Michael MacDonald Burgess, PhD - Publications

Affiliations: 
1983-1986 Philosophy The University of Tennessee, Knoxville, TN, United States 
 1984-1996 University of Calgary, Calgary, Alberta, Canada 
 1997- W. Maurice Young Centre for Applied Ethics, School of Population and Public Health University of British Columbia, Vancouver, Vancouver, BC, Canada 
Area:
biomedical ethics, science and technology policy, public engagement
Website:
https://ethics.ubc.ca/person/michael-burgess/

44 high-probability publications. We are testing a new system for linking publications to authors. You can help! If you notice any inaccuracies, please sign in and mark papers as correct or incorrect matches. If you identify any major omissions or other inaccuracies in the publication list, please let us know.

Year Citation  Score
2020 Erikainen S, Friesen P, Rand L, Jongsma K, Dunn M, Sorbie A, McCoy M, Bell J, Burgess M, Chen H, Chico V, Cunningham-Burley S, Darbyshire J, Dawson R, Evans A, et al. Public involvement in the governance of population-level biomedical research: unresolved questions and future directions. Journal of Medical Ethics. PMID 33023977 DOI: 10.1136/medethics-2020-106530  0.338
2019 Costa S, Bentley C, Regier DA, McTaggart-Cowan H, Mitton C, Burgess MM, Peacock SJ. Public perspectives on disinvestments in drug funding: results from a Canadian deliberative public engagement event on cancer drugs. Bmc Public Health. 19: 977. PMID 31331312 DOI: 10.1186/S12889-019-7303-2  0.35
2019 Mitton C, Seixas BV, Peacock S, Burgess M, Bryan S. Health Technology Assessment as Part of a Broader Process for Priority Setting and Resource Allocation. Applied Health Economics and Health Policy. PMID 31161365 DOI: 10.1007/S40258-019-00488-1  0.358
2019 Bentley C, Peacock S, Abelson J, Burgess MM, Demers-Payette O, Longstaff H, Tripp L, Lavis JN, Wilson MG. Addressing the affordability of cancer drugs: using deliberative public engagement to inform health policy. Health Research Policy and Systems. 17: 17. PMID 30732616 DOI: 10.1186/S12961-019-0411-8  0.379
2019 McGrail K, Burgess M, O'Doherty K, Bentley C, Teng J. Data intensive science and the public good: Results of public deliberations in British Columbia, Canada International Journal of Population Data Science. 4. DOI: 10.23889/Ijpds.V4I3.1325  0.397
2019 Aitken M, Tully MP, Porteous C, Denegri S, Cunningham-Burley S, Banner N, Black C, Burgess M, Cross L, Van Delden J, Ford E, Fox S, Fitzpatrick N, Gallacher K, Goddard C, et al. Consensus Statement on Public Involvement and Engagement with Data-Intensive Health Research International Journal of Population Data Science. 4. DOI: 10.23889/Ijpds.V4I1.586  0.412
2019 Teng J, Bentley C, Burgess MM, O'Doherty KC, McGrail KM. Sharing linked data sets for research: results from a deliberative public engagement event in British Columbia, Canada International Journal of Population Data Science. 4. DOI: 10.23889/Ijpds.V4I1.1103  0.389
2018 Steel D, Fazelpour S, Gillette K, Crewe B, Burgess M. Multiple diversity concepts and their ethical-epistemic implications. European Journal For Philosophy of Science. 8: 761-780. PMID 30956737 DOI: 10.1007/S13194-018-0209-5  0.366
2018 Burgess MM, Mumford JD, Lavery JV. Public engagement pathways for emerging GM insect technologies. Bmc Proceedings. 12: 12. PMID 30079103 DOI: 10.1186/S12919-018-0109-X  0.395
2018 Bentley C, Costa S, Burgess MM, Regier D, McTaggart-Cowan H, Peacock SJ. Trade-offs, fairness, and funding for cancer drugs: key findings from a deliberative public engagement event in British Columbia, Canada. Bmc Health Services Research. 18: 339. PMID 29739463 DOI: 10.1186/S12913-018-3117-7  0.341
2018 Teng J, McGrail K, Bentley C, Burgess M, O'Doherty K. Public views and recommendations on the use of linked data for research: preliminary results from a public deliberation engagement International Journal of Population Data Science. 3. DOI: 10.23889/Ijpds.V3I4.959  0.419
2017 Polisena J, Burgess M, Mitton C, Lynd LD. Engaging the Canadian public on reimbursement decision-making for drugs for rare diseases: a national online survey. Bmc Health Services Research. 17: 372. PMID 28549479 DOI: 10.1186/S12913-017-2310-4  0.353
2017 Dry SM, Garrett SB, Koenig BA, Brown AF, Burgess MM, Hult JR, Longstaff H, Wilcox ES, Madrigal Contreras SK, Martinez A, Boyd EA, Dohan D. Community recommendations on biobank governance: Results from a deliberative community engagement in California. Plos One. 12: e0172582. PMID 28235046 DOI: 10.1371/Journal.Pone.0172582  0.375
2015 Douglas CM, Wilcox E, Burgess M, Lynd LD. Why orphan drug coverage reimbursement decision-making needs patient and public involvement. Health Policy (Amsterdam, Netherlands). 119: 588-96. PMID 25641123 DOI: 10.1016/J.Healthpol.2015.01.009  0.369
2015 Chalmers D, Burgess M, Edwards K, Kaye J, Meslin EM, Nicol D. Marking shifts in human research ethics in the development of biobanking Public Health Ethics. 8: 63-71. DOI: 10.1093/Phe/Phu023  0.397
2014 Caulfield T, Burningham S, Joly Y, Master Z, Shabani M, Borry P, Becker A, Burgess M, Calder K, Critchley C, Edwards K, Fullerton SM, Gottweis H, Hyde-Lay R, Illes J, et al. A review of the key issues associated with the commercialization of biobanks. Journal of Law and the Biosciences. 1: 94-110. PMID 27774156 DOI: 10.1093/Jlb/Lst004  0.468
2014 McWhirter RE, Critchley CR, Nicol D, Chalmers D, Whitton T, Otlowski M, Burgess MM, Dickinson JL. Community engagement for big epidemiology: deliberative democracy as a tool. Journal of Personalized Medicine. 4: 459-74. PMID 25563457 DOI: 10.3390/Jpm4040459  0.387
2014 Regier DA, Bentley C, Mitton C, Bryan S, Burgess MM, Chesney E, Coldman A, Gibson J, Hoch J, Rahman S, Sabharwal M, Sawka C, Schuckel V, Peacock SJ. Public engagement in priority-setting: results from a pan-Canadian survey of decision-makers in cancer control. Social Science & Medicine (1982). 122: 130-9. PMID 25441325 DOI: 10.1016/J.Socscimed.2014.10.038  0.385
2014 Burgess MM. From 'trust us' to participatory governance: Deliberative publics and science policy. Public Understanding of Science (Bristol, England). 23: 48-52. PMID 24434712 DOI: 10.1177/0963662512472160  0.409
2014 Chalmers D, McWhirter RE, Nicol D, Whitton T, Otlowski M, Burgess MM, Foote SJ, Critchley C, Dickinson JL. New avenues within community engagement: addressing the ingenuity gap in our approach to health research and future provision of health care Journal of Responsible Innovation. 1: 321-328. DOI: 10.1080/23299460.2014.963002  0.435
2013 O’Doherty KC, MacKenzie MK, Badulescu D, Burgess MM. Explosives, Genomics, and the Environment Sage Open. 3: 215824401347895. DOI: 10.1177/2158244013478951  0.406
2012 O'Doherty K, Ibrahim T, Hawkins A, Burgess M, Watson P. Managing the introduction of biobanks to potential participants: lessons from a deliberative public forum. Biopreservation and Biobanking. 10: 12-21. PMID 24849749 DOI: 10.1089/Bio.2011.0029  0.385
2012 O'Doherty KC, Hawkins AK, Burgess MM. Involving citizens in the ethics of biobank research: informing institutional policy through structured public deliberation. Social Science & Medicine (1982). 75: 1604-11. PMID 22867865 DOI: 10.1016/J.Socscimed.2012.06.026  0.423
2011 O'Doherty KC, Burgess MM, Edwards K, Gallagher RP, Hawkins AK, Kaye J, McCaffrey V, Winickoff DE. From consent to institutions: designing adaptive governance for genomic biobanks. Social Science & Medicine (1982). 73: 367-74. PMID 21726926 DOI: 10.1016/J.Socscimed.2011.05.046  0.413
2010 MacLean S, Burgess MM. In the public interest: assessing expert and stakeholder influence in public deliberation about biobanks. Public Understanding of Science (Bristol, England). 19: 486-96. PMID 20977185 DOI: 10.1177/0963662509335410  0.402
2010 Longstaff H, Burgess MM. Recruiting for representation in public deliberation on the ethics of biobanks. Public Understanding of Science (Bristol, England). 19: 212-24. PMID 20533799 DOI: 10.1177/0963662508097626  0.415
2010 O'Doherty K, Burgess M, Secko DM. Sequencing the salmon genome: A deliberative public engagement Genomics, Society and Policy. 6. DOI: 10.1186/1746-5354-6-1-15  0.375
2009 Watson PH, Wilson-McManus JE, Barnes RO, Giesz SC, Png A, Hegele RG, Brinkman JN, Mackenzie IR, Huntsman DG, Junker A, Gilks B, Skarsgard E, Burgess M, Aparicio S, McManus BM. Evolutionary concepts in biobanking - the BC BioLibrary. Journal of Translational Medicine. 7: 95. PMID 19909513 DOI: 10.1186/1479-5876-7-95  0.367
2009 O'Doherty KC, Burgess MM. Engaging the public on biobanks: outcomes of the BC biobank deliberation. Public Health Genomics. 12: 203-15. PMID 19367089 DOI: 10.1159/000167801  0.412
2009 Secko DM, Preto N, Niemeyer S, Burgess MM. Informed consent in biobank research: a deliberative approach to the debate. Social Science & Medicine (1982). 68: 781-9. PMID 19095337 DOI: 10.1016/J.Socscimed.2008.11.020  0.42
2009 Avard D, Bucci LM, Burgess MM, Kaye J, Heeney C, Farmer Y, Cambon-Thomsen A. Public health genomics (PHG) and public participation: Points to consider Journal of Public Deliberation. 5. DOI: 10.16997/Jdd.78  0.451
2008 Burgess M, O'Doherty K, Secko D. Biobanking in British Columbia: discussions of the future of personalized medicine through deliberative public engagement. Personalized Medicine. 5: 285-296. PMID 29783499 DOI: 10.2217/17410541.5.3.285  0.434
2008 Tansey JD, Burgess M. The meanings of genomics: a focus group study of "interested" and lay classifications of salmon genomics. Public Understanding of Science (Bristol, England). 17: 473-84. PMID 19244868 DOI: 10.1177/0963662507076603  0.357
2008 Secko DM, Burgess M, O'Doherty K. Perspectives on engaging the public in the ethics of emerging biotechnologies: from salmon to biobanks to neuroethics. Accountability in Research. 15: 283-302. PMID 18972267 DOI: 10.1080/08989620802388762  0.401
2008 Caulfield T, McGuire AL, Cho M, Buchanan JA, Burgess MM, Danilczyk U, Diaz CM, Fryer-Edwards K, Green SK, Hodosh MA, Juengst ET, Kaye J, Kedes L, Knoppers BM, Lemmens T, et al. Research ethics recommendations for whole-genome research: consensus statement. Plos Biology. 6: e73. PMID 18366258 DOI: 10.1371/Journal.Pbio.0060073  0.607
2007 Burgess MM. Proposing modesty for informed consent. Social Science & Medicine (1982). 65: 2284-95. PMID 17884264 DOI: 10.1016/J.Socscimed.2007.08.006  0.376
2006 Williams-Jones B, Burgess MM. Democratising access to genetic services. Familial Cancer. 5: 117-21. PMID 16528615 DOI: 10.1007/S10689-005-2582-4  0.603
2005 Brunger F, Burgess M. A cultural understanding of research ethics governance. Health Law Review. 13: 69-74. PMID 16459417  0.638
2004 Burgess MM. Public consultation in ethics: an experiment in representative ethics. Journal of Bioethical Inquiry. 1: 4-13. PMID 16025591 DOI: 10.1007/Bf02448901  0.427
2004 Williams-Jones B, Burgess MM. Social contract theory and just decision making: lessons from genetic testing for the BRCA mutations. Kennedy Institute of Ethics Journal. 14: 115-42. PMID 15281186 DOI: 10.1353/Ken.2004.0026  0.611
2003 Thurston WE, Vollman AR, Burgess MM. Ethical review of health promotion program evaluation proposals. Health Promotion Practice. 4: 45-50. PMID 14610971 DOI: 10.1177/1524839902238290  0.375
2001 Burgess MM, d'Agincourt-Canning L. Genetic testing for hereditary disease: attending to relational responsibility. The Journal of Clinical Ethics. 12: 361-72. PMID 12026741  0.641
2001 Burgess MM. Beyond consent: ethical and social issues in genetic testing. Nature Reviews Genetics. 2: 147-151. PMID 11253055 DOI: 10.1038/35052579  0.367
1997 Burgess MM, Adam S, Bloch M, Hayden MR. Dilemmas of anonymous predictive testing for Huntington disease: Privacy vs. optimal care American Journal of Medical Genetics. 71: 197-201. PMID 9217222 DOI: 10.1002/(Sici)1096-8628(19970808)71:2<197::Aid-Ajmg15>3.0.Co;2-9  0.355
Show low-probability matches.