Year |
Citation |
Score |
2022 |
Beskow LM, Wolf LE. "Choice of law" in precision medicine research. American Journal of Human Genetics. 109: 1347-1352. PMID 35931047 DOI: 10.1016/j.ajhg.2022.06.009 |
0.451 |
|
2022 |
Wolf LE, Brown EF, Greeson R, Hammack-Aviran C, Hazel JW, Rencher W, Beskow LM. Addressing choice of law challenges in multi-state precision medicine research: experts' assessment of key factors. Journal of Law and the Biosciences. 9: lsac013. PMID 35496982 DOI: 10.1093/jlb/lsac013 |
0.42 |
|
2022 |
Beskow LM, Hammack-Aviran C, Hazel JW, Wolf LE. Perspectives on choice of law challenges in multistate precision medicine research. Journal of Law and the Biosciences. 9: lsac010. PMID 35479264 DOI: 10.1093/jlb/lsac010 |
0.453 |
|
2020 |
Beskow LM, Brelsford KM, Hammack-Aviran CM. EHR phenotyping for research recruitment: Researcher, IRB, and physician perspectives on approaches to contacting patients. Journal of Clinical and Translational Science. 5: e32. PMID 33948255 DOI: 10.1017/cts.2020.524 |
0.433 |
|
2020 |
Beskow LM, Hammack-Aviran CM, Brelsford KM. Thought Leader Comparisons of Risks in Precision Medicine Research. Ethics & Human Research. 42: 35-40. PMID 33136329 DOI: 10.1002/eahr.500059 |
0.318 |
|
2020 |
Beskow LM, Hammack-Aviran CM, Brelsford KM. Developing model biobanking consent language: what matters to prospective participants? Bmc Medical Research Methodology. 20: 119. PMID 32414333 DOI: 10.1186/S12874-020-01001-2 |
0.355 |
|
2020 |
Wolf LE, Hammack CM, Brown EF, Brelsford KM, Beskow LM. Protecting Participants in Genomic Research: Understanding the "Web of Protections" Afforded by Federal and State Law. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 48: 126-141. PMID 32342774 DOI: 10.1177/1073110520917000 |
0.332 |
|
2020 |
Hammack-Aviran CM, Brelsford KM, Beskow LM. Ethical Considerations in the Conduct of Unregulated mHealth Research: Expert Perspectives. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 48: 9-36. PMID 32342756 DOI: 10.1177/1073110520917027 |
0.486 |
|
2020 |
Beskow LM, Hammack-Aviran CM, Brelsford KM, O'Rourke PP. Expert Perspectives on Oversight for Unregulated mHealth Research: Empirical Data and Commentary. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 48: 138-146. PMID 32342753 DOI: 10.1177/1073110520917039 |
0.45 |
|
2020 |
Rothstein MA, Wilbanks JT, Beskow LM, Brelsford KM, Brothers KB, Doerr M, Evans BJ, Hammack-Aviran CM, McGowan ML, Tovino SA. Unregulated Health Research Using Mobile Devices: Ethical Considerations and Policy Recommendations. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 48: 196-226. PMID 32342752 DOI: 10.1177/1073110520917047 |
0.445 |
|
2020 |
Hammack-Aviran CM, Brelsford KM, McKenna KC, Graham RD, Lampron ZM, Beskow LM. Research Use of Electronic Health Records: Patients' Views on Alternative Approaches to Permission. Ajob Empirical Bioethics. 1-15. PMID 32338567 DOI: 10.1080/23294515.2020.1755383 |
0.453 |
|
2019 |
Rothstein MA, Zawati MH, Beskow LM, Brelsford KM, Brothers KB, Hammack-Aviran CM, Hazel JW, Joly Y, Lang M, Patrinos D, Saltzman A, Knoppers BM. Legal and Ethical Challenges of International Direct-to-Participant Genomic Research: Conclusions and Recommendations. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 47: 705-731. PMID 31957580 DOI: 10.1177/1073110519898297 |
0.476 |
|
2019 |
Beskow LM, Weinfurt KP. Exploring Understanding of "Understanding": The Paradigm Case of Biobank Consent Comprehension. The American Journal of Bioethics : Ajob. 19: 6-18. PMID 31068107 DOI: 10.1080/15265161.2019.1587031 |
0.372 |
|
2019 |
Hammack CM, Brelsford KM, Beskow LM. Thought Leader Perspectives on Participant Protections in Precision Medicine Research. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 47: 134-148. PMID 30994064 DOI: 10.1177/1073110519840493 |
0.357 |
|
2019 |
Beskow LM, Brelsford KM, Hammack CM. Patient perspectives on use of electronic health records for research recruitment. Bmc Medical Research Methodology. 19: 42. PMID 30808279 DOI: 10.1186/S12874-019-0686-Z |
0.479 |
|
2018 |
Beskow LM, Hammack CM, Brelsford KM. Thought leader perspectives on benefits and harms in precision medicine research. Plos One. 13: e0207842. PMID 30475858 DOI: 10.1371/Journal.Pone.0207842 |
0.485 |
|
2018 |
Wolf SM, Scholtes E, Koenig BA, Petersen GM, Berry SA, Beskow LM, Daly MB, Fernandez CV, Green RC, LeRoy BS, Lindor NM, O'Rourke PP, Breitkopf CR, Rothstein MA, Van Ness B, et al. Pragmatic Tools for Sharing Genomic Research Results with the Relatives of Living and Deceased Research Participants. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 46: 87-109. PMID 30008546 DOI: 10.1177/1073110518766024 |
0.421 |
|
2018 |
Brelsford KM, Spratt SE, Beskow LM. Research use of electronic health records: patients' perspectives on contact by researchers. Journal of the American Medical Informatics Association : Jamia. PMID 29986107 DOI: 10.1093/Jamia/Ocy087 |
0.407 |
|
2018 |
Burke W, Beskow LM, Trinidad SB, Fullerton SM, Brelsford K. Informed Consent in Translational Genomics: Insufficient Without Trustworthy Governance. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 46: 79-86. PMID 29962827 DOI: 10.1177/1073110518766023 |
0.322 |
|
2017 |
Obeid JS, Beskow LM, Rape M, Gouripeddi R, Black RA, Cimino JJ, Embi PJ, Weng C, Marnocha R, Buse JB. A survey of practices for the use of electronic health records to support research recruitment. Journal of Clinical and Translational Science. 1: 246-252. PMID 29657859 DOI: 10.1017/cts.2017.301 |
0.45 |
|
2017 |
Beskow LM. Genotype-Driven Recruitment and the Disclosure of Individual Research Results. The American Journal of Bioethics : Ajob. 17: 64-65. PMID 28328375 DOI: 10.1080/15265161.2017.1284916 |
0.481 |
|
2016 |
Weinfurt KP, Bollinger JM, Brelsford KM, Crayton TJ, Topazian RJ, Kass NE, Beskow LM, Sugarman J. Patients' Views Concerning Research on Medical Practices: Implications for Consent. Ajob Empirical Bioethics. 7: 76-91. PMID 27800531 DOI: 10.1080/23294515.2015.1117536 |
0.534 |
|
2016 |
Beskow LM. Lessons from HeLa Cells: The Ethics and Policy of Biospecimens. Annual Review of Genomics and Human Genetics. 17: 395-417. PMID 26979405 DOI: 10.1146/Annurev-Genom-083115-022536 |
0.435 |
|
2015 |
Wolf LE, Patel MJ, Williams Tarver BA, Austin JL, Dame LA, Beskow LM. Certificates of Confidentiality: Protecting Human Subject Research Data in Law and Practice. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 43: 594-609. PMID 26479569 DOI: 10.1111/Jlme.12302 |
0.547 |
|
2015 |
Fernandez CV, O'Rourke PP, Beskow LM. Canadian Research Ethics Board Leadership Attitudes to the Return of Genetic Research Results to Individuals and Their Families. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 43: 514-22. PMID 26479560 DOI: 10.1111/Jlme.12293 |
0.603 |
|
2015 |
Beskow LM, O'Rourke PP. Return of Genetic Research Results to Participants and Families: IRB Perspectives and Roles. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 43: 502-13. PMID 26479559 DOI: 10.1111/Jlme.12292 |
0.452 |
|
2015 |
Wolf SM, Branum R, Koenig BA, Petersen GM, Berry SA, Beskow LM, Daly MB, Fernandez CV, Green RC, LeRoy BS, Lindor NM, O'Rourke PP, Breitkopf CR, Rothstein MA, Van Ness B, et al. Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 43: 440-63. PMID 26479555 DOI: 10.1111/Jlme.12288 |
0.495 |
|
2015 |
McKinney RE, Beskow LM, Ford DE, Lantos JD, McCall J, Patrick-Lake B, Pletcher MJ, Rath B, Schmidt H, Weinfurt K. Use of altered informed consent in pragmatic clinical research. Clinical Trials (London, England). 12: 494-502. PMID 26374677 DOI: 10.1177/1740774515597688 |
0.407 |
|
2015 |
Beskow LM, Dombeck CB, Thompson CP, Watson-Ormond JK, Weinfurt KP. Informed consent for biobanking: consensus-based guidelines for adequate comprehension. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 17: 226-33. PMID 25144889 DOI: 10.1038/Gim.2014.102 |
0.39 |
|
2014 |
Beskow LM, Check DK, Ammarell N. Research Participants' Understanding of and Reactions to Certificates of Confidentiality. Ajob Primary Research. 5: 12-22. PMID 24563806 DOI: 10.1080/21507716.2013.813596 |
0.521 |
|
2014 |
Botkin JR, Anderson R, Murray T, Beskow LM, Maschke K, Cuttler L. Proposed regulations for research with biospecimens: responses from stakeholders at CTSA consortium institutions. American Journal of Medical Genetics. Part A. 164: 892-7. PMID 24459038 DOI: 10.1002/Ajmg.A.36365 |
0.512 |
|
2013 |
Peppercorn J, Hamilton E, Marcom PK, Beskow L, Lyman GH. Pharmacogenetic testing in the face of unclear clinical efficacy: Lessons from cytochrome P450 2D6 for tamoxifen Cancer. 119: 3703-3709. PMID 23893861 DOI: 10.1002/Cncr.28263 |
0.341 |
|
2012 |
Wolf LE, Dame LA, Patel MJ, Williams BA, Austin JA, Beskow LM. Certificates of confidentiality: legal counsels' experiences with and perspectives on legal demands for research data. Journal of Empirical Research On Human Research Ethics : Jerhre. 7: 1-9. PMID 23086043 DOI: 10.1525/Jer.2012.7.4.1 |
0.492 |
|
2012 |
DuBois JM, Beskow L, Campbell J, Dugosh K, Festinger D, Hartz S, James R, Lidz C. Restoring balance: a consensus statement on the protection of vulnerable research participants. American Journal of Public Health. 102: 2220-5. PMID 23078487 DOI: 10.2105/Ajph.2012.300757 |
0.509 |
|
2012 |
Beskow LM, Check DK, Namey EE, Dame LA, Lin L, Cooper A, Weinfurt KP, Wolf LE. Institutional review boards' use and understanding of certificates of confidentiality. Plos One. 7: e44050. PMID 22962599 DOI: 10.1371/Journal.Pone.0044050 |
0.554 |
|
2012 |
Michie M, Cadigan RJ, Henderson G, Beskow LM. Am I a control?: Genotype-driven research recruitment and self-understandings of study participants. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 14: 983-9. PMID 22935717 DOI: 10.1038/Gim.2012.88 |
0.425 |
|
2012 |
Beskow LM, Namey EE, Miller PR, Nelson DK, Cooper A. IRB chairs' perspectives on genotype-driven research recruitment. Irb. 34: 1-10. PMID 22830177 |
0.411 |
|
2012 |
Beskow LM, Fullerton SM, Namey EE, Nelson DK, Davis AM, Wilfond BS. Recommendations for ethical approaches to genotype-driven research recruitment. Human Genetics. 131: 1423-31. PMID 22622788 DOI: 10.1007/S00439-012-1177-Z |
0.612 |
|
2012 |
Wolf SM, Crock BN, Van Ness B, Lawrenz F, Kahn JP, Beskow LM, Cho MK, Christman MF, Green RC, Hall R, Illes J, Keane M, Knoppers BM, Koenig BA, Kohane IS, et al. Managing incidental findings and research results in genomic research involving biobanks and archived data sets. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 14: 361-84. PMID 22436882 DOI: 10.1038/Gim.2012.23 |
0.534 |
|
2012 |
Beskow LM, Burke W, Fullerton SM, Sharp RR. Offering aggregate results to participants in genomic research: opportunities and challenges. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 14: 490-6. PMID 22261761 DOI: 10.1038/Gim.2011.62 |
0.438 |
|
2011 |
Tabor HK, Brazg T, Crouch J, Namey EE, Fullerton SM, Beskow LM, Wilfond BS. Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment. Journal of Empirical Research On Human Research Ethics : Jerhre. 6: 41-52. PMID 22228059 DOI: 10.1525/Jer.2011.6.4.41 |
0.449 |
|
2011 |
Cadigan RJ, Michie M, Henderson G, Davis AM, Beskow LM. The meaning of genetic research results: reflections from individuals with and without a known genetic disorder. Journal of Empirical Research On Human Research Ethics : Jerhre. 6: 30-40. PMID 22228058 DOI: 10.1525/Jer.2011.6.4.30 |
0.436 |
|
2011 |
Namey EE, Beskow LM. Epilepsy patient-participants and genetic research results as "answers". Journal of Empirical Research On Human Research Ethics : Jerhre. 6: 21-9. PMID 22228057 DOI: 10.1525/Jer.2011.6.4.21 |
0.561 |
|
2011 |
Beskow LM, Namey EE, Cadigan RJ, Brazg T, Crouch J, Henderson GE, Michie M, Nelson DK, Tabor HK, Wilfond BS. Research participants' perspectives on genotype-driven research recruitment. Journal of Empirical Research On Human Research Ethics : Jerhre. 6: 3-20. PMID 22228056 DOI: 10.1525/Jer.2011.6.4.3 |
0.586 |
|
2010 |
Fabsitz RR, McGuire A, Sharp RR, Puggal M, Beskow LM, Biesecker LG, Bookman E, Burke W, Burchard EG, Church G, Clayton EW, Eckfeldt JH, Fernandez CV, Fisher R, et al. Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group. Circulation. Cardiovascular Genetics. 3: 574-80. PMID 21156933 DOI: 10.1161/Circgenetics.110.958827 |
0.522 |
|
2010 |
Beskow LM, Friedman JY, Hardy NC, Lin L, Weinfurt KP. Developing a simplified consent form for biobanking. Plos One. 5: e13302. PMID 20949049 DOI: 10.1371/Journal.Pone.0013302 |
0.443 |
|
2010 |
Clayton EW, Smith M, Fullerton SM, Burke W, McCarty CA, Koenig BA, McGuire AL, Beskow LM, Dressler L, Lemke AA, Ramos EM, Rodriguez LL. Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 12: 616-20. PMID 20733502 DOI: 10.1097/Gim.0B013E3181Efdbd0 |
0.56 |
|
2010 |
Beskow LM, Friedman JY, Hardy NC, Lin L, Weinfurt KP. Simplifying informed consent for biorepositories: stakeholder perspectives. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 12: 567-72. PMID 20697289 DOI: 10.1097/Gim.0B013E3181Ead64D |
0.389 |
|
2010 |
Beskow LM, Burke W. Offering individual genetic research results: context matters. Science Translational Medicine. 2: 38cm20. PMID 20592417 DOI: 10.1126/scitranslmed.3000952 |
0.476 |
|
2010 |
McGuire AL, Beskow LM. Informed consent in genomics and genetic research. Annual Review of Genomics and Human Genetics. 11: 361-81. PMID 20477535 DOI: 10.1146/Annurev-Genom-082509-141711 |
0.497 |
|
2010 |
Beskow LM, Linney KN, Radtke RA, Heinzen EL, Goldstein DB. Ethical challenges in genotype-driven research recruitment. Genome Research. 20: 705-9. PMID 20418491 DOI: 10.1101/gr.104455.109 |
0.422 |
|
2009 |
Beskow LM, Smolek SJ. Prospective biorepository participants' perspectives on access to research results Journal of Empirical Research On Human Research Ethics. 4: 99-111. PMID 19754239 DOI: 10.1525/Jer.2009.4.3.99 |
0.583 |
|
2009 |
Peppercorn J, Hamilton E, Qiu S, Lipkus I, Marcom P, Beskow L, Lyman G. Practice and Attitudes towards CYP2D6 Testing for Patients on Tamoxifen among US Oncologists. Cancer Research. 69: 1077-1077. DOI: 10.1158/0008-5472.Sabcs-09-1077 |
0.34 |
|
2008 |
Beskow LM, Dame L, Costello EJ. Research ethics. Certificates of confidentiality and compelled disclosure of data. Science (New York, N.Y.). 322: 1054-5. PMID 19008431 DOI: 10.1126/Science.1164100 |
0.51 |
|
2008 |
Beskow LM, Dean E. Informed consent for biorepositories: assessing prospective participants' understanding and opinions. Cancer Epidemiology, Biomarkers & Prevention : a Publication of the American Association For Cancer Research, Cosponsored by the American Society of Preventive Oncology. 17: 1440-51. PMID 18559560 DOI: 10.1158/1055-9965.EPI-08-0086 |
0.342 |
|
2008 |
Haga SB, Beskow LM. Ethical, legal, and social implications of biobanks for genetics research. Advances in Genetics. 60: 505-44. PMID 18358331 DOI: 10.1016/S0065-2660(07)00418-X |
0.438 |
|
2008 |
Glickman SW, Anstrom KJ, Lin L, Chandra A, Laskowitz DT, Woods CW, Freeman DH, Kraft M, Beskow LM, Weinfurt KP, Schulman KA, Cairns CB. Challenges in Enrollment of Minority, Pediatric, and Geriatric Patients in Emergency and Acute Care Clinical Research Annals of Emergency Medicine. 51: 775-780.e3. PMID 18191297 DOI: 10.1016/J.Annemergmed.2007.11.002 |
0.447 |
|
2006 |
Bailey DB, Beskow LM, Davis AM, Skinner D. Changing perspectives on the benefits of newborn screening. Mental Retardation and Developmental Disabilities Research Reviews. 12: 270-9. PMID 17183569 DOI: 10.1002/Mrdd.20119 |
0.37 |
|
2006 |
Beskow LM. Considering the nature of individual research results. The American Journal of Bioethics : Ajob. 6: 38-40; author reply . PMID 17085406 DOI: 10.1080/15265160600938328 |
0.512 |
|
2006 |
Beskow LM, Sandler RS, Weinberger M. Research recruitment through US central cancer registries: Balancing privacy and scientific issues American Journal of Public Health. 96: 1920-1926. PMID 16571700 DOI: 10.2105/Ajph.2004.061556 |
0.631 |
|
2006 |
Beskow LM, Millikan RC, Sandler RS, Godley PA, Weiner BJ, Weinberger M. The effect of physician permission versus notification on research recruitment through cancer registries (United States) Cancer Causes and Control. 17: 315-323. PMID 16489539 DOI: 10.1007/S10552-005-0521-1 |
0.562 |
|
2005 |
Beskow LM, Sandler RS, Millikan RC, Weinberger M. Patient perspectives on research recruitment through cancer registries Cancer Causes and Control. 16: 1171-1175. PMID 16215867 DOI: 10.1007/S10552-005-0407-2 |
0.646 |
|
2004 |
Beskow LM, Botkin JR, Daly M, Juengst ET, Lehmann LS, Merz JF, Pentz R, Press NA, Ross LF, Sugarman J, Susswein LR, Terry SF, Austin MA, Burke W. Ethical issues in identifying and recruiting participants for familial genetic research American Journal of Medical Genetics. 130: 424-431. PMID 15455364 DOI: 10.1002/Ajmg.A.30234 |
0.485 |
|
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