Year |
Citation |
Score |
2022 |
Werner-Lin A, Forbes Shepherd R, Young JL, Wilsnack C, Merrill SL, Greene MH, Khincha PP. Embodied risk for families with Li-Fraumeni syndrome: Like electricity through my body. Social Science & Medicine (1982). 301: 114905. PMID 35367908 DOI: 10.1016/j.socscimed.2022.114905 |
0.316 |
|
2021 |
Wilsnack C, Young JL, Merrill SL, Groner V, Loud JT, Bremer RC, Greene MH, Khincha PP, Werner-Lin A. Family Identity and Roles in the Context of Li-Fraumeni Syndrome: "No One's Like Us Mutants". Health & Social Work. PMID 34618014 DOI: 10.1093/hsw/hlab032 |
0.367 |
|
2021 |
Forbes Shepherd R, Keogh LA, Werner-Lin A, Delatycki MB, Forrest LE. Benefits and burdens of risk management for young people with inherited cancer: A focus on Li-Fraumeni syndrome. Australian Journal of General Practice. 50: 538-544. PMID 34333565 DOI: 10.31128/AJGP-04-21-5954 |
0.316 |
|
2020 |
Forbes Shepherd R, Werner-Lin A, Keogh LA, Delatycki MB, Forrest LE. "I need to know if I'm going to die young": Adolescent and young adult experiences of genetic testing for Li-Fraumeni syndrome. Journal of Psychosocial Oncology. 1-20. PMID 32449501 DOI: 10.1080/07347332.2020.1768199 |
0.398 |
|
2020 |
Werner-Lin A, Young JL, Wilsnack C, Merrill SL, Groner V, Greene MH, Khincha PP. Waiting and "weighted down": the challenge of anticipatory loss for individuals and families with Li-Fraumeni Syndrome. Familial Cancer. PMID 32222840 DOI: 10.1007/S10689-020-00173-6 |
0.423 |
|
2019 |
Forbes Shepherd R, Keogh LA, Werner-Lin A, Delatycki MB, Forrest LE. Health professionals' practice for young people with, or at risk of, Li-Fraumeni syndrome: An Australasian survey. Journal of Genetic Counseling. PMID 31872506 DOI: 10.1002/jgc4.1199 |
0.369 |
|
2019 |
Pantaleao A, Young JL, Epstein NB, Carlson M, Bremer RC, Khincha PP, Peters JA, Greene MH, Roy K, Achatz MI, Savage SA, Werner-Lin A. Family Health Leaders: Lessons on Living with Li-Fraumeni Syndrome across Generations. Family Process. PMID 31647118 DOI: 10.1111/famp.12497 |
0.365 |
|
2018 |
Young JL, Pantaleao A, Zaspel L, Bayer J, Peters JA, Khincha PP, Bremer RC, Loud JT, Greene MH, Achatz MI, Savage SA, Werner-Lin A. Couples coping with screening burden and diagnostic uncertainty in Li-Fraumeni syndrome: Connection versus independence. Journal of Psychosocial Oncology. 1-16. PMID 30591002 DOI: 10.1080/07347332.2018.1543376 |
0.325 |
|
2018 |
Ersig AL, Werner-Lin A, Hoskins L, Young J, Loud JT, Peters J, Greene MH. Legacies and Relationships: Diverse Social Networks and BRCA1/2 Risk Management Decisions and Actions. Journal of Family Nursing. 1074840718815844. PMID 30537877 DOI: 10.1177/1074840718815844 |
0.414 |
|
2018 |
Werner-Lin A, Merrill SL, Brandt AC, Barnett RE, Matloff ET. Correction to: Talking with Children about Adult-Onset Hereditary Cancer Risk: A Developmental Approach for Parents. Journal of Genetic Counseling. PMID 30033482 DOI: 10.1007/S10897-018-0282-0 |
0.3 |
|
2018 |
Forbes Shepherd R, Lewis A, Keogh LA, Werner-Lin A, Delatycki MB, Forrest LE. A Systematic Review of How Young People Live with Inherited Disease: What Can We Learn for Li-Fraumeni Syndrome? Journal of Adolescent and Young Adult Oncology. PMID 30004834 DOI: 10.1089/Jayao.2018.0028 |
0.374 |
|
2018 |
Werner-Lin A, Ersig AL, Mueller R, Young JL, Hoskins LM, Desai R, Greene MH. Catalysts towards cancer risk management action: A longitudinal study of reproductive-aged women with BRCA1/2 mutations. Journal of Psychosocial Oncology. 1-16. PMID 29863445 DOI: 10.1080/07347332.2018.1469565 |
0.414 |
|
2018 |
Werner-Lin A, Zaspel L, Carlson M, Mueller R, Walser SA, Desai R, Bernhardt BA. Gratitude, protective buffering, and cognitive dissonance: How families respond to pediatric whole exome sequencing in the absence of actionable results. American Journal of Medical Genetics. Part A. 176: 578-588. PMID 29446570 DOI: 10.1002/ajmg.a.38613 |
0.322 |
|
2018 |
Werner-Lin A, Merrill SL, Brandt AC. Talking with Children About Adult-Onset Hereditary Cancer Risk: A Developmental Approach for Parents. Journal of Genetic Counseling. PMID 29383546 DOI: 10.1007/S10897-017-0191-7 |
0.41 |
|
2017 |
Walser SA, Werner-Lin A, Mueller R, Miller VA, Biswas S, Bernhardt BA. How do providers discuss the results of pediatric exome sequencing with families? Personalized Medicine. 14: 409-422. PMID 28966657 DOI: 10.2217/Pme-2017-0015 |
0.303 |
|
2017 |
Young JL, Werner-Lin A, Mueller R, Hoskins L, Epstein N, Greene MH. Longitudinal cancer risk management trajectories of BRCA1/2 mutation-positive reproductive-age women. Journal of Psychosocial Oncology. 1-16. PMID 28332940 DOI: 10.1080/07347332.2017.1292574 |
0.421 |
|
2017 |
Miller VA, Werner-Lin A, Walser SA, Biswas S, Bernhardt BA. An Observational Study of Children's Involvement in Informed Consent for Exome Sequencing Research. Journal of Empirical Research On Human Research Ethics : Jerhre. 12: 6-13. PMID 28220724 DOI: 10.1177/1556264616674096 |
0.305 |
|
2016 |
Werner-Lin A, McCoyd JLM, Doyle MH, Gehlert SJ. Leadership, Literacy, and Translational Expertise in Genomics: Challenges and Opportunities for Social Work. Health & Social Work. 41: e52-e59. PMID 29206948 DOI: 10.1093/Hsw/Hlw022 |
0.439 |
|
2016 |
Doyle M, Werner-Lin A. Family Strategies for Living with Rare Disease: The Experience of Cystinosis Journal of the Society For Social Work and Research. 7: 547-567. DOI: 10.1086/688048 |
0.378 |
|
2015 |
Werner-Lin A, Ratner R, Hoskins LM, Lieber C. A survey of genetic counselors about the needs of 18-25 year olds from families with hereditary breast and ovarian cancer syndrome. Journal of Genetic Counseling. 24: 78-87. PMID 25011978 DOI: 10.1007/S10897-014-9739-Y |
0.464 |
|
2014 |
Werner-Lin A, Hoskins L, Lieber C, Ratner R. 493PDA SURVEY OF GENETIC COUNSELLORS ABOUT THE NEEDS OF 18-25 YEAR OLDS FROM FAMILIES WITH HEREDITARY BREAST AND OVARIAN CANCER SYNDROME. Annals of Oncology : Official Journal of the European Society For Medical Oncology. 25: iv165. PMID 28174851 DOI: 10.1093/Annonc/Mdu332.3 |
0.457 |
|
2014 |
Hoskins LM, Werner-Lin A, Greene MH. In Their own words: Treating very young BRCA1/2 mutation-positive women with care and caution Plos One. 9. PMID 24586286 DOI: 10.1371/journal.pone.0087696 |
0.313 |
|
2013 |
Hoskins LM, Werner-Lin A. A multi-case report of the pathways to and through genetic testing and cancer risk management for BRCA mutation-positive women aged 18-25 Journal of Genetic Counseling. 22: 27-38. PMID 22864682 DOI: 10.1007/s10897-012-9521-y |
0.332 |
|
2012 |
Werner-Lin A, Hoskins LM, Doyle MH, Greene MH. 'Cancer doesn't have an age': genetic testing and cancer risk management in BRCA1/2 mutation-positive women aged 18-24. Health (London, England : 1997). 16: 636-54. PMID 22547552 DOI: 10.1177/1363459312442420 |
0.367 |
|
2008 |
Werner-Lin A. Beating the biological clock: the compressed family life cycle of young women with BRCA gene alterations. Social Work in Health Care. 47: 416-37. PMID 19042494 DOI: 10.1080/00981380802173509 |
0.338 |
|
2008 |
Werner-Lin A. Formal and informal support needs of young women with BRCA mutations. Journal of Psychosocial Oncology. 26: 111-33. PMID 19042275 |
0.3 |
|
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