| Year |
Citation |
Score |
| 2023 |
Baltzan I, Knoppers BM, Nemetz ETA, Lerner-Ellis J, Bernier A, Devon K. The Deceased, Public Health, and Research: Proposing Legal Reforms. Biopreservation and Biobanking. PMID 37943606 DOI: 10.1089/bio.2023.0026 |
0.353 |
|
| 2023 |
Knoppers BM, Bernier A, Bowers S, Kirby E. Open Data in the Era of the GDPR: Lessons from the Human Cell Atlas. Annual Review of Genomics and Human Genetics. PMID 36791787 DOI: 10.1146/annurev-genom-101322-113255 |
0.316 |
|
| 2022 |
Molnár-Gábor F, Beauvais MJS, Bernier A, Jimenez MPN, Recuero M, Knoppers BM. Bridging the European Data Sharing Divide in Genomic Science. Journal of Medical Internet Research. 24: e37236. PMID 36260387 DOI: 10.2196/37236 |
0.346 |
|
| 2022 |
Patrinos D, Knoppers BM, Laplante DP, Rahbari N, Wazana A. Sharing and Safeguarding Pediatric Data. Frontiers in Genetics. 13: 872586. PMID 35795212 DOI: 10.3389/fgene.2022.872586 |
0.339 |
|
| 2022 |
Driver HG, Hartley T, Price EM, Turinsky AL, Buske OJ, Osmond M, Ramani AK, Kirby E, Kernohan KD, Couse M, Elrick H, Lu K, Mashouri P, Mohan A, So D, ... ... Knoppers BM, et al. Genomics4RD: An integrated platform to share Canadian deep-phenotype and multi-omic data for international rare disease gene discovery. Human Mutation. PMID 35181971 DOI: 10.1002/humu.24354 |
0.326 |
|
| 2021 |
Rehm HL, Page AJH, Smith L, Adams JB, Alterovitz G, Babb LJ, Barkley MP, Baudis M, Beauvais MJS, Beck T, Beckmann JS, Beltran S, Bernick D, Bernier A, Bonfield JK, ... ... Knoppers BM, et al. GA4GH: International policies and standards for data sharing across genomic research and healthcare. Cell Genomics. 1. PMID 35072136 DOI: 10.1016/j.xgen.2021.100029 |
0.355 |
|
| 2021 |
Vears DF, Minion JT, Roberts SJ, Cummings J, Machirori M, Blell M, Budin-Ljøsne I, Cowley L, Dyke SOM, Gaff C, Green R, Hall A, Johns AL, Knoppers BM, Mulrine S, et al. Return of individual research results from genomic research: A systematic review of stakeholder perspectives. Plos One. 16: e0258646. PMID 34748551 DOI: 10.1371/journal.pone.0258646 |
0.342 |
|
| 2021 |
Lewis ACF, Knoppers BM, Green RC. An international policy on returning genomic research results. Genome Medicine. 13: 115. PMID 34266500 DOI: 10.1186/s13073-021-00928-5 |
0.32 |
|
| 2021 |
Rahimzadeh V, Bartlett G, Knoppers BM. A policy Delphi study to validate the key implications of data sharing (KIDS) framework for pediatric genomics in Canada. Bmc Medical Ethics. 22: 71. PMID 34107925 DOI: 10.1186/s12910-021-00635-1 |
0.338 |
|
| 2021 |
Rehm HL, Page AJ, Smith L, Adams JB, Alterovitz G, Babb LJ, Barkley MP, Baudis M, Beauvais MJ, Beck T, Beckmann JS, Beltran S, Bernick D, Bernier A, Bonfield JK, ... ... Knoppers BM, et al. GA4GH: International policies and standards for data sharing across genomic research and healthcare Cell Genomics. 1: 100029. DOI: 10.1016/j.xgen.2021.100029 |
0.326 |
|
| 2020 |
Winkler EC, Knoppers BM. Ethical challenges of precision cancer medicine. Seminars in Cancer Biology. PMID 33045356 DOI: 10.1016/j.semcancer.2020.09.009 |
0.315 |
|
| 2020 |
Knoppers BM, Beauvais MJS, Joly Y, Zawati MH, Rousseau S, Chassé M, Mooser V. Modeling consent in the time of COVID-19. Journal of Law and the Biosciences. 7: lsaa020. PMID 32728465 DOI: 10.1093/Jlb/Lsaa020 |
0.389 |
|
| 2020 |
Bernier A, Knoppers BM. Correction to: Pandemics, privacy, and public health research. Canadian Journal of Public Health-Revue Canadienne De Sante Publique. 111: 458-458. PMID 32661934 DOI: 10.17269/S41997-020-00383-6 |
0.357 |
|
| 2020 |
Bernier A, Knoppers BM. Pandemics, privacy, and public health research. Canadian Journal of Public Health-Revue Canadienne De Sante Publique. 111: 454-457. PMID 32592023 DOI: 10.17269/S41997-020-00368-5 |
0.406 |
|
| 2020 |
Suver C, Thorogood A, Doerr M, Wilbanks J, Knoppers B. Bringing Code to Data: Do Not Forget Governance. Journal of Medical Internet Research. 22. PMID 32540846 DOI: 10.2196/18087 |
0.37 |
|
| 2020 |
Wallace SE, Kirby E, Knoppers BM. How Can We Not Waste Legacy Genomic Research Data Frontiers in Genetics. 11: 446. PMID 32457803 DOI: 10.3389/Fgene.2020.00446 |
0.464 |
|
| 2020 |
Narayanasamy S, Markina V, Thorogood A, Blazkova A, Shabani M, Knoppers BM, Prainsack B, Koesters R. Genomic Sequencing Capacity, Data Retention, and Personal Access to Raw Data in Europe. Frontiers in Genetics. 11: 303. PMID 32435258 DOI: 10.3389/Fgene.2020.00303 |
0.404 |
|
| 2020 |
Lang M, Knoppers BM, Zawati MH. International mHealth Research: Old Tools and New Challenges. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 48: 178-186. PMID 32342748 DOI: 10.1177/1073110520917045 |
0.409 |
|
| 2020 |
Barnes R, Votova K, Rahimzadeh V, Osman N, Penn AM, Zawati MH, Knoppers BM. Biobanking for Genomic and Personalized Health Research: Participant Perceptions and Preferences. Biopreservation and Biobanking. PMID 32302503 DOI: 10.1089/Bio.2019.0090 |
0.397 |
|
| 2020 |
Unim B, Vito CD, Hagan J, Villari P, Knoppers BM, Zawati M. The Provision of Genetic Testing and Related Services in Quebec, Canada. Frontiers in Genetics. 11: 127. PMID 32194621 DOI: 10.3389/Fgene.2020.00127 |
0.364 |
|
| 2020 |
Phillips M, Molnár-Gábor F, Korbel JO, Thorogood A, Joly Y, Chalmers D, Townend D, Knoppers BM. Genomics: data sharing needs an international code of conduct. Nature. 578: 31-33. PMID 32025008 DOI: 10.1038/D41586-020-00082-9 |
0.352 |
|
| 2020 |
Beauvais M, Knoppers BM. When information is the treatment? Precision medicine in healthcare. Healthcare Management Forum. 33: 840470419859017. PMID 31505971 DOI: 10.1177/0840470419859017 |
0.356 |
|
| 2020 |
Auffray C, Balling R, Blomberg N, Bonaldo MC, Boutron B, Brahmachari S, Bréchot C, Cesario A, Chen S, Clément K, Danilenko D, Di Meglio A, Gelemanović A, Goble C, Gojobori T, ... ... Knoppers B, et al. COVID-19 and beyond: a call for action and audacious solidarity to all the citizens and nations, it is humanity’s fight F1000research. 9: 1130. DOI: 10.12688/F1000Research.26098.1 |
0.334 |
|
| 2019 |
Esquivel-Sada D, Lévesque E, Hagan J, Knoppers BM, Simard J. Envisioning Implementation of a Personalized Approach in Breast Cancer Screening Programs: Stakeholder Perspectives Health Policy. 15: 39-54. PMID 32077844 DOI: 10.12927/Hcpol.2019.26072 |
0.304 |
|
| 2019 |
Rothstein MA, Knoppers BM. Regulation of International Direct-to-Participant Genomic Research: Symposium Introduction. Journal of Law Medicine & Ethics. 47: 579-580. PMID 31957592 DOI: 10.1177/1073110519897734 |
0.403 |
|
| 2019 |
Rothstein MA, Zawati MH, Beskow LM, Brelsford KM, Brothers KB, Hammack-Aviran CM, Hazel JW, Joly Y, Lang M, Patrinos D, Saltzman A, Knoppers BM. Legal and Ethical Challenges of International Direct-to-Participant Genomic Research: Conclusions and Recommendations. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 47: 705-731. PMID 31957580 DOI: 10.1177/1073110519898297 |
0.446 |
|
| 2019 |
Kleiderman E, Ravitsky V, Knoppers BM. 'Serious' factor-a relevant starting point for further debate: a response. Journal of Medical Ethics. PMID 31694871 DOI: 10.1136/Medethics-2019-105832 |
0.393 |
|
| 2019 |
Kochhar S, Knoppers B, Gamble C, Chant A, Koplan J, Humphreys GS. Clinical trial data sharing: here's the challenge. Bmj Open. 9: e032334. PMID 31439612 DOI: 10.1136/Bmjopen-2019-032334 |
0.405 |
|
| 2019 |
Nguyen MT, Goldblatt J, Isasi R, Jagut M, Jonker AH, Kaufmann P, Ouillade L, Molnar-Gabor F, Shabani M, Sid E, Tassé AM, Wong-Rieger D, Knoppers BM. Model consent clauses for rare disease research. Bmc Medical Ethics. 20: 55. PMID 31370847 DOI: 10.1186/S12910-019-0390-X |
0.407 |
|
| 2019 |
Bubela T, Kleiderman E, Master Z, Ogbogu U, Ravitsky V, Zarzeczny A, Knoppers BM. Canada's Pragmatic Reforms in Support of Research. Frontiers in Medicine. 6: 157. PMID 31355201 DOI: 10.3389/Fmed.2019.00157 |
0.399 |
|
| 2019 |
Kleiderman E, Ravitsky V, Knoppers BM. The 'serious' factor in germline modification. Journal of Medical Ethics. PMID 31326898 DOI: 10.1136/Medethics-2019-105436 |
0.382 |
|
| 2019 |
Rothstein MA, Zawati MH, Knoppers BM. Regulatory Landscape of International Direct-to-Participant (DTP) Genomic Research: Time to Untie the Gordian Knot? Journal of Law Medicine & Ethics. 47: 336-341. PMID 31298096 DOI: 10.1177/1073110519857291 |
0.401 |
|
| 2019 |
Dalpé G, Thorogood A, Knoppers BM. A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research. Frontiers in Genetics. 10: 289. PMID 31024616 DOI: 10.3389/Fgene.2019.00289 |
0.436 |
|
| 2019 |
Phillips M, Knoppers BM. Whose Commons? Data Protection as a Legal Limit of Open Science. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 47: 106-111. PMID 30994061 DOI: 10.1177/1073110519840489 |
0.311 |
|
| 2019 |
Thorogood A, Dalpé G, Knoppers BM. Return of individual genomic research results: are laws and policies keeping step? European Journal of Human Genetics : Ejhg. PMID 30622328 DOI: 10.1038/S41431-018-0311-3 |
0.466 |
|
| 2018 |
Cline MS, Liao RG, Parsons MT, Paten B, Alquaddoomi F, Antoniou A, Baxter S, Brody L, Cook-Deegan R, Coffin A, Couch FJ, Craft B, Currie R, Dlott CC, Dolman L, ... ... Knoppers B, et al. BRCA Challenge: BRCA Exchange as a global resource for variants in BRCA1 and BRCA2. Plos Genetics. 14: e1007752. PMID 30586411 DOI: 10.1371/Journal.Pgen.1007752 |
0.422 |
|
| 2018 |
Kleiderman E, Boily A, Hasilo C, Knoppers BM. Overcoming barriers to facilitate the regulation of multi-centre regenerative medicine clinical trials. Stem Cell Research & Therapy. 9: 1-9. PMID 30409192 DOI: 10.1186/S13287-018-1055-2 |
0.318 |
|
| 2018 |
Ravitsky V, Nguyen MT, Birko S, Kleiderman E, Laberge AM, Knoppers BM. Pre-implantation Genetic Diagnosis: The Road Forward in Canada. Journal of Obstetrics and Gynaecology Canada : Jogc = Journal D'Obstetrique Et Gynecologie Du Canada : Jogc. PMID 30361155 DOI: 10.1016/J.Jogc.2018.08.001 |
0.37 |
|
| 2018 |
Thorogood A, Touré SB, Ordish J, Hall A, Knoppers B. Genetic database software as medical devices. Human Mutation. 39: 1702-1712. PMID 30311376 DOI: 10.1002/Humu.23621 |
0.325 |
|
| 2018 |
Thorogood A, Mäki-Petäjä-Leinonen A, Brodaty H, Dalpé G, Gastmans C, Gauthier S, Gove D, Harding R, Knoppers BM, Rossor M, Bobrow M. Consent recommendations for research and international data sharing involving persons with dementia. Alzheimer's & Dementia : the Journal of the Alzheimer's Association. 14: 1334-1343. PMID 30293575 DOI: 10.1016/J.Jalz.2018.05.011 |
0.396 |
|
| 2018 |
Lévesque E, Kirby E, Bolt I, Knoppers BM, de Beaufort I, Pashayan N, Widschwendter M. Ethical, Legal, and Regulatory Issues for the Implementation of Omics-Based Risk Prediction of Women's Cancer: Points to Consider. Public Health Genomics. 1-8. PMID 30223261 DOI: 10.1159/000492663 |
0.301 |
|
| 2018 |
Knoppers BM, Joly Y. Introduction: the why and whither of genomic data sharing Human Genetics. 137: 569-574. PMID 30097718 DOI: 10.1007/S00439-018-1923-Y |
0.356 |
|
| 2018 |
Dyke SOM, Linden M, Lappalainen I, De Argila JR, Carey K, Lloyd D, Spalding JD, Cabili MN, Kerry G, Foreman J, Cutts T, Shabani M, Rodriguez LL, Haeussler M, Walsh B, ... ... Knoppers BM, et al. Registered access: authorizing data access. European Journal of Human Genetics : Ejhg. PMID 30069064 DOI: 10.1038/S41431-018-0219-Y |
0.42 |
|
| 2018 |
Woolley JP, Kirby E, Leslie J, Jeanson F, Cabili MN, Rushton G, Hazard JG, Ladas V, Veal CD, Gibson SJ, Tassé AM, Dyke SOM, Gaff C, Thorogood A, Knoppers BM, et al. Responsible sharing of biomedical data and biospecimens via the "Automatable Discovery and Access Matrix" (ADA-M). Npj Genomic Medicine. 3: 17. PMID 30062047 DOI: 10.1038/S41525-018-0057-4 |
0.375 |
|
| 2018 |
Baker D, Knoppers BM, Phillips M, van Enckevort D, Kaufmann P, Lochmuller H, Taruscio D. Privacy-Preserving Linkage of Genomic and Clinical Data Sets. Ieee/Acm Transactions On Computational Biology and Bioinformatics. PMID 30059313 DOI: 10.1109/Tcbb.2018.2855125 |
0.433 |
|
| 2018 |
Riggs ER, Azzariti DR, Niehaus A, Goehringer SR, Ramos EM, Rodriguez LL, Knoppers B, Rehm HL, Martin CL. Development of a consent resource for genomic data sharing in the clinical setting. Genetics in Medicine : Official Journal of the American College of Medical Genetics. PMID 29899502 DOI: 10.1038/S41436-018-0017-5 |
0.41 |
|
| 2018 |
Friedman JM, Bombard Y, Cornel MC, Fernandez CV, Junker AK, Plon SE, Stark Z, Knoppers BM. Genome-wide sequencing in acutely ill infants: genomic medicine's critical application? Genetics in Medicine : Official Journal of the American College of Medical Genetics. PMID 29895853 DOI: 10.1038/S41436-018-0055-Z |
0.358 |
|
| 2018 |
Dummer TJB, Awadalla P, Boileau C, Craig C, Fortier I, Goel V, Hicks JMT, Jacquemont S, Knoppers BM, Le N, McDonald T, McLaughlin J, Mes-Masson AM, Nuyt AM, Palmer LJ, et al. The Canadian Partnership for Tomorrow Project: a pan-Canadian platform for research on chronic disease prevention. Cmaj : Canadian Medical Association Journal = Journal De L'Association Medicale Canadienne. 190: E710-E717. PMID 29891475 DOI: 10.1503/Cmaj.170292 |
0.346 |
|
| 2018 |
Ogbogu U, Zarzeczny A, Baltz J, Bedford P, Du J, Hyun I, Jaafar Y, Jurisicova A, Kleiderman E, Koukio Y, Knoppers BM, Leader A, Master Z, Nguyen MT, Noohi F, et al. Research on Human Embryos and Reproductive Materials: Revisiting Canadian Law and Policy. Healthcare Policy = Politiques De Sante. 13: 10-19. PMID 29595433 DOI: 10.12927/Hcpol.2018.25401 |
0.314 |
|
| 2018 |
Rahimzadeh V, Schickhardt C, Knoppers BM, Sénécal K, Vears DF, Fernandez CV, Pfister S, Plon S, Terry S, Williams J, Williams MS, Cornel M, Friedman JM. Key Implications of Data Sharing in Pediatric Genomics. Jama Pediatrics. PMID 29554172 DOI: 10.1001/Jamapediatrics.2017.5500 |
0.408 |
|
| 2018 |
Borry P, Caulfield T, Estivill X, Loland S, McNamee M, Knoppers BM. Geolocalisation of athletes for out-of-competition drug testing: ethical considerations. Position statement by the WADA Ethics Panel. British Journal of Sports Medicine. PMID 29500253 DOI: 10.1136/Bjsports-2017-098299 |
0.375 |
|
| 2018 |
Widschwendter M, Jones A, Evans I, Reisel D, Dillner J, Sundström K, Steyerberg EW, Vergouwe Y, Wegwarth O, Rebitschek FG, Siebert U, Sroczynski G, de Beaufort ID, Bolt I, Cibula D, ... ... Knoppers BM, et al. Epigenome-based cancer risk prediction: rationale, opportunities and challenges. Nature Reviews. Clinical Oncology. PMID 29485132 DOI: 10.1038/Nrclinonc.2018.30 |
0.327 |
|
| 2018 |
Contreras JL, Knoppers BM. The Genomic Commons. Annual Review of Genomics and Human Genetics. 19: 429-453. PMID 29400986 DOI: 10.1146/Annurev-Genom-083117-021552 |
0.415 |
|
| 2018 |
Dyke SOM, Knoppers BM, Evans AC. Ethics & governance for the Canadian Open Neuroscience Platform F1000research. 7. DOI: 10.7490/F1000Research.1115904.1 |
0.33 |
|
| 2018 |
Rothstein MA, Harrell HL, Saulnier KM, Dove ES, Fan CT, Hung T, Nnamuchi O, Obadia A, Siegal G, Knoppers BM. Broad Consent for Future Research: International Perspectives Irb: Ethics & Human Research. 40: 7-12. DOI: 10.1002/Eahr.406002 |
0.401 |
|
| 2017 |
Vears DF, Sénécal K, Clarke AJ, Jackson L, Laberge AM, Lovrecic L, Piton A, Van Gassen KLI, Yntema HG, Knoppers BM, Borry P. Points to consider for laboratories reporting results from diagnostic genomic sequencing. European Journal of Human Genetics : Ejhg. PMID 29184171 DOI: 10.1038/S41431-017-0043-9 |
0.347 |
|
| 2017 |
Burton PR, Banner N, Elliot MJ, Knoppers BM, Banks J. Policies and strategies to facilitate secondary use of research data in the health sciences. International Journal of Epidemiology. PMID 29025140 DOI: 10.1093/Ije/Dyx195 |
0.371 |
|
| 2017 |
Deverka PA, Majumder MA, Villanueva AG, Anderson M, Bakker AC, Bardill J, Boerwinkle E, Bubela T, Evans BJ, Garrison NA, Gibbs RA, Gentleman R, Glazer D, Goldstein MM, Greely H, ... ... Knoppers BM, et al. Creating a data resource: what will it take to build a medical information commons? Genome Medicine. 9: 84. PMID 28938910 DOI: 10.1186/S13073-017-0476-3 |
0.446 |
|
| 2017 |
Phillips M, Dove ES, Knoppers BM. Criminal Prohibition of Wrongful Re‑identification: Legal Solution or Minefield for Big Data? Journal of Bioethical Inquiry. PMID 28913771 DOI: 10.1007/S11673-017-9806-9 |
0.378 |
|
| 2017 |
So D, Knoppers BM. Ethics approval in applications for open-access clinical trial data: An analysis of researcher statements to clinicalstudydatarequest.com. Plos One. 12: e0184491. PMID 28886178 DOI: 10.1371/Journal.Pone.0184491 |
0.409 |
|
| 2017 |
Thorogood A, St-Pierre CD, Knoppers BM. Substitute consent to data sharing: a way forward for international dementia research? Journal of Leukocyte Biology. 4: 133-158. PMID 28852560 DOI: 10.1093/Jlb/Lsw063 |
0.432 |
|
| 2017 |
Shabani M, Dove ES, Murtagh M, Knoppers BM, Borry P. Oversight of Genomic Data Sharing: What Roles for Ethics and Data Access Committees? Biopreservation and Biobanking. 15: 469-474. PMID 28836815 DOI: 10.1089/Bio.2017.0045 |
0.462 |
|
| 2017 |
Dyke SOM, Knoppers BM, Hamosh A, Firth HV, Hurles M, Brudno M, Boycott KM, Philippakis AA, Rehm HL. "Matching" consent to purpose: The example of the Matchmaker Exchange. Human Mutation. PMID 28699299 DOI: 10.1002/Humu.23278 |
0.394 |
|
| 2017 |
Salerno J, Knoppers BM, Lee LM, Hlaing WM, Goodman KW. Ethics, big data and computing in epidemiology and public health. Annals of Epidemiology. 27: 297-301. PMID 28595734 DOI: 10.1016/J.Annepidem.2017.05.002 |
0.377 |
|
| 2017 |
Lawler M, Haussler D, Siu LL, Haendel MA, McMurry JA, Knoppers BM, Chanock SJ, Calvo F, The BT, Walia G, Banks I, Yu PP, Staudt LM, Sawyers CL. Sharing Clinical and Genomic Data on Cancer - The Need for Global Solutions. The New England Journal of Medicine. 376: 2006-2009. PMID 28538124 DOI: 10.1056/Nejmp1612254 |
0.33 |
|
| 2017 |
Boycott KM, Rath A, Chong JX, Hartley T, Alkuraya FS, Baynam G, Brookes AJ, Brudno M, Carracedo A, den Dunnen JT, Dyke SOM, Estivill X, Goldblatt J, Gonthier C, Groft SC, ... ... Knoppers BM, et al. International Cooperation to Enable the Diagnosis of All Rare Genetic Diseases. American Journal of Human Genetics. 100: 695-705. PMID 28475856 DOI: 10.1016/J.Ajhg.2017.04.003 |
0.346 |
|
| 2017 |
Vis DJ, Lewin J, Liao RG, Mao M, Andre F, Ward RL, Calvo F, Teh BT, Camargo AA, Knoppers BM, Sawyers CL, Wessels LFA, Lawler M, Siu LL, Voest E, et al. Towards a global cancer knowledge network: dissecting the current international cancer genomic sequencing landscape. Annals of Oncology : Official Journal of the European Society For Medical Oncology. 28: 1145-1151. PMID 28453708 DOI: 10.1093/Annonc/Mdx037 |
0.334 |
|
| 2017 |
Joly Y, Feze IN, Song L, Knoppers BM. Comparative Approaches to Genetic Discrimination: Chasing Shadows? Trends in Genetics : Tig. PMID 28365141 DOI: 10.1016/J.Tig.2017.02.002 |
0.402 |
|
| 2017 |
C Yuen RK, Merico D, Bookman M, L Howe J, Thiruvahindrapuram B, Patel RV, Whitney J, Deflaux N, Bingham J, Wang Z, Pellecchia G, Buchanan JA, Walker S, Marshall CR, Uddin M, ... ... Knoppers BM, et al. Whole genome sequencing resource identifies 18 new candidate genes for autism spectrum disorder. Nature Neuroscience. PMID 28263302 DOI: 10.1038/Nn.4524 |
0.32 |
|
| 2017 |
Moreno PG, Joly Y, Knoppers BM. Public-Private Partnerships in Cloud-Computing Services in the Context of Genomic Research. Frontiers in Medicine. 4: 3. PMID 28164085 DOI: 10.3389/Fmed.2017.00003 |
0.444 |
|
| 2017 |
Thorogood A, Cook-Deegan R, Knoppers BM. Public variant databases: liability? Genetics in Medicine. 19: 838-841. PMID 27977006 DOI: 10.1038/Gim.2016.189 |
0.415 |
|
| 2017 |
Knoppers BM, Thorogood AM. Ethics and Big Data in health Current Opinion in Systems Biology. 4: 53-57. DOI: 10.1016/J.Coisb.2017.07.001 |
0.413 |
|
| 2016 |
Rahimzadeh V, Knoppers BM. How mutually recognizable is mutual recognition? An international terminology index of research ethics review policies in the USA, Canada, UK and Australia. Personalized Medicine. 13: 101-105. PMID 29749902 DOI: 10.2217/Pme.15.52 |
0.447 |
|
| 2016 |
Dyke SO, Dove ES, Knoppers BM. Sharing health-related data: a privacy test? Npj Genomic Medicine. 1: 160241-160246. PMID 27990299 DOI: 10.1038/Npjgenmed.2016.24 |
0.416 |
|
| 2016 |
Joly Y, Dyke SOM, Knoppers BM, Pastinen T. Are Data Sharing and Privacy Protection Mutually Exclusive? Cell. 167: 1150-1154. PMID 27863233 DOI: 10.1016/J.Cell.2016.11.004 |
0.428 |
|
| 2016 |
Strom BL, Buyse ME, Hughes J, Knoppers BM. Data Sharing - Is the Juice Worth the Squeeze? The New England Journal of Medicine. 375: 1608-1609. PMID 27783903 DOI: 10.1056/Nejmp1610336 |
0.356 |
|
| 2016 |
Charlebois K, Palmour N, Knoppers BM. The Adoption of Cloud Computing in the Field of Genomics Research: The Influence of Ethical and Legal Issues Plos One. 11. PMID 27755563 DOI: 10.1371/Journal.Pone.0164347 |
0.383 |
|
| 2016 |
Dyke SO, Kirby E, Shabani M, Thorogood A, Kato K, Knoppers BM. Registered access: a 'Triple-A' approach. European Journal of Human Genetics : Ejhg. PMID 27677416 DOI: 10.1038/Ejhg.2016.115 |
0.427 |
|
| 2016 |
Knoppers BM, Nguyen MT, Sénécal K, Tassé AM, Zawati MH. Next-Generation Sequencing and the Return of Results. Cold Spring Harbor Perspectives in Medicine. PMID 27599532 DOI: 10.1101/Cshperspect.A026724 |
0.336 |
|
| 2016 |
Warner AW, Moore H, Reinhard D, Ball LA, Knoppers BM. Harmonizing Global Biospecimen Consent Practices to Advance Translational Research - A Call to Action. Clinical Pharmacology and Therapeutics. PMID 27558027 DOI: 10.1002/Cpt.461 |
0.433 |
|
| 2016 |
Townend D, Dove ES, Nicol D, Bovenberg J, Knoppers BM. Streamlining ethical review of data intensive research. Bmj (Clinical Research Ed.). 354: i4181. PMID 27486077 DOI: 10.1136/Bmj.I4181 |
0.431 |
|
| 2016 |
Green RC, Goddard KA, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, ... ... Knoppers BM, et al. Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine. American Journal of Human Genetics. 99: 246. PMID 27392080 DOI: 10.1016/J.Ajhg.2016.06.002 |
0.388 |
|
| 2016 |
Sénécal K, Thys K, Vears DF, Van Assche K, Knoppers BM, Borry P. Legal approaches regarding health-care decisions involving minors: implications for next-generation sequencing. European Journal of Human Genetics : Ejhg. 24: 1559-1564. PMID 27302841 DOI: 10.1038/Ejhg.2016.61 |
0.351 |
|
| 2016 |
Page A, Baker D, Bobrow M, Boycott K, Burn J, Chanock S, Donnelly S, Dove E, Durbin R, Dyke S, Fiume M, Flicek P, Glazer D, Goodhand P, Haussler D, ... ... Knoppers B, et al. A federated ecosystem for sharing genomic, clinical data Science. PMID 27284183 DOI: 10.1126/Science.Aaf6162 |
0.357 |
|
| 2016 |
Fortier I, Raina P, Van den Heuvel ER, Griffith LE, Craig C, Saliba M, Doiron D, Stolk RP, Knoppers BM, Ferretti V, Granda P, Burton P. Maelstrom Research guidelines for rigorous retrospective data harmonization. International Journal of Epidemiology. PMID 27272186 DOI: 10.1093/Ije/Dyw075 |
0.319 |
|
| 2016 |
Rothstein MA, Knoppers BM, Harrell HL. Comparative Approaches to Biobanks and Privacy. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 44: 161-72. PMID 27256132 DOI: 10.1177/1073110516644207 |
0.413 |
|
| 2016 |
Bovenberg JA, Hoogh Kd, Knoppers BM, Hveem K, Hansell AL. Don't Take It Personal: European Union Legal Aspects of Procuring and Protecting Environmental Exposure Data in Population Biobanks Through the Use of a Geo-Information-Systems Toolkit Biopreservation and Biobanking. 14: 217. PMID 27187500 DOI: 10.1089/Bio.2016.0007 |
0.35 |
|
| 2016 |
Kaye J, Briceño Moraia L, Mitchell C, Bell J, Bovenberg J, Tasse AM, Knoppers BM. Access Governance for Biobanks: The Case of the BioSHaRE-EU Cohorts. Biopreservation and Biobanking. PMID 27183185 DOI: 10.1089/Bio.2015.0124 |
0.433 |
|
| 2016 |
Green RC, Goddard KA, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, ... ... Knoppers BM, et al. Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine. American Journal of Human Genetics. PMID 27181682 DOI: 10.1016/J.Ajhg.2016.04.011 |
0.455 |
|
| 2016 |
Siu LL, Lawler M, Haussler D, Knoppers BM, Lewin J, Vis DJ, Liao RG, Andre F, Banks I, Barrett JC, Caldas C, Camargo AA, Fitzgerald RC, Mao M, Mattison JE, et al. Facilitating a culture of responsible and effective sharing of cancer genome data. Nature Medicine. 22: 464-71. PMID 27149219 DOI: 10.1038/Nm.4089 |
0.378 |
|
| 2016 |
Dove ES, Thompson B, Knoppers BM. A step forward for data protection and biomedical research. Lancet (London, England). 387: 1374-1375. PMID 27115815 DOI: 10.1016/S0140-6736(16)30078-2 |
0.375 |
|
| 2016 |
Rahimzadeh V, Dyke SO, Knoppers BM. An International Framework for Data Sharing: Moving Forward with the Global Alliance for Genomics and Health. Biopreservation and Biobanking. 14: 256-9. PMID 27082668 DOI: 10.1089/Bio.2016.0005 |
0.443 |
|
| 2016 |
Dove ES, Townend D, Meslin EM, Bobrow M, Littler K, Nicol D, de Vries J, Junker A, Garattini C, Bovenberg J, Shabani M, Lévesque E, Knoppers BM. RESEARCH ETHICS. Ethics review for international data-intensive research. Science (New York, N.Y.). 351: 1399-400. PMID 27013718 DOI: 10.1126/Science.Aad5269 |
0.446 |
|
| 2016 |
Isasi R, Kleiderman E, Knoppers BM. Editing policy to fit the genome Science. 351: 337-339. PMID 26797999 DOI: 10.1126/Science.Aad6778 |
0.399 |
|
| 2016 |
Dyke SO, Philippakis AA, Rambla De Argila J, Paltoo DN, Luetkemeier ES, Knoppers BM, Brookes AJ, Spalding JD, Thompson M, Roos M, Boycott KM, Brudno M, Hurles M, Rehm HL, Matern A, et al. Consent Codes: Upholding Standard Data Use Conditions. Plos Genetics. 12: e1005772. PMID 26796797 DOI: 10.1371/Journal.Pgen.1005772 |
0.342 |
|
| 2016 |
Joly Y, So D, Osien G, Crimi L, Bobrow M, Chalmers D, Wallace SE, Zeps N, Knoppers B. A decision tool to guide the ethics review of a challenging breed of emerging genomic projects. European Journal of Human Genetics : Ejhg. 24: 1099-103. PMID 26785834 DOI: 10.1038/ejhg.2015.279 |
0.318 |
|
| 2016 |
Foulkes WD, Knoppers BM, Turnbull C. Population genetic testing for cancer susceptibility: founder mutations to genomes Nature Reviews Clinical Oncology. 13: 41-54. PMID 26483301 DOI: 10.1038/Nrclinonc.2015.173 |
0.334 |
|
| 2016 |
Yung CK, Bourque G, Boutros PC, Emam KE, Ferretti V, Knoppers BM, O’Connor B, Ouellette BFF, Sahinalp C, Shah SP, Stein LD. Abstract 3605: ICGC in the cloud Cancer Research. 76: 3605-3605. DOI: 10.1158/1538-7445.Am2016-3605 |
0.373 |
|
| 2016 |
Lewin J, Vis DJ, Lawler M, Liao R, Mao M, Teh BT, Sellers W, Ward R, Camargo AA, Andre F, Schilsky R, Lacombe D, Shibata T, Fox S, Tourneau CL, ... ... Knoppers BM, et al. Abstract 1832: Large variations in clinical and ethical aspects of genomic sequencing initiatives: A Global Alliance for Genomics and Health (GA4GH) survey Cancer Research. 76: 1832-1832. DOI: 10.1158/1538-7445.Am2016-1832 |
0.418 |
|
| 2016 |
Joly Y, De Vries-Seguin E, Chalmers D, Ouellette BFF, Yamada J, Bobrow M, Knoppers BM. Analysis of five years of controlled access and data sharing compliance at the International Cancer Genome Consortium Nature Genetics. 48: 224-225. DOI: 10.1038/Ng.3499 |
0.335 |
|
| 2016 |
Joly Y, So D, Osien G, Crimi L, Bobrow M, Chalmers D, Wallace SE, Zeps N, Knoppers B. A decision tool to guide the ethics review of a challenging breed of emerging genomic projects European Journal of Human Genetics. DOI: 10.1038/Ejhg.2015.279 |
0.429 |
|
| 2015 |
Sénécal K, Vears DF, Bertier G, Knoppers BM, Borry P. Genome-based newborn screening: a conceptual analysis of the best interests of the child standard. Personalized Medicine. 12: 439-441. PMID 29749887 DOI: 10.2217/Pme.15.28 |
0.344 |
|
| 2015 |
Rothstein MA, Knoppers BM. INTRODUCTION: Harmonizing Privacy Laws to Enable International Biobank Research. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 43: 673-4. PMID 26711408 DOI: 10.1111/Jlme.12310 |
0.387 |
|
| 2015 |
Sénécal K, Rahimzadeh V, Knoppers BM, Fernandez CV, Avard D, Sinnett D. Statement of principles on the return of research results and incidental findings in paediatric research: a multi-site consultative process. Genome / National Research Council Canada = Genome / Conseil National De Recherches Canada. 1-8. PMID 26613133 DOI: 10.1139/Gen-2015-0092 |
0.424 |
|
| 2015 |
Bredenoord AL, Mostert M, Isasi R, Knoppers BM. Data sharing in stem cell translational science: policy statement by the International Stem Cell Forum Ethics Working Party. Regenerative Medicine. 10: 857-61. PMID 26506014 DOI: 10.2217/Rme.15.42 |
0.388 |
|
| 2015 |
Fernandez CV, OʼConnell C, Ferguson M, Orr AC, Robitaille JM, Knoppers BM, McMaster CR. Stability of Attitudes to the Ethical Issues Raised by the Return of Incidental Genomic Research Findings in Children: A Follow-Up Study. Public Health Genomics. PMID 26352440 DOI: 10.1159/000439244 |
0.4 |
|
| 2015 |
Knoppers BM, Chadwick R. The ethics weathervane. Bmc Medical Ethics. 16: 58. PMID 26337535 DOI: 10.1186/S12910-015-0054-4 |
0.439 |
|
| 2015 |
Knoppers BM, Zawati MH, Sénécal K. Return of genetic testing results in the era of whole-genome sequencing Nature Reviews Genetics. 16: 553-559. PMID 26239711 DOI: 10.1038/Nrg3960 |
0.408 |
|
| 2015 |
Tyler-Smith C, Yang H, Landweber LF, Dunham I, Knoppers BM, Donnelly P, Mardis ER, Snyder M, McVean G. Where Next for Genetics and Genomics? Plos Biology. 13: e1002216. PMID 26225775 DOI: 10.1371/Journal.Pbio.1002216 |
0.344 |
|
| 2015 |
Beak CP, Chargé SB, Isasi R, Knoppers BM. Developing Educational Resources to Advance Umbilical Cord Blood Banking and Research: A Canadian Perspective. Journal of Obstetrics and Gynaecology Canada : Jogc = Journal D'Obstetrique Et Gynecologie Du Canada : Jogc. 37: 443-450. PMID 26168106 DOI: 10.1016/S1701-2163(15)30260-7 |
0.369 |
|
| 2015 |
Burton PR, Murtagh MJ, Boyd A, Williams JB, Dove ES, Wallace SE, Tassé AM, Little J, Chisholm RL, Gaye A, Hveem K, Brookes AJ, Goodwin P, Fistein J, Bobrow M, ... Knoppers BM, et al. Data Safe Havens in health research and healthcare. Bioinformatics (Oxford, England). PMID 26112289 DOI: 10.1093/Bioinformatics/Btv279 |
0.399 |
|
| 2015 |
Zawati MH, Junker A, Knoppers BM, Rahimzadeh V. Streamlining review of research involving humans: Canadian models. Journal of Medical Genetics. 52: 566-9. PMID 26041760 DOI: 10.1136/Jmedgenet-2014-102640 |
0.329 |
|
| 2015 |
Isasi R, Knoppers BM. Oversight of human inheritable genome modification. Nature Biotechnology. 33: 454-5. PMID 25965749 DOI: 10.1038/Nbt.3231 |
0.321 |
|
| 2015 |
Boycott K, Hartley T, Adam S, Bernier F, Chong K, Fernandez BA, Friedman JM, Geraghty MT, Hume S, Knoppers BM, Laberge AM, Majewski J, Mendoza-Londono R, Meyn MS, Michaud JL, et al. The clinical application of genome-wide sequencing for monogenic diseases in Canada: Position Statement of the Canadian College of Medical Geneticists. Journal of Medical Genetics. 52: 431-7. PMID 25951830 DOI: 10.1136/Jmedgenet-2015-103144 |
0.396 |
|
| 2015 |
Zawati MH, Knoppers BM, Thorogood A. Population Biobanking and International Collaboration Pathobiology. 81: 276-285. PMID 25792216 DOI: 10.1159/000357527 |
0.428 |
|
| 2015 |
Shabani M, Knoppers BM, Borry P. From the principles of genomic data sharing to the practices of data access committees. Embo Molecular Medicine. 7: 507-509. PMID 25759363 DOI: 10.15252/Emmm.201405002 |
0.425 |
|
| 2015 |
Bovenberg JA, Hansell A, Hoogh Kd, Knoppers BM. Nature, nurture and exposure: Connecting biobank data with geographic data could yield public and individual health benefits, but risks to human rights need to be assessed. Embo Reports. 16: 404-406. PMID 25744525 DOI: 10.15252/Embr.201439902 |
0.368 |
|
| 2015 |
Howard HC, Knoppers BM, Cornel MC, Wright Clayton E, Sénécal K, Borry P. Whole-genome sequencing in newborn screening? A statement on the continued importance of targeted approaches in newborn screening programmes. European Journal of Human Genetics : Ejhg. PMID 25626707 DOI: 10.1038/Ejhg.2014.289 |
0.399 |
|
| 2015 |
Caulfield T, Kamenova K, Ogbogu U, Zarzeczny A, Baltz J, Benjaminy S, Cassar PA, Clark M, Isasi R, Knoppers B, Knowles L, Korbutt G, Lavery JV, Lomax GP, Master Z, et al. Research ethics and stem cells: Is it time to re-think current approaches to oversight? Embo Reports. 16: 2-6. PMID 25476708 DOI: 10.15252/Embr.201439819 |
0.353 |
|
| 2015 |
Mascalzoni D, Dove ES, Rubinstein Y, Dawkins HJ, Kole A, McCormack P, Woods S, Riess O, Schaefer F, Lochmüller H, Knoppers BM, Hansson M. International Charter of principles for sharing bio-specimens and data. European Journal of Human Genetics : Ejhg. 23: 721-8. PMID 25248399 DOI: 10.1038/Ejhg.2014.197 |
0.41 |
|
| 2015 |
Dove ES, Joly Y, Tassé AM, Knoppers BM. Genomic cloud computing: legal and ethical points to consider. European Journal of Human Genetics : Ejhg. 23: 1271-8. PMID 25248396 DOI: 10.1038/Ejhg.2014.196 |
0.414 |
|
| 2015 |
Rahimzadeh V, Avard D, Sénécal K, Knoppers BM, Sinnett D. To disclose, or not to disclose? Context matters. European Journal of Human Genetics : Ejhg. 23: 279-84. PMID 24916647 DOI: 10.1038/Ejhg.2014.108 |
0.439 |
|
| 2014 |
Dove ES, Knoppers BM, Zawati MH. Towards an ethics safe harbor for global biomedical research. Journal of Law and the Biosciences. 1: 3-51. PMID 27774154 DOI: 10.1093/Jlb/Lst002 |
0.465 |
|
| 2014 |
Knoppers BM, Zawati MH, Cohen E. Special Issue - From Biobanks to the Clinic. Applied & Translational Genomics. 3: 21-2. PMID 27275409 DOI: 10.1016/J.Atg.2014.04.002 |
0.498 |
|
| 2014 |
Knoppers BM. Framework for responsible sharing of genomic and health-related data The Hugo Journal. 8: 3-3. PMID 27090251 DOI: 10.1186/S11568-014-0003-1 |
0.454 |
|
| 2014 |
Knoppers BM. INTRODUCTION: From the Right to Know to the Right Not to Know. Journal of Law Medicine & Ethics. 42: 6-10. PMID 26767471 DOI: 10.1111/Jlme.12113 |
0.461 |
|
| 2014 |
Thorogood A, Joly Y, Knoppers BM, Nilsson T, Metrakos P, Lazaris A, Salman A. An implementation framework for the feedback of individual research results and incidental findings in research. Bmc Medical Ethics. 15: 88. PMID 25539799 DOI: 10.1186/1472-6939-15-88 |
0.413 |
|
| 2014 |
Knoppers BM. Does policy grow on trees? Bmc Medical Ethics. 15: 87. PMID 25529505 DOI: 10.1186/1472-6939-15-87 |
0.404 |
|
| 2014 |
Joly Y, Knoppers BM. [Personalized medicine: equity and access]. Medecine Sciences : M/S. 30: 27-31. PMID 25407455 DOI: 10.1051/Medsci/201430S206 |
0.347 |
|
| 2014 |
Strom BL, Buyse M, Hughes J, Knoppers BM. Data sharing, year 1--access to data from industry-sponsored clinical trials. The New England Journal of Medicine. 371: 2052-4. PMID 25317745 DOI: 10.1056/Nejmp1411794 |
0.316 |
|
| 2014 |
Zawati MH, Parry D, Knoppers BM. The best interests of the child and the return of results in genetic research: international comparative perspectives. Bmc Medical Ethics. 15: 72. PMID 25280986 DOI: 10.1186/1472-6939-15-72 |
0.416 |
|
| 2014 |
Henderson GE, Wolf SM, Kuczynski KJ, Joffe S, Sharp RR, Parsons DW, Knoppers BM, Yu JH, Appelbaum PS. The challenge of informed consent and return of results in translational genomics: empirical analysis and recommendations. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 42: 344-55. PMID 25264092 DOI: 10.1111/Jlme.12151 |
0.426 |
|
| 2014 |
Gaye A, Marcon Y, Isaeva J, LaFlamme P, Turner A, Jones EM, Minion J, Boyd AW, Newby CJ, Nuotio ML, Wilson R, Butters O, Murtagh B, Demir I, Doiron D, ... ... Knoppers BM, et al. DataSHIELD: taking the analysis to the data, not the data to the analysis. International Journal of Epidemiology. 43: 1929-44. PMID 25261970 DOI: 10.1093/Ije/Dyu188 |
0.398 |
|
| 2014 |
Kosseim P, Dove ES, Baggaley C, Meslin EM, Cate FH, Kaye J, Harris JR, Knoppers BM. Building a data sharing model for global genomic research. Genome Biology. 15: 430. PMID 25221857 DOI: 10.1186/S13059-014-0430-2 |
0.397 |
|
| 2014 |
Dove ES, Townend D, Knoppers BM. Data protection and consent to biomedical research: a step forward? Lancet (London, England). 384: 855. PMID 25209486 DOI: 10.1016/S0140-6736(14)61488-4 |
0.387 |
|
| 2014 |
Joly Y, Saulnier KM, Osien G, Knoppers BM. The ethical framing of personalized medicine. Current Opinion in Allergy and Clinical Immunology. 14: 404-8. PMID 25054830 DOI: 10.1097/Aci.0000000000000091 |
0.357 |
|
| 2014 |
Knoppers BM. International ethics harmonization and the global alliance for genomics and health. Genome Medicine. 6: 13. PMID 25031613 DOI: 10.1186/Gm530 |
0.452 |
|
| 2014 |
Beaulieu CL, Majewski J, Schwartzentruber J, Samuels ME, Fernandez BA, Bernier FP, Brudno M, Knoppers B, Marcadier J, Dyment D, Adam S, Bulman DE, Jones SJ, Avard D, Nguyen MT, et al. FORGE Canada Consortium: outcomes of a 2-year national rare-disease gene-discovery project. American Journal of Human Genetics. 94: 809-17. PMID 24906018 DOI: 10.1016/J.Ajhg.2014.05.003 |
0.302 |
|
| 2014 |
Isasi R, Andrews PW, Baltz JM, Bredenoord AL, Burton P, Chiu IM, Hull SC, Jung JW, Kurtz A, Lomax G, Ludwig T, McDonald M, Morris C, Ng HH, Rooke H, ... ... Knoppers BM, et al. Identifiability and privacy in pluripotent stem cell research. Cell Stem Cell. 14: 427-30. PMID 24702994 DOI: 10.1016/J.Stem.2014.03.014 |
0.402 |
|
| 2014 |
McGuire AL, Knoppers BM, Zawati MH, Clayton EW. Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings. Genome Research. 24: 719-23. PMID 24676095 DOI: 10.1101/Gr.170514.113 |
0.434 |
|
| 2014 |
Knoppers BM, Sénécal K, Borry P, Avard D. Whole-genome sequencing in newborn screening programs. Science Translational Medicine. 6: 229cm2. PMID 24670681 DOI: 10.1126/Scitranslmed.3008494 |
0.308 |
|
| 2014 |
Brownstein CA, Beggs AH, Homer N, Merriman B, Yu TW, Flannery KC, DeChene ET, Towne MC, Savage SK, Price EN, Holm IA, Luquette LJ, Lyon E, Majzoub J, Neupert P, ... ... Knoppers BM, et al. An international effort towards developing standards for best practices in analysis, interpretation and reporting of clinical genome sequencing results in the CLARITY Challenge. Genome Biology. 15: R53. PMID 24667040 DOI: 10.1186/Gb-2014-15-3-R53 |
0.398 |
|
| 2014 |
Knoppers BM, Harris JR, Budin-Ljøsne I, Dove ES. A human rights approach to an international code of conduct for genomic and clinical data sharing. Human Genetics. 133: 895-903. PMID 24573176 DOI: 10.1007/S00439-014-1432-6 |
0.468 |
|
| 2014 |
Fernandez CV, Bouffet E, Malkin D, Jabado N, O'Connell C, Avard D, Knoppers BM, Ferguson M, Boycott KM, Sorensen PH, Orr AC, Robitaille JM, McMaster CR. Attitudes of parents toward the return of targeted and incidental genomic research findings in children. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 16: 633-40. PMID 24434691 DOI: 10.1038/Gim.2013.201 |
0.343 |
|
| 2014 |
Kleiderman E, Knoppers BM, Fernandez CV, Boycott KM, Ouellette G, Wong-Rieger D, Adam S, Richer J, Avard D. Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases. Journal of Medical Ethics. 40: 691-6. PMID 24356209 DOI: 10.1136/Medethics-2013-101648 |
0.348 |
|
| 2014 |
Joly Y, Burton H, Knoppers BM, Feze IN, Dent T, Pashayan N, Chowdhury S, Foulkes W, Hall A, Hamet P, Kirwan N, Macdonald A, Simard J, Van Hoyweghen I. Life insurance: genomic stratification and risk classification. European Journal of Human Genetics : Ejhg. 22: 575-9. PMID 24129434 DOI: 10.1038/Ejhg.2013.228 |
0.404 |
|
| 2014 |
Zawati MH, Parry D, Thorogood A, Nguyen MT, Boycott KM, Rosenblatt D, Knoppers BM. Reporting results from whole-genome and whole-exome sequencing in clinical practice: a proposal for Canada? Journal of Medical Genetics. 51: 68-70. PMID 24078715 DOI: 10.1136/Jmedgenet-2013-101934 |
0.401 |
|
| 2014 |
Knoppers BM, Avard D, Sénécal K, Zawati MH, Bredenoord AL, Hall A, Hens K, Pinxten W, Wallace S, Parry D, Wright Clayton E. Return of whole-genome sequencing results in paediatric research: A statement of the P 3 G international paediatrics platform European Journal of Human Genetics. 22: 3-5. PMID 23921532 DOI: 10.1038/Ejhg.2013.176 |
0.34 |
|
| 2014 |
Budin-Ljøsne I, Isaeva J, Knoppers BM, Tassé AM, Shen HY, McCarthy MI, Harris JR. Data sharing in large research consortia: experiences and recommendations from ENGAGE. European Journal of Human Genetics : Ejhg. 22: 317-21. PMID 23778872 DOI: 10.1038/Ejhg.2013.131 |
0.426 |
|
| 2014 |
Dressler LG, Zeps N, Deal AM, Markey J, Knoppers B. Return of individual research results: Policies and experiences of cancer genomic researchers. Journal of Clinical Oncology. 32: 11025-11025. DOI: 10.1200/Jco.2014.32.15_Suppl.11025 |
0.447 |
|
| 2014 |
Moraia LB, Kaye J, Tasse AM, Knoppers BM, Mitchell C, Soini S, Hoppe N, Wallace SE, Øien M. A comparative analysis of the requirements for the use of data in biobanks based in Finland, Germany, the Netherlands, Norway and the United Kingdom Medical Law International. 14: 187-212. DOI: 10.1177/0968533215571956 |
0.358 |
|
| 2014 |
Lévesque E, Knoppers BM. Management Strategies for Ethics in International Research Current Genetic Medicine Reports. 2: 255-260. DOI: 10.1007/S40142-014-0056-4 |
0.402 |
|
| 2013 |
Knoppers BM, Rioux A, Zawati MH. Pediatric research ‘personalized’? International perspectives on the return of results Personalized Medicine. 10: 89-95. PMID 29783467 DOI: 10.2217/Pme.12.110 |
0.414 |
|
| 2013 |
Bartlett G, Avard D, Knoppers BM. A new twist on an old problem: primary care physicians and results from direct-to-consumer genetic testing. Personalized Medicine. 10: 827-833. PMID 29776277 DOI: 10.2217/Pme.13.87 |
0.335 |
|
| 2013 |
So D, Joly Y, Knoppers BM. Clinical trial transparency and orphan drug development: Recent trends in data sharing by the pharmaceutical industry Public Health Genomics. 16: 322-335. PMID 24503593 DOI: 10.1159/000355941 |
0.328 |
|
| 2013 |
Isasi R, Dalpe G, Knoppers BM. Fostering public cord blood banking and research in Canada. Stem Cells and Development. 22: 29-34. PMID 24304072 DOI: 10.1089/Scd.2013.0381 |
0.386 |
|
| 2013 |
Dove ES, Knoppers BM, Zawati MH. An ethics safe harbor for international genomics research? Genome Medicine. 5: 99. PMID 24267880 DOI: 10.1186/Gm503 |
0.477 |
|
| 2013 |
Knoppers BM. Genomics: from persons to populations and back again. Genome. 56: 537-539. PMID 24237330 DOI: 10.1139/Gen-2013-0148 |
0.433 |
|
| 2013 |
Knoppers BM. From tissues to genomes. G3 (Bethesda, Md.). 3: 1203-4. PMID 23926221 DOI: 10.1534/G3.113.007443 |
0.347 |
|
| 2013 |
Burke W, Antommaria AH, Bennett R, Botkin J, Clayton EW, Henderson GE, Holm IA, Jarvik GP, Khoury MJ, Knoppers BM, Press NA, Ross LF, Rothstein MA, Saal H, Uhlmann WR, et al. Recommendations for returning genomic incidental findings? We need to talk! Genetics in Medicine : Official Journal of the American College of Medical Genetics. 15: 854-9. PMID 23907645 DOI: 10.1038/Gim.2013.113 |
0.383 |
|
| 2013 |
Mascalzoni D, Knoppers BM, Aymé S, Macilotti M, Dawkins H, Woods S, Hansson MG. Rare diseases and now rare data Nature Reviews Genetics. 14: 372-372. PMID 23821785 DOI: 10.1038/Nrg3494 |
0.323 |
|
| 2013 |
Budin-Ljøsne I, Soye KJ, Tassé AM, Knoppers BM, Harris JR. Genotype-driven recruitment: a strategy whose time has come? Bmc Medical Genomics. 6: 19. PMID 23702358 DOI: 10.1186/1755-8794-6-19 |
0.398 |
|
| 2013 |
van El CG, Cornel MC, Borry P, Hastings RJ, Fellmann F, Hodgson SV, Howard HC, Cambon-Thomsen A, Knoppers BM, Meijers-Heijboer H, Scheffer H, Tranebjaerg L, Dondorp W, de Wert GM. Whole-genome sequencing in health care: recommendations of the European Society of Human Genetics. European Journal of Human Genetics : Ejhg. 21: 580-4. PMID 23676617 DOI: 10.1038/Ejhg.2013.46 |
0.423 |
|
| 2013 |
Knoppers BM, Thorogood A, Chadwick R. The Human Genome Organisation: towards next-generation ethics. Genome Medicine. 5: 38. PMID 23673253 DOI: 10.1186/Gm442 |
0.471 |
|
| 2013 |
Black L, Avard D, Zawati MH, Knoppers BM, Hébert J, Sauvageau G. Funding considerations for the disclosure of genetic incidental findings in biobank research. Clinical Genetics. 84: 397-406. PMID 23662709 DOI: 10.1111/Cge.12190 |
0.442 |
|
| 2013 |
Knoppers BM, Chisholm RL, Kaye J, Cox D, Thorogood A, Burton P, Brookes AJ, Fortier I, Goodwin P, Harris JR, Hveem K, Kent A, Little J, Riegman PH, et al. A P3G generic access agreement for population genomic studies. Nature Biotechnology. 31: 384-5. PMID 23657386 DOI: 10.1038/Nbt.2567 |
0.449 |
|
| 2013 |
Black L, Batist G, Avard D, Rousseau C, Diaz Z, Knoppers BM. Physician recruitment of patients to non-therapeutic oncology clinical trials: ethics revisited. Frontiers in Pharmacology. 4: 25. PMID 23483771 DOI: 10.3389/Fphar.2013.00025 |
0.344 |
|
| 2013 |
Fernandez CV, Strahlendorf C, Avard D, Knoppers BM, O'Connell C, Bouffet E, Malkin D, Jabado N, Boycott K, Sorensen PH. Attitudes of Canadian researchers toward the return to participants of incidental and targeted genomic findings obtained in a pediatric research setting. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 15: 558-64. PMID 23370450 DOI: 10.1038/Gim.2012.183 |
0.402 |
|
| 2013 |
Dove ES, Avard D, Black L, Knoppers BM. Emerging issues in paediatric health research consent forms in Canada: working towards best practices. Bmc Medical Ethics. 14: 5. PMID 23363554 DOI: 10.1186/1472-6939-14-5 |
0.408 |
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| 2013 |
McClellan KA, Kleiderman E, Black L, Bouchard K, Dorval M, Simard J, Knoppers BM, Avard D. Exploring resources for intrafamilial communication of cancer genetic risk: we still need to talk. European Journal of Human Genetics : Ejhg. 21: 903-10. PMID 23340514 DOI: 10.1038/Ejhg.2012.286 |
0.301 |
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| 2013 |
Black L, McClellan KA, Avard D, Knoppers BM. Intrafamilial disclosure of risk for hereditary breast and ovarian cancer: points to consider. Journal of Community Genetics. 4: 203-14. PMID 23275181 DOI: 10.1007/S12687-012-0132-Y |
0.327 |
|
| 2013 |
Warner AW, Bienfait KL, Bledsoe M, Burckart G, Flamion B, Knoppers B, Nelsen AJ, Rudman A, Sieffert NJ, Uyama Y. Improving clinical trial sampling for future research - an international approach: outcomes and next steps from the DIA future use sampling workshop 2011. Pharmacogenomics. 14: 103-12. PMID 23252952 DOI: 10.2217/Pgs.12.193 |
0.363 |
|
| 2013 |
Awadalla P, Boileau C, Payette Y, Idaghdour Y, Goulet JP, Knoppers B, Hamet P, Laberge C. Cohort profile of the CARTaGENE study: Quebec's population-based biobank for public health and personalized genomics. International Journal of Epidemiology. 42: 1285-99. PMID 23071140 DOI: 10.1093/Ije/Dys160 |
0.357 |
|
| 2013 |
Knoppers BM, Deschênes M, Zawati MH, Tassé AM. Population studies: return of research results and incidental findings Policy Statement. European Journal of Human Genetics : Ejhg. 21: 245-7. PMID 22781095 DOI: 10.1038/Ejhg.2012.152 |
0.43 |
|
| 2013 |
McClellan KA, Avard D, Simard J, Knoppers BM. Personalized medicine and access to health care: potential for inequitable access? European Journal of Human Genetics : Ejhg. 21: 143-7. PMID 22781088 DOI: 10.1038/Ejhg.2012.149 |
0.356 |
|
| 2013 |
Fernandez CV, Jabado N, Boycott K, Malkin D, Bouffet E, O'Connell C, Avard D, Knoppers B, Sorensen P, Orr AC, McMaster C. Attitudes to the return of incidental and targeted genomic findings obtained in a high-risk pediatric cancer versus an inherited genetic condition research setting Journal of Clinical Oncology. 31: 10066-10066. DOI: 10.1200/Jco.2013.31.15_Suppl.10066 |
0.409 |
|
| 2013 |
Knoppers BM. Privacy, Confidentiality, and Health Research. William Lowrance. International Journal of Epidemiology. 42: 359-359. DOI: 10.1093/Ije/Dys226 |
0.355 |
|
| 2012 |
Knoppers BM. Paediatric research and the communication of not-so incidental findings. Paediatrics and Child Health. 17: 190-192. PMID 23543065 DOI: 10.1093/Pch/17.4.190 |
0.393 |
|
| 2012 |
Romeo-Casabona C, Nicolás P, Knoppers BM, Joly Y, Wallace SE, Chalmers D, Dyke S, Kennedy K, Troncoso A, Kaan T, Rial-Sebbag E. Legal aspects of genetic databases for international biomedical research: the example of the International Cancer Genome Consortium (ICGC). Revista De Derecho Y Genoma Humano = Law and the Human Genome Review / CáTedra De Derecho Y Genoma Humano/FundacióN Bbv-DiputacióN Foral De Bizkaia. 15-34. PMID 23520913 |
0.378 |
|
| 2012 |
Kleiderman E, Avard D, Black L, Diaz Z, Rousseau C, Knoppers BM. Recruiting Terminally Ill Patients into Non-Therapeutic Oncology Studies: Views of Health Professionals Bmc Medical Ethics. 13. PMID 23216847 DOI: 10.1186/1472-6939-13-33 |
0.391 |
|
| 2012 |
Knoppers BM, Dove ES, Litton JE, Nietfeld JJ. Questioning the limits of genomic privacy American Journal of Human Genetics. 91: 577-578. PMID 22958905 DOI: 10.1016/J.Ajhg.2012.05.027 |
0.429 |
|
| 2012 |
Joly Y, Dove ES, Knoppers BM, Bobrow M, Chalmers D. Data sharing in the post-genomic world: the experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO). Plos Computational Biology. 8: e1002549. PMID 22807659 DOI: 10.1371/Journal.Pcbi.1002549 |
0.445 |
|
| 2012 |
Harris JR, Burton P, Knoppers BM, Lindpaintner K, Bledsoe M, Brookes AJ, Budin-Ljøsne I, Chisholm R, Cox D, Deschênes M, Fortier I, Hainaut P, Hewitt R, Kaye J, Litton JE, et al. Toward a roadmap in global biobanking for health. European Journal of Human Genetics : Ejhg. 20: 1105-11. PMID 22713808 DOI: 10.1038/Ejhg.2012.96 |
0.401 |
|
| 2012 |
Dove ES, Joly Y, Knoppers BM. Power to the people: a wiki-governance model for biobanks. Genome Biology. 13: 158. PMID 22647613 DOI: 10.1186/Gb-2012-13-5-158 |
0.309 |
|
| 2012 |
Isasi R, Knoppers BM, Andrews PW, Bredenoord A, Colman A, Hin LE, Hull S, Kim OJ, Lomax G, Morris C, Sipp D, Stacey G, Wahlstrom J, Zeng F. Disclosure and management of research findings in stem cell research and banking: policy statement. Regenerative Medicine. 7: 439-48. PMID 22594334 DOI: 10.2217/Rme.12.23 |
0.453 |
|
| 2012 |
Kaye J, Meslin EM, Knoppers BM, Juengst ET, Deschênes M, Cambon-Thomsen A, Chalmers D, De Vries J, Edwards K, Hoppe N, Kent A, Adebamowo C, Marshall P, Kato K. Research priorities. ELSI 2.0 for genomics and society. Science (New York, N.Y.). 336: 673-4. PMID 22582247 DOI: 10.1126/Science.1218015 |
0.464 |
|
| 2012 |
Joly Y, Allen C, Knoppers BM. Currents in contemporary bioethics. Open access as benefit sharing? The example of publicly funded large-scale genomic databases. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 40: 143-6. PMID 22458469 DOI: 10.1111/J.1748-720X.2012.00652.X |
0.489 |
|
| 2012 |
Wolf SM, Crock BN, Van Ness B, Lawrenz F, Kahn JP, Beskow LM, Cho MK, Christman MF, Green RC, Hall R, Illes J, Keane M, Knoppers BM, Koenig BA, Kohane IS, et al. Managing incidental findings and research results in genomic research involving biobanks and archived data sets. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 14: 361-84. PMID 22436882 DOI: 10.1038/Gim.2012.23 |
0.456 |
|
| 2012 |
von Tigerstrom B, Nguyen TM, Knoppers BM. Regulation of stem cell-based therapies in Canada: current issues and concerns. Stem Cell Reviews. 8: 623-8. PMID 22410974 DOI: 10.1007/S12015-012-9360-0 |
0.344 |
|
| 2012 |
Knoppers BM, Zawati MH, Kirby ES. Sampling populations of humans across the world: ELSI issues. Annual Review of Genomics and Human Genetics. 13: 395-413. PMID 22404491 DOI: 10.1146/Annurev-Genom-090711-163834 |
0.391 |
|
| 2012 |
Zawati MH, Knoppers BM. International normative perspectives on the return of individual research results and incidental findings in genomic biobanks Genetics in Medicine. 14: 484-489. PMID 22344229 DOI: 10.1038/Gim.2012.13 |
0.471 |
|
| 2012 |
Ozdemir V, Joly Y, Dove ES, Karalis A, Avard D, Knoppers BM. Are we asking the right ethics questions on drug shortages? Suggestions for a global and anticipatory ethics framework. The American Journal of Bioethics : Ajob. 12: 13-5. PMID 22220951 DOI: 10.1080/15265161.2011.634952 |
0.344 |
|
| 2012 |
De Wert GM, Dondorp WJ, Knoppers BM. Preconception care and genetic risk: ethical issues. Journal of Community Genetics. 3: 221-8. PMID 22205578 DOI: 10.1007/S12687-011-0074-9 |
0.32 |
|
| 2012 |
Samuël J, Knoppers BM, Avard D. Paediatric biobanks: what makes them so unique? Journal of Paediatrics and Child Health. 48: E1-3. PMID 21535284 DOI: 10.1111/J.1440-1754.2011.02072.X |
0.336 |
|
| 2012 |
Fernandez CV, Avard D, Knoppers B, O'Connell C, Malkin D, Strahlendorf C, Jabado N, Bouffet E, Boycott K, Sorensen P. Attitudes of Researchers to the Return of Incidental and Targeted Genomic Findings Obtained in a Research Setting to Participants Blood. 120: 2069-2069. DOI: 10.1182/Blood.V120.21.2069.2069 |
0.439 |
|
| 2012 |
Joly Y, Dove ES, Kennedy KL, Bobrow M, Ouellette BFF, Dyke SOM, Kato K, Knoppers BM. Open science and community norms Data retention and publication moratoria policies in genomics projects Medical Law International. 12: 92-120. DOI: 10.1177/0968533212458431 |
0.394 |
|
| 2011 |
Grizzle WE, Knoppers BM, Zeps N, Hewitt SM, Sullivan K. What are the most oppressing legal and ethical issues facing biorepositories and what are some strategies to address them? Biopreservation and Biobanking. 9: 317-9. PMID 24836626 DOI: 10.1089/Bio.2011.9403 |
0.46 |
|
| 2011 |
Knoppers BM, Dam A. Return of Results: Towards a Lexicon? Journal of Law Medicine & Ethics. 39: 577-582. PMID 22084843 DOI: 10.1111/J.1748-720X.2011.00624.X |
0.38 |
|
| 2011 |
Knoppers BM, Lévesque E. INTRODUCTION: Return of Research Results: How Should Research Results Be Handled? Journal of Law Medicine & Ethics. 39: 574-576. PMID 22084842 DOI: 10.1111/J.1748-720X.2011.00623.X |
0.37 |
|
| 2011 |
Isasi R, Knoppers BM, Lomax G. Sustained interaction: the new normal for stem cell repositories? Regenerative Medicine. 6: 783-92. PMID 22050529 DOI: 10.2217/Rme.11.93 |
0.345 |
|
| 2011 |
Budin-Ljøsne I, Tassé AM, Knoppers BM, Harris JR. Bridging consent: from toll bridges to lift bridges? Bmc Medical Genomics. 4: 69-69. PMID 21970509 DOI: 10.1186/1755-8794-4-69 |
0.391 |
|
| 2011 |
Isasi R, Knoppers BM. From banking to international governance: fostering innovation in stem cell research. Stem Cells International. 2011: 498132. PMID 21904557 DOI: 10.4061/2011/498132 |
0.304 |
|
| 2011 |
Ozdemir V, Faraj SA, Knoppers BM. Steering vaccinomics innovations with anticipatory governance and participatory foresight. Omics : a Journal of Integrative Biology. 15: 637-46. PMID 21848419 DOI: 10.1089/Omi.2011.0087 |
0.354 |
|
| 2011 |
Ozdemir V, Pang T, Knoppers BM, Avard D, Faraj SA, Zawati MH, Kolker E. Vaccines of the 21st century and vaccinomics: data-enabled science meets global health to spark collective action for vaccine innovation. Omics : a Journal of Integrative Biology. 15: 523-7. PMID 21848418 DOI: 10.1089/Omi.2011.03Ed |
0.304 |
|
| 2011 |
Fortier I, Doiron D, Little J, Ferretti V, L'Heureux F, Stolk RP, Knoppers BM, Hudson TJ, Burton PR. Is rigorous retrospective harmonization possible? Application of the DataSHaPER approach across 53 large studies. International Journal of Epidemiology. 40: 1314-28. PMID 21804097 DOI: 10.1093/Ije/Dyr106 |
0.364 |
|
| 2011 |
Knoppers BM, Harris JR, Tassé AM, Budin-Ljøsne I, Kaye J, Deschênes M, Zawati MH. Towards a data sharing Code of Conduct for international genomic research. Genome Medicine. 3: 46. PMID 21787442 DOI: 10.1186/Gm262 |
0.478 |
|
| 2011 |
Joly Y, Zeps N, Knoppers BM. Genomic databases access agreements: legal validity and possible sanctions. Human Genetics. 130: 441-9. PMID 21706183 DOI: 10.1007/S00439-011-1044-3 |
0.456 |
|
| 2011 |
Knoppers BM, Harris JR, Burton PR, Murtagh M, Cox D, Deschênes M, Fortier I, Hudson TJ, Kaye J, Lindpaintner K. From genomic databases to translation: a call to action. Journal of Medical Ethics. 37: 515-6. PMID 21617164 DOI: 10.1136/Jme.2011.043042 |
0.421 |
|
| 2011 |
Knoppers BM, Isasi R, Benvenisty N, Kim OJ, Lomax G, Morris C, Murray TH, Lee EH, Perry M, Richardson G, Sipp D, Tanner K, Wahlström J, de Wert G, Zeng F. Publishing SNP genotypes of human embryonic stem cell lines: policy statement of the International Stem Cell Forum Ethics Working Party. Stem Cell Reviews. 7: 482-4. PMID 21279481 DOI: 10.1007/S12015-010-9226-2 |
0.351 |
|
| 2011 |
Wallace SE, Knoppers BM. Harmonised consent in international research consortia: an impossible dream? Life Sciences, Society and Policy. 7: 35. DOI: 10.1186/1746-5354-7-1-35 |
0.438 |
|
| 2011 |
Vermeulen E, Schmidt MK, Cornel MC, Knoppers BM, Van Leeuwen FE, Aaronson NK. Connective tissue: Cancer patients attitudes towards medical research using excised (tumour) tissue Biosocieties. 6: 466-486. DOI: 10.1057/Biosoc.2011.9 |
0.31 |
|
| 2010 |
Joly Y, Caulfield T, Knoppers BM, Harmsen E, Pastinen T. The commercialization of genomic research in Canada. Healthcare Policy = Politiques De Sante. 6: 24-32. PMID 22043221 |
0.348 |
|
| 2010 |
Burke W, Burton H, Hall AE, Karmali M, Khoury MJ, Knoppers B, Meslin EM, Stanley F, Wright CF, Zimmern RL. Extending the reach of public health genomics: what should be the agenda for public health in an era of genome-based and “personalized” medicine? Genetics in Medicine : Official Journal of the American College of Medical Genetics. 12: 785-91. PMID 21189494 DOI: 10.1097/Gim.0B013E3182011222 |
0.372 |
|
| 2010 |
Lévesque E, Leclerc D, Puymirat J, Knoppers BM. Developing registries of volunteers: key principles to manage issues regarding personal information protection Journal of Medical Ethics. 36: 712-714. PMID 20880892 DOI: 10.1136/Jme.2010.036715 |
0.37 |
|
| 2010 |
Fortier I, Burton PR, Robson PJ, Ferretti V, Little J, L'Heureux F, Deschênes M, Knoppers BM, Doiron D, Keers JC, Linksted P, Harris JR, Lachance G, Boileau C, Pedersen NL, et al. Quality, quantity and harmony: the DataSHaPER approach to integrating data across bioclinical studies. International Journal of Epidemiology. 39: 1383-93. PMID 20813861 DOI: 10.1093/Ije/Dyq139 |
0.421 |
|
| 2010 |
Howard HC, Knoppers BM, Borry P. Blurring lines. The research activities of direct-to-consumer genetic testing companies raise questions about consumers as research subjects. Embo Reports. 11: 579-82. PMID 20634807 DOI: 10.1038/Embor.2010.105 |
0.36 |
|
| 2010 |
Knoppers BM. Consent to ‘personal' genomics and privacy Embo Reports. 11: 416-419. PMID 20448662 DOI: 10.1038/Embor.2010.69 |
0.413 |
|
| 2010 |
Borugian MJ, Robson P, Fortier I, Parker L, McLaughlin J, Knoppers BM, Bédard K, Gallagher RP, Sinclair S, Ferretti V, Whelan H, Hoskin D, Potter JD. The Canadian Partnership for Tomorrow Project: building a pan-Canadian research platform for disease prevention. Cmaj : Canadian Medical Association Journal = Journal De L'Association Medicale Canadienne. 182: 1197-201. PMID 20421354 DOI: 10.1503/Cmaj.091540 |
0.306 |
|
| 2010 |
Knoppers BM, Leroux T, Doucet H, Godard B, Laberge C, Stanton-Jean M, Fortin S, Cousineau J, Monardes C, Girard N, Levesque L, Durand C, Farmer Y, Dion-Labrie M, Bouthillier ME, et al. Framing genomics, public health research and policy: points to consider. Public Health Genomics. 13: 224-34. PMID 20395691 DOI: 10.1159/000279624 |
0.623 |
|
| 2010 |
Hudson TJ, Anderson W, Artez A, Barker AD, Bell C, Bernabé RR, Bhan MK, Calvo F, Eerola I, Gerhard DS, Guttmacher A, Guyer M, Hemsley FM, Jennings JL, ... ... Knoppers BM, ... ... Knoppers BM, ... ... Knoppers BM, et al. International network of cancer genome projects. Nature. 464: 993-8. PMID 20393554 DOI: 10.1038/Nature08987 |
0.314 |
|
| 2010 |
Bordet S, Nguyen TM, Knoppers BM, Isasi R. Use of Umbilical Cord Blood for Stem Cell Research Journal of Obstetrics and Gynaecology Canada. 32: 58-61. PMID 20370983 DOI: 10.1016/S1701-2163(16)34406-1 |
0.34 |
|
| 2010 |
Tassé AM, Budin-Ljøsne I, Knoppers BM, Harris JR. Retrospective access to data: the ENGAGE consent experience European Journal of Human Genetics. 18: 741-745. PMID 20332813 DOI: 10.1038/Ejhg.2010.30 |
0.466 |
|
| 2010 |
Joly Y, McClellan KA, Knoppers BM. Editorial [Personalized Vaccines and Public Health Genomics: Anticipating and Monitoring the ELSIs] Current Pharmacogenomics and Personalized Medicine. 8: 4-6. DOI: 10.2174/1875692111008010004 |
0.303 |
|
| 2010 |
Joly Y, Caulfield T, Knoppers BM, Harmsen E, Pastinen T. The commercialization of genomic research in Canada. Health Policy. 6: 24-32. DOI: 10.12927/Hcpol.2013.22032 |
0.454 |
|
| 2009 |
Knoppers BM, Avard D. 'Principled' personalized medicine? Personalized Medicine. 6: 663-667. PMID 29783360 DOI: 10.2217/Pme.09.21 |
0.444 |
|
| 2009 |
Knoppers BM, Abdul-Rahman MH. Health privacy in genetic research. Politics and the Life Sciences : the Journal of the Association For Politics and the Life Sciences. 28: 99-101. PMID 20205528 DOI: 10.2990/28_2_99 |
0.453 |
|
| 2009 |
Bordet S, Bennett J, Knoppers BM, McNagny KM. The changing landscape of human-animal chimera research: A Canadian regulatory perspective. Stem Cell Research. 4: 10-6. PMID 19897431 DOI: 10.1016/J.Scr.2009.10.002 |
0.323 |
|
| 2009 |
Birney E, Hudson TJ, Green ED, Gunter C, Eddy S, Rogers J, Harris JR, Ehrlich SD, Apweiler R, Austin CP, Berglund L, Bobrow M, Bountra C, Brookes AJ, ... ... Knoppers BM, et al. Prepublication data sharing. Nature. 461: 168-70. PMID 19741685 DOI: 10.1038/461168A |
0.339 |
|
| 2009 |
Bouffard C, Viville S, Knoppers BM. Genetic diagnosis of embryos: clear explanation, not rhetoric, is needed. Cmaj : Canadian Medical Association Journal = Journal De L'Association Medicale Canadienne. 181: 387-91. PMID 19687106 DOI: 10.1503/Cmaj.080658 |
0.364 |
|
| 2009 |
Isasi RM, Knoppers BM. Governing stem cell banks and registries: Emerging Issues Stem Cell Research. 3: 96-105. PMID 19586808 DOI: 10.1016/J.Scr.2009.05.003 |
0.352 |
|
| 2009 |
Knoppers BM, Bordet S, Isasi R. The Human Embryo: Ethical and Legal Aspects Methods of Molecular Biology. 550: 281-305. PMID 19495711 DOI: 10.1007/978-1-60327-009-0_18 |
0.363 |
|
| 2009 |
Avard D, Knoppers BM. Genomic medicine: considerations for health professionals and the public. Genome Medicine. 1: 25-25. PMID 19341496 DOI: 10.1186/Gm25 |
0.422 |
|
| 2009 |
Nycum G, Avard D, Knoppers BM. Factors influencing intrafamilial communication of hereditary breast and ovarian cancer genetic information. European Journal of Human Genetics. 17: 872-880. PMID 19319160 DOI: 10.1038/Ejhg.2009.33 |
0.311 |
|
| 2009 |
Knoppers BM. Genomics and policymaking: from static models to complex systems? Human Genetics. 125: 375-379. PMID 19252928 DOI: 10.1007/S00439-009-0644-7 |
0.36 |
|
| 2009 |
Geransar RM, Einsiedel EF, Galipeau J, Isasi R, Sheremeta L, Knoppers BM. Catalyzing umbilical cord blood research in Canada: a survey of current needs and practices of principal investigators. Journal of Obstetrics and Gynaecology Canada. 31: 63-71. PMID 19208286 DOI: 10.1016/S1701-2163(16)34056-7 |
0.318 |
|
| 2009 |
Fortin S, Knoppers BM. Secondary uses of personal data for population research Life Sciences, Society and Policy. 5: 80. DOI: 10.1186/1746-5354-5-1-80 |
0.42 |
|
| 2008 |
Cohen CB, Brandhorst B, Nagy A, Leader A, Dickens B, Isasi RM, Evans D, Knoppers BM. The use of fresh embryos in stem cell research: ethical and policy issues. Cell Stem Cell. 2: 416-21. PMID 18462692 DOI: 10.1016/J.Stem.2008.04.002 |
0.346 |
|
| 2008 |
Knoppers BM, Fortier I, Legault D, Burton P. The Public Population Project in Genomics (P3G): a proof of concept European Journal of Human Genetics. 16: 664-665. PMID 18382478 DOI: 10.1038/Ejhg.2008.55 |
0.332 |
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| 2008 |
Caulfield T, McGuire AL, Cho M, Buchanan JA, Burgess MM, Danilczyk U, Diaz CM, Fryer-Edwards K, Green SK, Hodosh MA, Juengst ET, Kaye J, Kedes L, Knoppers BM, Lemmens T, et al. Research ethics recommendations for whole-genome research: consensus statement. Plos Biology. 6: e73. PMID 18366258 DOI: 10.1371/Journal.Pbio.0060073 |
0.509 |
|
| 2007 |
Isasi RM, Knoppers BM. Monetary payments for the procurement of oocytes for stem cell research: In search of ethical and political consistency Stem Cell Research. 1: 37-44. PMID 19383385 DOI: 10.1016/J.Scr.2007.09.003 |
0.404 |
|
| 2007 |
Caulfield T, Ogbogu U, Nelson E, Einsiedel E, Knoppers B, McDonald M, Brunger F, Downey R, Fernando K, Galipeau J, Geransar R, Grenier G, Hyun I, Isasi R, Kardel M, et al. Stem cell research ethics: consensus statement on emerging issues Journal of Obstetrics and Gynaecology Canada : Jogc = Journal D'ObstéTrique Et GynéCologie Du Canada : Jogc. 29: 843-848. PMID 17915069 DOI: 10.1016/S1701-2163(16)32632-9 |
0.424 |
|
| 2007 |
Cambon-Thomsen A, Rial-Sebbag E, Knoppers BM. Trends in ethical and legal frameworks for the use of human biobanks. The European Respiratory Journal. 30: 373-82. PMID 17666560 DOI: 10.1183/09031936.00165006 |
0.465 |
|
| 2007 |
Knoppers BM, Joly Y. Our social genome Trends in Biotechnology. 25: 284-288. PMID 17467834 DOI: 10.1016/J.Tibtech.2007.04.006 |
0.432 |
|
| 2007 |
Knoppers BM, Abdul-Rahman MH, Bédard K. Genomic Databases and International Collaboration King's Law Journal. 18: 291-311. DOI: 10.1080/09615768.2007.11427678 |
0.467 |
|
| 2007 |
Sheremeta L, Knoppers BM. Beyond the rhetoric: population genetics and benefit-sharing. Health Law Journal. 11: 157-182. DOI: 10.1007/978-1-4020-5822-6_8 |
0.478 |
|
| 2006 |
Isasi RM, Knoppers BM. Beyond the permissibility of embryonic and stem cell research: substantive requirements and procedural safeguards Human Reproduction. 21: 2474-2481. PMID 16877375 DOI: 10.1093/Humrep/Del235 |
0.361 |
|
| 2006 |
Knoppers BM, Joly Y, Simard J, Durocher F. The emergence of an ethical duty to disclose genetic research results: international perspectives. European Journal of Human Genetics. 14: 1170-1178. PMID 16868560 DOI: 10.1038/Sj.Ejhg.5201690 |
0.469 |
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| 2006 |
Isasi RM, Knoppers BM. Mind the gap: policy approaches to embryonic stem cell and cloning research in 50 countries. European Journal of Health Law. 13: 9-25. PMID 16838747 DOI: 10.1163/157180906777036328 |
0.346 |
|
| 2006 |
Knoppers BM, Bordet S, Isasi RM. Preimplantation genetic diagnosis: an overview of socio-ethical and legal considerations. Annual Review of Genomics and Human Genetics. 7: 201-221. PMID 16724879 DOI: 10.1146/Annurev.Genom.7.080505.115753 |
0.327 |
|
| 2006 |
Avard D, Bridge P, Bucci LM, Chiquette J, Dorval M, Durocher F, Easton D, Godard B, Goldgar D, Knoppers BM, Laframboise R, Lespérance B, Plante M, Tavtigian SV, Vézina H, et al. Partnering in oncogenetic research--the INHERIT BRCAs experience: opportunities and challenges. Familial Cancer. 5: 3-13. PMID 16528603 DOI: 10.1007/S10689-005-2570-8 |
0.435 |
|
| 2006 |
Joly Y, Knoppers BM. Pharmacogenomic data sample collection and storage: ethical issues and policy approaches. Pharmacogenomics. 7: 219-226. PMID 16515401 DOI: 10.2217/14622416.7.2.219 |
0.466 |
|
| 2006 |
Fortier I, Hudson T, Knoppers BM, Ferretti V, Deschenes M. P3G Observatory: A Tool for Population Research Projects In Genomics American Journal of Epidemiology. 163. DOI: 10.1093/Aje/163.Suppl_11.S129-D |
0.376 |
|
| 2006 |
Knoppers BM, Kent A. Tool-sharing issues in coherent population-based research Nature Reviews Genetics. 7: 84-84. DOI: 10.1038/Nrg1799 |
0.356 |
|
| 2006 |
Knoppers BM, Kent A. Policy barriers in coherent population-based research Nature Reviews Genetics. 7: 8-8. DOI: 10.1038/Nrg1776 |
0.34 |
|
| 2005 |
Knoppers BM. Of genomics and public health: Building public “goods”? Canadian Medical Association Journal. 173: 1185-1186. PMID 16275970 DOI: 10.1503/Cmaj.050325 |
0.416 |
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| 2005 |
Cotton RGH, Sallée C, Knoppers BM. Locus-specific databases: from ethical principles to practice. Human Mutation. 26: 489-493. PMID 16173034 DOI: 10.1002/Humu.20245 |
0.41 |
|
| 2005 |
Knoppers BM, Saginur M. The Babel of genetic data terminology. Nature Biotechnology. 23: 925-927. PMID 16082354 DOI: 10.1038/Nbt0805-925 |
0.308 |
|
| 2005 |
Chadwick R, Knoppers BM. Human genetic research: emerging trends in ethics. Nature Reviews Genetics. 6: 75-79. PMID 15630423 DOI: 10.1038/Nrg1505 |
0.401 |
|
| 2005 |
Finegold DL, Bensimon CM, Daar AS, Eaton ML, Godard B, Knoppers BM, Singer PA, MacKie J. BioIndustry Ethics Bioindustry Ethics. |
0.313 |
|
| 2004 |
Knoppers BM. Of Biotechnology and Man Community Genetics. 7: 176-181. PMID 15692192 DOI: 10.1159/000082257 |
0.361 |
|
| 2004 |
Knoppers BM, Isasi RM. Regulatory approaches to reproductive genetic testing Human Reproduction. 19: 2695-2701. PMID 15388677 DOI: 10.1093/Humrep/Deh505 |
0.348 |
|
| 2004 |
Godard B, Marshall J, Laberge C, Knoppers BM. Strategies for Consulting with the Community: The cases of four large-scale genetic databases Science and Engineering Ethics. 10: 457-477. PMID 15362702 DOI: 10.1007/S11948-004-0003-Y |
0.416 |
|
| 2004 |
Knoppers BM. Biobanks: simplifying consent. Nature Reviews Genetics. 5: 485. PMID 15243995 DOI: 10.1038/Nrg1396 |
0.332 |
|
| 2003 |
Wertz DC, Knoppers BM. The HUGO Ethics Committee: Six innovative statements New Review of Bioethics. 1: 27-40. PMID 15706667 DOI: 10.1080/1740028032000131404 |
0.341 |
|
| 2003 |
Joly Y, Knoppers BM, Godard B. Genetic information and life insurance: a 'real' risk? European Journal of Human Genetics : Ejhg. 11: 561-4. PMID 12891375 DOI: 10.1038/Sj.Ejhg.5200998 |
0.331 |
|
| 2003 |
Caulfield T, Knoppers B, Gold E, Sheremeta L, Bridge P. Genetic technologies, health care policy and the patent bargain. Clinical Genetics. 63: 15-18. PMID 12519367 DOI: 10.1034/J.1399-0004.2003.630103.X |
0.366 |
|
| 2002 |
Knoppers BM, Avard D, Cardinal G, Glass KC. Children and incompetent adults in genetic research: consent and safeguards Nature Reviews Genetics. 3: 221-225. PMID 11972159 DOI: 10.1038/Nrg750 |
0.402 |
|
| 2002 |
Avard DM, Knoppers BM. Ethical dimensions of genetics in pediatric neurology: a look into the future. Seminars in Pediatric Neurology. 9: 53-61. PMID 11931127 DOI: 10.1053/Spen.2002.30342 |
0.388 |
|
| 2002 |
Wertz DC, Knoppers BM. Serious genetic disorders: can or should they be defined? American Journal of Medical Genetics. 108: 29-35. PMID 11857546 DOI: 10.1002/Ajmg.10212 |
0.342 |
|
| 2002 |
Knoppers BM. Genetic information and the family: are we our brother's keeper? Trends in Biotechnology. 20: 85-86. PMID 11814599 DOI: 10.1016/S0167-7799(01)01879-0 |
0.309 |
|
| 2001 |
Deschênes M, Cardinal G, Knoppers BM, Glass KC. Human genetic research, DNA banking and consent: a question of 'form'? Clinical Genetics. 59: 221-39. PMID 11298677 DOI: 10.1034/J.1399-0004.2001.590403.X |
0.354 |
|
| 2000 |
Knoppers BM. Population genetics and benefit sharing. Public Health Genomics. 3: 212-214. PMID 11878345 DOI: 10.1159/000051141 |
0.386 |
|
| 2000 |
Knoppers BM, Chadwick R, Takebe H, Berg K, Cantu JM, Daar AS, Engels EM, Kirby M, Macer D, Murray TH, Qiu R, Verma IC, Wertz DC. HUGO Urges Genetic Benefit-Sharing Public Health Genomics. 3: 88-92. PMID 11865922 DOI: 10.1159/000051110 |
0.433 |
|
| 2000 |
Knoppers BM, Laberge CM. Ethical guideposts for allelic variation databases. Human Mutation. 15: 30-5. PMID 10612819 DOI: 10.1002/(Sici)1098-1004(200001)15:1<30::Aid-Humu8>3.0.Co;2-M |
0.448 |
|
| 1999 |
Knoppers BM, Hirtle M, Glass KC. Commercialization of Genetic Research and Public Policy Science. 286: 2277-2278. PMID 10636788 DOI: 10.1126/Science.286.5448.2277 |
0.391 |
|
| 1999 |
Knoppers BM. Status, sale and patenting of human genetic material: an international survey. Nature Genetics. 22: 23-26. PMID 10319857 DOI: 10.1038/8735 |
0.352 |
|
| 1998 |
Knoppers BM. "Well-Bear and Well-Rear" in China? American Journal of Human Genetics. 63: 686-687. PMID 9718360 DOI: 10.1086/302031 |
0.422 |
|
| 1998 |
Knoppers BM. Reply to Merz et al. American Journal of Human Genetics. 63: 900. DOI: 10.1086/302030 |
0.334 |
|
| 1998 |
Knoppers BM. Geneticism and germ line: between courage and caution Politics and the Life Sciences. 17: 22-24. DOI: 10.1017/S0730938400025260 |
0.419 |
|
| 1997 |
Knoppers BM, Luther L. The Human Genome Organization (HUGO) Politics and the Life Sciences. 16: 127-129. DOI: 10.1017/S0730938400020323 |
0.348 |
|
| 1996 |
Malkin D, Knoppers BM. Genetic predisposition to cancer--issues to consider. Seminars in Cancer Biology. 7: 49-53. PMID 8695767 DOI: 10.1006/Scbi.1996.0007 |
0.389 |
|
| 1996 |
Knoppers BM, Hirtle M, Lormeau S. Ethical issues in international collaborative research on the human genome: The HGP and the HGDP Genomics. 34: 272-282. PMID 8661070 DOI: 10.1016/S0888-7543(96)90287-6 |
0.413 |
|
| 1995 |
Knoppers BM, Laberge CM. Research and stored tissues. Persons as sources, samples as persons? Jama. 274: 1806-7. PMID 7500515 DOI: 10.1001/Jama.1995.03530220072037 |
0.353 |
|
| 1994 |
Knoppers BM, Bris SL. Genetic choices: a paradigm for prospective international ethics? Politics and the Life Sciences. 13: 228-230. PMID 11654636 DOI: 10.1017/S0730938400018438 |
0.32 |
|
| 1994 |
Knoppers B, Chadwick R. The Human Genome Project: under an international ethical microscope Science. 265: 2035-2036. PMID 8091225 DOI: 10.1126/Science.8091225 |
0.344 |
|
| 1994 |
Godard B, Knoppers BM, Glass K, Grenon M, Bouchard R, Bouvier M, Goulet J, Gauvreau D. Ethical issues involved in establishing a registry for familial Alzheimer's disease. Alzheimer Disease and Associated Disorders. 8: 79-93. PMID 8060610 DOI: 10.1097/00002093-199408020-00005 |
0.304 |
|
| 1993 |
Evans MI, Thomson EJ, Rothenberg K, Cowan RS, Meaney J, Riggle SM, Cunningham GC, Davis JG, Clayton EW, Rothman BK, Kaplan D, Wertz DC, Rapp R, Press NA, Browner CH, ... ... Knoppers BM, et al. NIH Workshop Statement Fetal Diagnosis and Therapy. 8: 6-9. PMID 11653023 DOI: 10.1159/000263867 |
0.322 |
|
| 1993 |
Knoppers BM, Bris SL. Reproductive genetics: Canadian and European perspectives. Fetal Diagnosis and Therapy. 8: 189-201. PMID 11653018 DOI: 10.1159/000263887 |
0.318 |
|
| 1993 |
Knoppers BM, Bris SL. Ethical and legal concerns: reproductive technologies 1990-1993. Current Opinion in Obstetrics & Gynecology. 5: 630-636. DOI: 10.1097/00001703-199310000-00008 |
0.368 |
|
| 1986 |
Knoppers B. Reproductive technology and the law in Canada Human Reproduction. 1: 259-261. PMID 3558768 DOI: 10.1093/Oxfordjournals.Humrep.A136397 |
0.324 |
|
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