to research participants": Defining clinical utility and revisiting the role of relationships [1] American Journal of Bioethics. 6: W10-W12. DOI: 10.1080/15265160601021272  0.6
2005 Wilfond BS, Parad RB, Fost N. Balancing benefits and risks for cystic fibrosis newborn screening: implications for policy decisions. The Journal of Pediatrics. 147: S109-13. PMID 16202773 DOI: 10.1016/j.jpeds.2005.08.019  0.6
2005 Wilfond BS, Ravitsky V. On the proliferation of bioethics sub-disciplines: do we really need "genethics" and "neuroethics"? The American Journal of Bioethics : Ajob. 5: 20-1; discussion W3-. PMID 16036690 DOI: 10.1080/15265160590960924  0.6
2005 Wilfond BS, Gollust SE. Policy issues for expanding newborn screening programs: the cystic fibrosis newborn screening experience in the United States. The Journal of Pediatrics. 146: 668-74. PMID 15870672 DOI: 10.1016/j.jpeds.2004.11.029  0.6
2005 King NM, Henderson GE, Churchill LR, Davis AM, Hull SC, Nelson DK, Parham-Vetter PC, Rothschild BB, Easter MM, Wilfond BS. Consent forms and the therapeutic misconception: the example of gene transfer research. Irb. 27: 1-8. PMID 15835063  0.6
2005 Leib JR, Gollust SE, Hull SC, Wilfond BS. Carrier screening panels for Ashkenazi Jews: is more better? Genetics in Medicine : Official Journal of the American College of Medical Genetics. 7: 185-90. PMID 15775754 DOI: 10.1097/01.GIM.0000156527.87525.8F  0.6
2004 Grosse SD, Boyle CA, Botkin JR, Comeau AM, Kharrazi M, Rosenfeld M, Wilfond BS. Newborn screening for cystic fibrosis: evaluation of benefits and risks and recommendations for state newborn screening programs. Mmwr. Recommendations and Reports : Morbidity and Mortality Weekly Report. Recommendations and Reports / Centers For Disease Control. 53: 1-36. PMID 15483524  0.6
2004 Hull SC, Glanz K, Steffen A, Wilfond BS. Recruitment approaches for family studies: attitudes of index patients and their relatives. Irb. 26: 12-7. PMID 15449410 DOI: 10.2307/3563699  0.6
2004 Taylor HA, Wilfond BS. Ethical issues in newborn screening research: lessons from the Wisconsin cystic fibrosis trial. The Journal of Pediatrics. 145: 292-6. PMID 15343177 DOI: 10.1016/j.jpeds.2004.04.010  0.6
2004 Henderson GE, Davis AM, King NM, Easter MM, Zimmer CR, Rothschild BB, Wilfond BS, Nelson DK, Churchill LR. Uncertain benefit: investigators' views and communications in early phase gene transfer trials. Molecular Therapy : the Journal of the American Society of Gene Therapy. 10: 225-31. PMID 15294169 DOI: 10.1016/j.ymthe.2004.05.013  0.6
2004 Hull SC, Gooding H, Klein AP, Warshauer-Baker E, Metosky S, Wilfond BS. Genetic research involving human biological materials: a need to tailor current consent forms. Irb. 26: 1-7. PMID 15281193  0.6
2004 Whittle A, Shah S, Wilfond B, Gensler G, Wendler D. Institutional review board practices regarding assent in pediatric research. Pediatrics. 113: 1747-52. PMID 15173501 DOI: 10.1542/peds.113.6.1747  0.6
2004 Freund CL, Clayton EW, Wilfond BS. Natural settings trials--improving the introduction of clinical genetic tests. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 32: 106-10. PMID 15152432  0.6
2004 Shah S, Whittle A, Wilfond B, Gensler G, Wendler D. How do institutional review boards apply the federal risk and benefit standards for pediatric research? Jama. 291: 476-82. PMID 14747505 DOI: 10.1001/jama.291.4.476  0.6
2004 Coffey MJ, Wilfond B, Ross LF. Ethical assessment of clinical asthma trials including children subjects. Pediatrics. 113: 87-94. PMID 14702454 DOI: 10.1542/peds.113.1.87  0.6
2003 Wendler D, Shah S, Whittle A, Wilfond BS. Nonbeneficial research with individuals who cannot consent: is it ethically better to enroll healthy or affected individuals? Irb. 25: 1-4. PMID 14649246  0.6
2003 Churchill LR, Nelson DK, Henderson GE, King NM, Davis AM, Leahey E, Wilfond BS. Assessing benefits in clinical research: why diversity in benefit assessment can be risky. Irb. 25: 1-8. PMID 14569987  0.6
2003 Gollust SE, Wilfond BS, Hull SC. Direct-to-consumer sales of genetic services on the Internet Genetics in Medicine. 5: 332-337. PMID 12865763 DOI: 10.1097/01.GIM.0000076972.83711.48  0.6
2003 Koogler TK, Wilfond BS, Ross LF. Lethal language, lethal decisions Hastings Center Report. 33: 37-41. PMID 12760119 DOI: 10.2307/3528153  0.6
2003 Miller FG, Wendler D, Wilfond B. When do the federal regulations allow placebo-controlled trials in children? Journal of Pediatrics. 142: 102-107. PMID 12584527 DOI: 10.1067/mpd.2003.43  0.6
2003 Levin M, Gollust SE, Hull SC, Wilfond B. Direct-to-consumer advertising of genetic testing [3] (multiple letters) Journal of the American Medical Association. 289: 45-46. PMID 12503973 DOI: 10.1001/jama.289.1.45-a  0.6
2003 Stoller JK, Snider GL, Brantly M, Fallat RJ, Stockley RA, Turino GM, Konietzko N, Dirksen A, Eden E, Luisetti M, Stolk J, Strange C, Eriksson S, Propst A, Sveger T, ... ... Wilfond BS, et al. Standards for the diagnosis and management of individuals with alpha-1 antitrypsin deficiency: Executive summary Respiratory Care. 48: 1043-1047.  0.6
2002 Wilfond BS, Geller G, Lerman C, Audrain-McGovern J, Shields AE. Ethical issues in conducting behavioral genetics research: the case of smoking prevention trials among adolescents. Journal of Health Care Law & Policy. 6: 73-88. PMID 15017952  0.6
2002 Horng S, Emanuel EJ, Wilfond B, Rackoff J, Martz K, Grady C. Descriptions of benefits and risks in consent forms for phase 1 oncology trials New England Journal of Medicine. 347: 2134-2140. PMID 12501226 DOI: 10.1056/NEJMsa021182  0.6
2002 Davis AM, Hull SC, Grady C, Wilfond BS, Henderson GE. The invisible hand in clinical research: the study coordinator's critical role in human subjects protection. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 30: 411-9. PMID 12497701  0.6
2002 Wendler D, Prasad K, Wilfond B. Does the current consent process minimize the risks of genetics research? American Journal of Medical Genetics. 113: 258-262. PMID 12439893 DOI: 10.1002/ajmg.10818  0.6
2002 Freund CL, Wilfond BS. Emerging ethical issues in pharmacogenomics: From research to clinical practice American Journal of Pharmacogenomics. 2: 273-281. PMID 12421098  0.6
2002 Wilfond B, Rothenberg LS. Ethical issues in cystic fibrosis newborn screening: From data to public health policy Current Opinion in Pulmonary Medicine. 8: 529-534. PMID 12394162 DOI: 10.1097/00063198-200211000-00008  0.6
2002 Gollust SE, Hull SC, Wilfond BS. Limitations of direct-to-consumer advertising for clinical genetic testing Journal of the American Medical Association. 288: 1762-1767. PMID 12365961  0.6
2002 Gooding HC, Wilfond B, Boehm K, Biesecker BB. Unintended messages: the ethics of teaching genetic dilemmas. The Hastings Center Report. 32: 37-9. PMID 11998769  0.6
2001 Botkin JR, Clayton E, Nelson R, Wilfond B, Munger MA, Miller FG, Shorr AF, Ross LF, Fowler SJ, Lipworth BJ, Lazarus SC, Lemanske R.F. J. Salmeterol and inhaled corticosteroids in patients with persistent asthma [1] (multiple letters) Journal of the American Medical Association. 286: 3075-3078. PMID 11754663  0.6
2001 Nelson RM, Botkin JR, Kodish ED, Levetown M, Truman JT, Wilfond BS, Harrison CE, Kazura A, Krug E, Schwartz PA, Donovan GK, Fallat M, Porter IH, Steinberg D. Ethical issues with genetic testing in pediatrics Pediatrics. 107: 1451-1455. PMID 11389275 DOI: 10.1542/peds.107.6.1451  0.6
2001 Hedenfalk I, Duggan D, Chen Y, Radmacher M, Bittner M, Simon R, Meltzer P, Gusterson B, Esteller M, Kallioniemi OP, Wilfond B, Borg A, Trent J, Raffeld M, Yakhini Z, et al. Gene-expression profiles in hereditary breast cancer. The New England Journal of Medicine. 344: 539-48. PMID 11207349 DOI: 10.1056/NEJM200102223440801  0.6
2001 Nelson RM, Botkin JR, Kodish ED, Levetown M, Truman JT, Wilfond BS, Harrison CE, Kazura A, Krug E, Schwartz PA, Donovan GK, Fallat ME, Davis DS. Institutional ethics committees Pediatrics. 107: 205-209. PMID 11134464 DOI: 10.1542/peds.107.1.205  0.6
2000 Burger IM, Wilfond BS. Limitations of informed consent for in utero gene transfer research: Implications for investigators and institutional review boards Human Gene Therapy. 11: 1057-1063. PMID 10811234 DOI: 10.1089/10430340050015365  0.6
2000 Taras HL, Cimino DA, McGrath JW, Murray RD, Yankus WA, Young TL, Pattishall E, Fleming M, Glendon M, Harrison-Jones L, Wolfe L, Newberry JL, Vernon M, Nelson RM, Botkin JR, ... ... Wilfond BS, et al. Do not resuscitate orders in schools Pediatrics. 105: 878-879. PMID 10742342  0.6
2000 Kairys SW, Alexander RC, Block RW, Everett VD, Hymel KP, Jenny C, Corwin DL, Shelley GA, Reece RM, Kirschner RA, Hurley TP, Nelson RM, Botkin JR, Kodish ED, Levetown M, ... ... Wilfond BS, et al. Forgoing life-sustaining medical treatment in abused children: Committee on child abuse and neglect and committee on bioethics Pediatrics. 106: 1151-1153.  0.6
2000 Nelson RM, Botkin JR, Kodish ED, Levetown M, Truman JT, Wilfond BS. Palliative care for children Pediatrics. 106: 351-357.  0.6
2000 Smith FO, Kurtzberg J, Karson EM, Howe CWS, Wilfond B, Broxmeyer HE, Mastroianni AC, Gross S, Sugarman J. Umbilical cord blood collection, storage and transplantation: Issues and recommendations for expectant parents and patients Cancer Research Therapy and Control. 10: 217-226.  0.6
1999 Nelson RM, Botkin JR, Levetown M, Moseley KL, Truman JT, Wilfond BS, Kazura A, Bowes W.A. J, Krug E, Caniano DA, Donovan GK, Frader JE, Davis DS. Sterilization of minors with developmental disabilities Pediatrics. 104: 337-340. PMID 10429022 DOI: 10.1542/peds.104.2.337  0.6
1999 Nelson RM, Botkin JR, Levetown M, Moseley KL, Truman JT, Wilfond BS, Kazura A, Bowes W.A. J, Krug EF, Caniano DA, Donovan GK, Frader JE, Davis DS. Appropriate boundaries in the pediatrician-family-patient relationship Pediatrics. 104: 334-336. PMID 10429021 DOI: 10.1542/peds.104.2.334  0.6
1999 Oh W, Cairo MS, Desposito F, Greene MF, Mauer AM, Pearson HA, Stevenson DK, Wilfond BS, Finkelstein JZ, Kurtzberg J. Cord blood banking for potential future transplantation: Subject review Pediatrics. 104: 116-118. PMID 10390273 DOI: 10.1542/peds.104.1.116  0.6
1999 Nelson RM, Botkin JR, Levetown M, Moseley KL, Truman JT, Wilfond BS. Fetal therapy - Ethical considerations Pediatrics. 103: 1061-1063. PMID 10224193 DOI: 10.1542/peds.103.5.1061  0.6
1999 Wilfond BS. Genetic testing of umbilical cord blood samples: A proposal for a policy of parental permission and nondisclosure of results Cancer Research Therapy and Control. 8: 347-349.  0.6
1998 Blustein J, Robinson W, Loeben GS, Wilfond BS. Case vignette: placebos and informed consent. Ethics & Behavior. 8: 89-98. PMID 11655356 DOI: 10.1207/s15327019eb0801_8  0.6
1998 Loeben GL, Marteau TM, Wilfond BS. Mixed messages: Presentation of information in cystic fibrosis-screening pamphlets American Journal of Human Genetics. 63: 1181-1189. PMID 9758594 DOI: 10.1086/302036  0.6
1998 Ozdemir A, Cosentino CM, Siwik SA, Wilfond BS. Radiological case of the month Archives of Pediatrics and Adolescent Medicine. 152: 921-922. PMID 9743040  0.6
1998 Burke W, Thomson E, Khoury MJ, McDonnell SM, Press N, Adams PC, Barton JC, Beutler E, Brittenham G, Buchanan A, Clayton EW, Cogswell ME, Meslin EM, Motulsky AG, Powell LW, ... ... Wilfond BS, et al. Hereditary hemochromatosis: gene discovery and its implications for population-based screening. Jama. 280: 172-8. PMID 9669792 DOI: 10.1001/jama.280.2.172  0.6
1998 Frader JE, Botkin JR, Moseley KL, Nelson RM, Wilfond BS, Kazura A, Bowes WA, Krug E, Caniano DA, King NMP. Female genital mutilation Pediatrics. 102: 153-156. PMID 9651425 DOI: 10.1542/peds.102.1.153  0.6
1998 Mischler EH, Wilfond BS, Fost N, Laxova A, Reiser C, Sauer CM, Makholm LM, Shen G, Feenan L, McCarthy C, Farrell PM. Cystic fibrosis newborn screening: Impact on reproductive behavior and implications for genetic counseling Pediatrics. 102: 44-52. PMID 9651412 DOI: 10.1542/peds.102.1.44  0.6
1997 Wilfond BS, Rothenberg KH, Thomson EJ, Lerman C. Cancer genetic susceptibility testing: ethical and policy implications for future research and clinical practice. Cancer Genetic Studies Consortium, National Institutes of Health The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 25: 243-251, 230. PMID 11066506  0.6
1997 Lanken PN, Terry PB, Adler DC, Brooks-Brunn JA, Crawford SW, Danis M, Fedullo AJ, Gottlieb JE, Hansen-Flaschen J, Kollef MH, Lemaire F, Luce JM, Osborne ML, Paz HL, Popovitch J. J, ... ... Wilfond BS, et al. Fair allocation of intensive care unit resources American Journal of Respiratory and Critical Care Medicine. 156: 1282-1301. PMID 9351636  0.6
1997 Sugarman J, Kaalund V, Kodish E, Marshall MF, Reisner EG, Wilfond BS, Wolpe PR. Ethical issues in umbilical cord blood banking Journal of the American Medical Association. 278: 938-943. PMID 9302248  0.6
1997 Geller G, Botkin JR, Green MJ, Press N, Biesecker BB, Wilfond B, Grana G, Daly MB, Schneider K, Kahn MJE. Genetic testing for susceptibility to adult-onset cancer: The process and content of informed consent Journal of the American Medical Association. 277: 1467-1474. PMID 9145720  0.6
1997 Lerman C, Gold K, Audrain J, Lin TH, Orleans CT, Boyd NR, Wilfond B, Louben G, Caporaso N. Incorporating Biomarkers of Exposure and Genetic Susceptibility into Smoking Cessation Treatment: Effects on Smoking-Related Cognitions, Emotions, and Behavior Change Health Psychology. 16: 87-99. PMID 9028818  0.6
1997 Wilfond BS, Rothenberg KH, Thomson EJ, Lerman C. Cancer Genetic Susceptibility Testing: Ethical and Policy Implications for Future Research and Clinical Practice Journal of Law, Medicine and Ethics. 25: 243-251.  0.6
1995 Wilfond BS. Screening policy for cystic fibrosis. The role of evidence The Hastings Center Report. 25: S21-23. PMID 7649737  0.6
1995 Wilfond BS, Baker D. Genetic counseling, non-directiveness, and clients' values: is what clients say, what they mean? The Journal of Clinical Ethics. 6: 180-182. PMID 7496027  0.6
1994 Wilfond BS, Farrell PM, Laxova A, Mischler E. Severe hemolytic anemia associated with vitamin E deficiency in infants with cystic fibrosis: Implications for neonatal screening Clinical Pediatrics. 33: 2-7. PMID 8156723  0.6
1994 Wilfond BS, Nolan K. In Reply Jama: the Journal of the American Medical Association. 271: 1240. DOI: 10.1001/jama.1994.03510400026023  0.6
1993 Wilfond BS, Nolan K. National Policy Development for the Clinical Application of Genetic Diagnostic Technologies: Lessons From Cystic Fibrosis Jama: the Journal of the American Medical Association. 270: 2948-2954. PMID 8254856 DOI: 10.1001/jama.1993.03510240060033  0.6
1993 Gregg RG, Wilfond BS, Farrell PM, Laxova A, Hassemer D, Mischler EH. Application of DNA analysis in a population-screening program for neonatal diagnosis of cystic fibrosis (CF): Comparison of screening protocols American Journal of Human Genetics. 52: 616-626. PMID 7680526  0.6
1992 Biesecker L, Bowles-Biesecker B, Collins F, Kaback M, Wilfond B. General population screening for cystic fibrosis is premature [1] American Journal of Human Genetics. 50: 438-439. PMID 1734723  0.6
1992 Wilfond BS, Fost N. The introduction of cystic fibrosis carrier screening into clinical practice: policy considerations The Milbank Quarterly. 70: 629-659. PMID 1435628  0.6
1992 Lippman A, Wilfond BS. Twice-told tales: Stories about genetic disorders American Journal of Human Genetics. 51: 936-937. PMID 1415243  0.6
1991 Farrell PM, Mischler EH, Fost NC, Wilfond BS, Tluczek A, Gregg RG, Bruns WT, Hassemer DJ, Laessig RH. Current issues in neonatal screening for cystic fibrosis and implications of the CF gene discovery Pediatric Pulmonology. Supplement. 7: 11-18. PMID 1782123  0.6
1990 Wilfond BS, Fost N. The Cystic Fibrosis Gene: Medical and Social Implications for Heterozygote Detection Jama: the Journal of the American Medical Association. 263: 2777-2783. PMID 2332921 DOI: 10.1001/jama.1990.03440200081027  0.6
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