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Amy L. McGuire, Ph.D. - Publications

Affiliations: 
2004 University of Texas Medical Branch, Galveston, TX 
Area:
History of Science, Law
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28 high-probability publications. We are testing a new system for linking publications to authors. You can help! If you notice any inaccuracies, please sign in and mark papers as correct or incorrect matches. If you identify any major omissions or other inaccuracies in the publication list, please let us know.

Year Citation  Score
2023 Gutierrez AM, Robinson JO, Raesz-Martinez R, Canfield I, Majumder MA, Scollon S, Desrosiers LR, Hsu RL, Allen-Rhoades W, Parsons DW, Plon SE, McGuire AL, Malek J. Views of Adolescents and Young Adults with Cancer and Their Oncologists Toward Patients' Participation in Genomic Research. Journal of Adolescent and Young Adult Oncology. PMID 36595372 DOI: 10.1089/jayao.2022.0066  0.303
2022 Largent EA, Clapp J, Blumenthal-Barby JS, Grady C, McGuire AL, Karlawish J, Grill JD, Stites SD, Peterson A. Deciding with Others: Interdependent Decision-Making. The Hastings Center Report. 52: 23-32. PMID 36537275 DOI: 10.1002/hast.1444  0.312
2022 Smith HS, Sanchez CE, Maag R, Buentello A, Murdock DR, Metcalf GA, Hadley TD, Riconda DL, Boerwinkle E, Wehrens XHT, Ballantyne CM, Gibbs RA, McGuire AL, Pereira S. Patient and Clinician Perceptions of Precision Cardiology Care: Findings From the HeartCare Study. Circulation. Genomic and Precision Medicine. e003605. PMID 36282588 DOI: 10.1161/CIRCGEN.121.003605  0.338
2021 Smith HS, Brothers KB, Knight SJ, Ackerman SL, Rini C, Veenstra DL, McGuire AL, Wilfond BS, Malek J. Conceptualization of utility in translational clinical genomics research. American Journal of Human Genetics. 108: 2027-2036. PMID 34687653 DOI: 10.1016/j.ajhg.2021.08.013  0.353
2020 McGuire AL, Aulisio MP, Davis FD, Erwin C, Harter TD, Jagsi R, Klitzman R, Macauley R, Racine E, Wolf SM, Wynia M, Wolpe PR. Ethical Challenges Arising in the COVID-19 Pandemic: An Overview from the Association of Bioethics Program Directors (ABPD) Task Force. The American Journal of Bioethics : Ajob. 1-13. PMID 32511078 DOI: 10.1080/15265161.2020.1764138  0.464
2020 Wolf SM, Ossorio PN, Berry SA, Greely HT, McGuire AL, Penny MA, Terry SF. Integrating Rules for Genomic Research, Clinical Care, Public Health Screening and DTC Testing: Creating Translational Law for Translational Genomics. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 48: 69-86. PMID 32342790 DOI: 10.1177/1073110520916996  0.323
2018 Botkin JR, Appelbaum PS, Bakken S, Brown C, Burke W, Fabsitz R, Gamble VN, Gonsalves G, Kost R, Leonard DGB, McGuire A, Nichols JH, Patrick-Lake B, Wilkins CH, Zikmund-Fisher BJ. Standardizing return of participant results. Science (New York, N.Y.). 362: 759-760. PMID 30442797 DOI: 10.1126/Science.Aav8095  0.309
2018 Roberts JS, Robinson JO, Diamond PM, Bharadwaj A, Christensen KD, Lee KB, Green RC, McGuire AL. Patient understanding of, satisfaction with, and perceived utility of whole-genome sequencing: findings from the MedSeq Project. Genetics in Medicine : Official Journal of the American College of Medical Genetics. PMID 29300387 DOI: 10.1038/Gim.2017.223  0.321
2017 Deverka PA, Majumder MA, Villanueva AG, Anderson M, Bakker AC, Bardill J, Boerwinkle E, Bubela T, Evans BJ, Garrison NA, Gibbs RA, Gentleman R, Glazer D, Goldstein MM, Greely H, ... ... McGuire AL, et al. Creating a data resource: what will it take to build a medical information commons? Genome Medicine. 9: 84. PMID 28938910 DOI: 10.1186/S13073-017-0476-3  0.322
2017 Wolf SM, Amendola LM, Berg JS, Chung WK, Clayton EW, Green RC, Harris-Wai J, Henderson GE, Jarvik GP, Koenig BA, Lehmann LS, McGuire AL, O'Rourke P, Somkin C, Wilfond BS, et al. Navigating the research-clinical interface in genomic medicine: analysis from the CSER Consortium. Genetics in Medicine : Official Journal of the American College of Medical Genetics. PMID 28858330 DOI: 10.1038/Gim.2017.137  0.31
2017 Majumder MA, Guerrini CJ, Bollinger JM, Cook-Deegan R, McGuire AL. Sharing data under the 21st Century Cures Act. Genetics in Medicine : Official Journal of the American College of Medical Genetics. PMID 28541278 DOI: 10.1038/Gim.2017.59  0.331
2016 Messner DA, Al Naber J, Koay P, Cook-Deegan R, Majumder M, Javitt G, Deverka P, Dvoskin R, Bollinger J, Curnutte M, Chandrasekharan S, McGuire A. Barriers to clinical adoption of next generation sequencing: Perspectives of a policy Delphi panel. Applied & Translational Genomics. 10: 19-24. PMID 27668172 DOI: 10.1016/J.Atg.2016.05.004  0.308
2016 Green RC, Goddard KA, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, ... ... McGuire A, et al. Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine. American Journal of Human Genetics. PMID 27181682 DOI: 10.1016/J.Ajhg.2016.04.011  0.321
2015 Scollon S, Bergstrom K, McCullough LB, McGuire AL, Gutierrez S, Kerstein R, Parsons DW, Plon SE. Pediatric Cancer Genetics Research and an Evolving Preventive Ethics Approach for Return of Results after Death of the Subject. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 43: 529-37. PMID 26479562 DOI: 10.1111/Jlme.12295  0.324
2015 Christensen KD, Vassy JL, Jamal L, Lehmann LS, Slashinski MJ, Perry DL, Robinson JO, Blumenthal-Barby J, Feuerman LZ, Murray MF, Green RC, McGuire AL. Are physicians prepared for whole genome sequencing? a qualitative analysis. Clinical Genetics. PMID 26080898 DOI: 10.1111/Cge.12626  0.308
2014 McGuire AL, Knoppers BM, Zawati MH, Clayton EW. Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings. Genome Research. 24: 719-23. PMID 24676095 DOI: 10.1101/Gr.170514.113  0.315
2014 Vassy JL, Lautenbach DM, McLaughlin HM, Kong SW, Christensen KD, Krier J, Kohane IS, Feuerman LZ, Blumenthal-Barby J, Roberts JS, Lehmann LS, Ho CY, Ubel PA, MacRae CA, Seidman CE, ... ... McGuire AL, et al. The MedSeq Project: a randomized trial of integrating whole genome sequencing into clinical medicine. Trials. 15: 85. PMID 24645908 DOI: 10.1186/1745-6215-15-85  0.327
2013 Caulfield T, Evans J, McGuire A, McCabe C, Bubela T, Cook-Deegan R, Fishman J, Hogarth S, Miller FA, Ravitsky V, Biesecker B, Borry P, Cho MK, Carroll JC, Etchegary H, et al. Reflections on the cost of "low-cost" whole genome sequencing: framing the health policy debate. Plos Biology. 11: e1001699. PMID 24223516 DOI: 10.1371/Journal.Pbio.1001699  0.326
2013 Robinson JO, Slashinski MJ, Wang T, Hilsenbeck SG, McGuire AL. Participants' recall and understanding of genomic research and large-scale data sharing. Journal of Empirical Research On Human Research Ethics : Jerhre. 8: 42-52. PMID 24169421 DOI: 10.1525/Jer.2013.8.4.42  0.302
2012 Clayton EW, McGuire AL. The legal risks of returning results of genomics research. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 14: 473-7. PMID 22323070 DOI: 10.1038/gim.2012.10  0.33
2012 Oliver JM, Slashinski MJ, Wang T, Kelly PA, Hilsenbeck SG, McGuire AL. Balancing the risks and benefits of genomic data sharing: Genome research participants' perspectives Public Health Genomics. 15: 106-114. PMID 22213783 DOI: 10.1159/000334718  0.304
2011 McGuire AL, Basford M, Dressler LG, Fullerton SM, Koenig BA, Li R, McCarty CA, Ramos E, Smith ME, Somkin CP, Waudby C, Wolf WA, Clayton EW. Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience. Genome Research. 21: 1001-7. PMID 21632745 DOI: 10.1101/Gr.120329.111  0.333
2010 Clayton EW, Smith M, Fullerton SM, Burke W, McCarty CA, Koenig BA, McGuire AL, Beskow LM, Dressler L, Lemke AA, Ramos EM, Rodriguez LL. Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 12: 616-20. PMID 20733502 DOI: 10.1097/Gim.0B013E3181Efdbd0  0.332
2010 McGuire AL, Majumder MA, Halpern SD, Swindell JS, Yaeger LV, Gibbs RA, Wheeler TM. Taking DNA from the dead. Nature Reviews. Genetics. 11: 318. PMID 20332774 DOI: 10.1038/Nrg2792  0.315
2009 Fackler JL, McGuire AL. Paving the Way to Personalized Genomic Medicine: Steps to Successful Implementation. Current Pharmacogenomics and Personalized Medicine. 7: 125. PMID 20098629 DOI: 10.2174/187569209788653998  0.346
2008 McGuire AL, Fisher R, Cusenza P, Hudson K, Rothstein MA, McGraw D, Matteson S, Glaser J, Henley DE. Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: points to consider. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 10: 495-9. PMID 18580687 DOI: 10.1097/GIM.0b013e31817a8aaa  0.321
2008 Caulfield T, McGuire AL, Cho M, Buchanan JA, Burgess MM, Danilczyk U, Diaz CM, Fryer-Edwards K, Green SK, Hodosh MA, Juengst ET, Kaye J, Kedes L, Knoppers BM, Lemmens T, et al. Research ethics recommendations for whole-genome research: consensus statement. Plos Biology. 6: e73. PMID 18366258 DOI: 10.1371/Journal.Pbio.0060073  0.34
2004 Whitney SN, McGuire AL, McCullough LB. A typology of shared decision making, informed consent, and simple consent. Annals of Internal Medicine. 140: 54-9. PMID 14706973 DOI: 10.7326/0003-4819-140-1-200401060-00012  0.385
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