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Melissa J. Raspa, Ph.D. - Publications

Affiliations: 
2004 University of North Carolina, Chapel Hill, Chapel Hill, NC 
Area:
Early Childhood Education, Special Education
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52 high-probability publications. We are testing a new system for linking publications to authors. You can help! If you notice any inaccuracies, please sign in and mark papers as correct or incorrect matches. If you identify any major omissions or other inaccuracies in the publication list, please let us know.

Year Citation  Score
2022 Hessl D, Rosselot H, Miller R, Espinal G, Famula J, Sherman SL, Todd PK, Cabal Herrera AM, Lipworth K, Cohen J, Hall DA, Leehey M, Grigsby J, Weber JD, Alusi S, ... ... Raspa M, et al. The International Fragile X Premutation Registry: building a resource for research and clinical trial readiness. Journal of Medical Genetics. PMID 35701103 DOI: 10.1136/jmedgenet-2022-108568  0.306
2020 Raspa M, Lynch M, Squiers L, Gwaltney A, Porter K, Peay H, Huston A, Fitzek B, Boyle JG. Information and Emotional Support Needs of Families Whose Infant Was Diagnosed With SCID Through Newborn Screening. Frontiers in Immunology. 11: 885. PMID 32435251 DOI: 10.3389/Fimmu.2020.00885  0.344
2020 Wagner L, Frisch M, Turner-Brown L, Andrews S, Edwards A, Moultrie R, Alvarez Rivas A, Wheeler A, Raspa M. Preferences for the research use of electronic health records among young adults with fragile X syndrome or autism spectrum disorder. Disability and Health Journal. 100927. PMID 32360031 DOI: 10.1016/J.Dhjo.2020.100927  0.325
2020 Andrews SM, Raspa M, Edwards A, Moultrie R, Turner-Brown L, Wagner L, Alvarez Rivas A, Frisch MK, Wheeler AC. "Just tell me what's going on": The views of parents of children with genetic conditions regarding the research use of their child's electronic health record. Journal of the American Medical Informatics Association : Jamia. PMID 31913479 DOI: 10.1093/Jamia/Ocz208  0.338
2019 McCormack LA, Wylie A, Moultrie R, Furberg RD, Wheeler AC, Treiman K, Bailey DB, Raspa M. Supporting informed clinical trial decisions: Results from a randomized controlled trial evaluating a digital decision support tool for those with intellectual disability. Plos One. 14: e0223801. PMID 31644588 DOI: 10.1371/Journal.Pone.0223801  0.322
2019 Bailey DB, Gehtland LM, Lewis MA, Peay H, Raspa M, Shone SM, Taylor JL, Wheeler AC, Cotten M, King NMP, Powell CM, Biesecker B, Bishop CE, Boyea BL, Duparc M, et al. Early Check: translational science at the intersection of public health and newborn screening. Bmc Pediatrics. 19: 238. PMID 31315600 DOI: 10.1186/S12887-019-1606-4  0.302
2019 Wheeler AC, Wylie A, Raspa M, Villagomez A, Miller K, Edwards A, DeRamus M, Appelbaum PS, Bailey DB. Decisional Capacity for Informed Consent in Males and Females with Fragile X Syndrome. Journal of Autism and Developmental Disorders. PMID 30825084 DOI: 10.1007/S10803-019-03930-4  0.358
2019 Nash R, Riley C, Paramsothy P, Gilbertson K, Raspa M, Wheeler A, Dziuban EJ, Peacock G. A Description of the Educational Setting Among Individuals With Fragile X Syndrome. American Journal On Intellectual and Developmental Disabilities. 124: 57-76. PMID 30715925 DOI: 10.1352/1944-7558-124.1.57  0.329
2019 Okoniewski KC, Wheeler AC, Lee S, Boyea B, Raspa M, Taylor JL, Bailey DB. Early Identification of Fragile X Syndrome through Expanded Newborn Screening. Brain Sciences. 9. PMID 30609779 DOI: 10.3390/Brainsci9010004  0.371
2018 Wheeler AC, Wylie A, Villagomez A, Bishop E, Raspa M. Health care for individuals with fragile X Syndrome: Understanding access and quality. Disability and Health Journal. PMID 30442576 DOI: 10.1016/J.Dhjo.2018.11.004  0.339
2018 Raspa M, Wylie A, Wheeler AC, Kolacz J, Edwards A, Heilman K, Porges SW. Sensory Difficulties in Children With an FMR1 Premutation. Frontiers in Genetics. 9: 351. PMID 30233641 DOI: 10.3389/Fgene.2018.00351  0.36
2018 Raspa M, Fitzgerald T, Furberg RD, Wylie A, Moultrie R, Deramus ML, Wheeler AC, McCormack L. Mobile technology use and skills among individuals with fragile X syndrome: implications for healthcare decision making. Journal of Intellectual Disability Research. 62: 821-832. PMID 30105880 DOI: 10.1111/Jir.12537  0.341
2018 Furberg RD, Ortiz AM, Moultrie RR, Raspa M, Wheeler AC, McCormack LA, Bailey DB. A Digital Decision Support Tool to Enhance Decisional Capacity for Clinical Trial Consent: Design and Development. Jmir Research Protocols. 7: e10525. PMID 29875084 DOI: 10.2196/10525  0.325
2018 Raspa M, Franco V, Bishop E, Wheeler AC, Wylie A, Bailey DB. A comparison of functional academic and daily living skills in males with fragile X syndrome with and without autism. Research in Developmental Disabilities. 78: 1-14. PMID 29730505 DOI: 10.1016/J.Ridd.2018.04.024  0.399
2018 Kolacz J, Raspa M, Heilman KJ, Porges SW. Evaluating Sensory Processing in Fragile X Syndrome: Psychometric Analysis of the Brain Body Center Sensory Scales (BBCSS). Journal of Autism and Developmental Disorders. PMID 29417435 DOI: 10.1007/S10803-018-3491-3  0.337
2017 Kidd SA, Raspa M, Clark R, Usrey-Roos H, Wheeler AC, Liu JA, Wylie A, Sherman SL. Attendance at Fragile X Specialty Clinics: Facilitators and Barriers. American Journal On Intellectual and Developmental Disabilities. 122: 457-475. PMID 29115871 DOI: 10.1352/1944-7558-122.6.457  0.446
2017 Wheeler A, Raspa M, Hagerman R, Mailick M, Riley C. Implications of the FMR1 Premutation for Children, Adolescents, Adults, and Their Families. Pediatrics. 139: S172-S182. PMID 28814538 DOI: 10.1542/Peds.2016-1159D  0.402
2017 Raspa M, Wheeler AC, Riley C. Public Health Literature Review of Fragile X Syndrome. Pediatrics. 139: S153-S171. PMID 28814537 DOI: 10.1542/Peds.2016-1159C  0.399
2016 Raspa M, Edwards A, Wheeler AC, Bishop E, Bailey DB. Family Communication and Cascade Testing for Fragile X Syndrome. Journal of Genetic Counseling. PMID 26961978 DOI: 10.1007/S10897-016-9940-2  0.415
2016 Raspa M, Sacco P, Candrilli SD, Bishop E, Petrillo J. Validity of a condition specific outcome measure for fragile X syndrome: the Aberrant Behaviour Checklist-utility index Journal of Intellectual Disability Research. 60: 844-855. PMID 26929037 DOI: 10.1111/Jir.12264  0.379
2016 Bailey DB, Berry-Kravis E, Wheeler A, Raspa M, Merrien F, Ricart J, Koumaras B, Rosenkranz G, Tomlinson M, von Raison F, Apostol G. Mavoglurant in adolescents with fragile X syndrome: analysis of Clinical Global Impression-Improvement source data from a double-blind therapeutic study followed by an open-label, long-term extension study. Journal of Neurodevelopmental Disorders. 8: 1. PMID 26855682 DOI: 10.1186/S11689-015-9134-5  0.313
2016 Wheeler AC, Raspa M, Bishop E, Bailey DB. Aggression in fragile X syndrome. Journal of Intellectual Disability Research : Jidr. 60: 113-25. PMID 26628097 DOI: 10.1111/Jir.12238  0.383
2015 Cross J, Yang JC, Johnson FR, Quiroz J, Dunn J, Raspa M, Bailey DB. Caregiver Preferences for the Treatment of Males with Fragile X Syndrome. Journal of Developmental and Behavioral Pediatrics : Jdbp. PMID 26595147 DOI: 10.1097/Dbp.0000000000000234  0.396
2015 Hartley SL, Wheeler AC, Mailick MR, Raspa M, Mihaila I, Bishop E, Bailey DB. Autism Symptoms Across Adulthood in Men with Fragile X Syndrome: A Cross-Sectional Analysis. Journal of Autism and Developmental Disorders. 45: 3668-79. PMID 26123010 DOI: 10.1007/S10803-015-2513-7  0.32
2015 Wheeler AC, Mussey J, Villagomez A, Bishop E, Raspa M, Edwards A, Bodfish J, Bann C, Bailey DB. DSM-5 Changes and the Prevalence of Parent-Reported Autism Spectrum Symptoms in Fragile X Syndrome Journal of Autism and Developmental Disorders. 45: 816-829. PMID 25234484 DOI: 10.1007/S10803-014-2246-Z  0.337
2014 Bailey DB, Raspa M, Wheeler A, Edwards A, Bishop E, Bann C, Borasky D, Appelbaum PS. Parent ratings of ability to consent for clinical trials in fragile x syndrome. Journal of Empirical Research On Human Research Ethics : Jerhre. 9: 18-28. PMID 25422596 DOI: 10.1177/1556264614540591  0.385
2014 Ouyang L, Grosse SD, Riley C, Bolen J, Bishop E, Raspa M, Bailey DB. A comparison of family financial and employment impacts of fragile X syndrome, autism spectrum disorders, and intellectual disability. Research in Developmental Disabilities. 35: 1518-27. PMID 24755230 DOI: 10.1016/J.Ridd.2014.04.009  0.396
2014 Raspa M, Bailey DB, Bann C, Bishop E. Modeling family adaptation to fragile X syndrome. American Journal On Intellectual and Developmental Disabilities. 119: 33-48. PMID 24450320 DOI: 10.1352/1944-7558-119.1.33  0.355
2014 Wheeler A, Raspa M, Bann C, Bishop E, Hessl D, Sacco P, Bailey DB. Anxiety, attention problems, hyperactivity, and the Aberrant Behavior Checklist in fragile X syndrome American Journal of Medical Genetics, Part A. 164: 141-155. PMID 24352914 DOI: 10.1002/Ajmg.A.36232  0.301
2013 Martin GE, Ausderau KK, Raspa M, Bishop E, Mallya U, Bailey DB. Therapy service use among individuals with fragile X syndrome: findings from a US parent survey. Journal of Intellectual Disability Research : Jidr. 57: 837-49. PMID 22974130 DOI: 10.1111/J.1365-2788.2012.01608.X  0.4
2013 Raspa M, Bishop E, Candrilli S, Mitra D, Sacco P, Petrillo J, Bailey D. Caregiver Burden in Fragile X Syndrome as a Function of a Health State Utility Index in the United States Value in Health. 16: A625. DOI: 10.1016/J.Jval.2013.08.1838  0.341
2013 Bailey D, Raspa M, Wheeler A. Parent Ratings of Ability to Consent for Clinical Trials in Fragile X Syndrome Value in Health. 16. DOI: 10.1016/J.Jval.2013.08.1716  0.361
2012 Bailey DB, Raspa M, Bishop E, Mitra D, Martin S, Wheeler A, Sacco P. Health and economic consequences of fragile X syndrome for caregivers. Journal of Developmental and Behavioral Pediatrics : Jdbp. 33: 705-12. PMID 23117595 DOI: 10.1097/Dbp.0B013E318272Dcbc  0.395
2012 Bailey DB, Bishop E, Raspa M, Skinner D. Caregiver opinions about fragile X population screening. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 14: 115-21. PMID 22237440 DOI: 10.1038/Gim.0B013E31822Ebaa6  0.303
2012 Bailey DB, Raspa M, Bishop E, Olmsted M, Mallya UG, Berry-Kravis E. Medication utilization for targeted symptoms in children and adults with fragile X syndrome: US survey. Journal of Developmental and Behavioral Pediatrics : Jdbp. 33: 62-9. PMID 22064563 DOI: 10.1097/Dbp.0B013E318236C0E1  0.375
2012 Bailey D, Raspa M, Mitra D, Sacco P. PND29 Resource Utilization and Caregiver Burden Associated With Fragile X Syndrome in the United States Value in Health. 15: A146. DOI: 10.1016/J.Jval.2012.03.788  0.359
2011 Hartley SL, Seltzer MM, Raspa M, Olmstead M, Bishop E, Bailey DB. Exploring the adult life of men and women with fragile X syndrome: results from a national survey. American Journal On Intellectual and Developmental Disabilities. 116: 16-35. PMID 21291308 DOI: 10.1352/1944-7558-116.1.16  0.338
2011 Bailey DB, Raspa M, Olmsted MG, Novak SP, Sam AM, Humphreys BP, Nelson R, Robinson N, Guillen C. Development and Psychometric Validation of the Family Outcomes Survey-Revised Journal of Early Intervention. 33: 6-23. DOI: 10.1177/1053815111399441  0.349
2011 Bailey DB, Raspa M, Fox LC. What Is the Future of Family Outcomes and Family-Centered Services? Topics in Early Childhood Special Education. 31: 216-223. DOI: 10.1177/0271121411427077  0.391
2010 Raspa M, Bailey DB, Bishop E, Holiday D, Olmsted M. Obesity, food selectivity, and physical activity in individuals with fragile X syndrome. American Journal On Intellectual and Developmental Disabilities. 115: 482-95. PMID 20946001 DOI: 10.1352/1944-7558-115.6.482  0.398
2010 Symons FJ, Byiers BJ, Raspa M, Bishop E, Bailey DB. Self-injurious behavior and fragile X syndrome: findings from the national fragile X survey. American Journal On Intellectual and Developmental Disabilities. 115: 473-81. PMID 20946000 DOI: 10.1352/1944-7558-115.6.473  0.361
2010 Berry-Kravis E, Raspa M, Loggin-Hester L, Bishop E, Holiday D, Bailey DB. Seizures in fragile X syndrome: characteristics and comorbid diagnoses. American Journal On Intellectual and Developmental Disabilities. 115: 461-72. PMID 20945999 DOI: 10.1352/1944-7558-115.6.461  0.359
2010 Bailey DB, Raspa M, Olmsted MG. Using a parent survey to advance knowledge about the nature and consequences of fragile X syndrome. American Journal On Intellectual and Developmental Disabilities. 115: 447-60. PMID 20945998 DOI: 10.1352/1944-7558-115.6.447  0.433
2010 Ouyang L, Grosse S, Raspa M, Bailey D. Employment impact and financial burden for families of children with fragile X syndrome: findings from the National Fragile X Survey. Journal of Intellectual Disability Research : Jidr. 54: 918-28. PMID 20796162 DOI: 10.1111/J.1365-2788.2010.01320.X  0.434
2010 Kronk R, Bishop EE, Raspa M, Bickel JO, Mandel DA, Bailey DB. Prevalence, nature, and correlates of sleep problems among children with fragile X syndrome based on a large scale parent survey. Sleep. 33: 679-87. PMID 20469810 DOI: 10.1093/Sleep/33.5.679  0.338
2010 Olmsted MG, Bailey DB, Raspa M, Nelson RE, Robinson ND, Simpson ME, Guillen C. Outcomes reported by spanish-speaking families in early intervention Topics in Early Childhood Special Education. 30: 46-55. DOI: 10.1177/0271121409360827  0.354
2010 Raspa M, Bailey DB, Olmsted MG, Nelson R, Robinson N, Simpson ME, Guillen C, Houts R. Measuring Family Outcomes in Early Intervention: Findings from a Large-Scale Assessment Exceptional Children. 76: 496-510. DOI: 10.1177/001440291007600407  0.366
2010 Raspa M, Hebbeler K, Bailey DB, Scarborough AA. Service provider combinations and the delivery of early intervention services to children and families Infants and Young Children. 23: 132-144. DOI: 10.1097/Iyc.0B013E3181D230F9  0.616
2009 Bailey DB, Raspa M, Holiday D, Bishop E, Olmsted M. Functional skills of individuals with fragile x syndrome: a lifespan cross-sectional analysis. American Journal On Intellectual and Developmental Disabilities. 114: 289-303. PMID 19642710 DOI: 10.1352/1944-7558-114.4.289-303  0.397
2009 Bailey DB, Raspa M, Bishop E, Holiday D. No change in the age of diagnosis for fragile x syndrome: findings from a national parent survey. Pediatrics. 124: 527-33. PMID 19581269 DOI: 10.1542/Peds.2008-2992  0.398
2008 Bailey DB, Raspa M, Olmsted M, Holiday DB. Co-occurring conditions associated with FMR1 gene variations: findings from a national parent survey. American Journal of Medical Genetics. Part A. 146: 2060-9. PMID 18570292 DOI: 10.1002/Ajmg.A.32439  0.34
2008 Bailey DB, Hebbeler K, Olmsted MG, Raspa M, Bruder MB. Measuring family outcomes considerations for large-scale data collection in early intervention Infants and Young Children. 21: 194-206. DOI: 10.1097/01.Iyc.0000324549.31822.C3  0.387
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