Year |
Citation |
Score |
2023 |
Kelly NR, Orsini JJ, Goldenberg AJ, Mulrooney NS, Boychuk NA, Clarke MJ, Paleologos K, Martin MM, McNeight H, Caggana M, Bailey SM, Eiland LR, Ganesh J, Kupchik G, Lumba R, et al. ScreenPlus: A comprehensive, multi-disorder newborn screening program. Molecular Genetics and Metabolism Reports. 38: 101037. PMID 38173711 DOI: 10.1016/j.ymgmr.2023.101037 |
0.35 |
|
2022 |
Brower A, Chan K, Williams M, Berry S, Currier R, Rinaldo P, Caggana M, Gaviglio A, Wilcox W, Steiner R, Holm IA, Taylor J, Orsini JJ, Brunelli L, Adelberg J, ... ... Goldenberg A, et al. Population-Based Screening of Newborns: Findings From the NBS Expansion Study (Part One). Frontiers in Genetics. 13: 867337. PMID 35938011 DOI: 10.3389/fgene.2022.867337 |
0.319 |
|
2021 |
Brothers KB, Clayton EW, Goldenberg AJ. Online Pediatric Research: Addressing Consent, Assent, and Parental Permission. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 48: 129-137. PMID 32342755 DOI: 10.1177/1073110520917038 |
0.348 |
|
2020 |
Riches NO, Johnson EP, Frost CJ, Goldenberg AJ, Rothwell E. The limited use of US residual newborn screening dried bloodspots for health disparity research. Genetics in Medicine : Official Journal of the American College of Medical Genetics. PMID 32533133 DOI: 10.1038/S41436-020-0858-6 |
0.33 |
|
2020 |
Rothwell E, Johnson E, Wong B, Goldenberg A, Tarini BA, Riches N, Stark LA, Pries C, Langbo C, Langen E, Botkin J. Comparison of Video, App, and Standard Consent Processes on Decision-Making for Biospecimen Research: A Randomized Controlled Trial. Journal of Empirical Research On Human Research Ethics : Jerhre. 1556264620913455. PMID 32242760 DOI: 10.1177/1556264620913455 |
0.377 |
|
2018 |
Lloyd-Puryear MA, Crawford TO, Brower A, Stephenson K, Trotter T, Goldman E, Goldenberg A, Howell RR, Kennedy A, Watson M. Duchenne Muscular Dystrophy Newborn Screening, a Case Study for Examining Ethical and Legal Issues for Pilots for Emerging Disorders: Considerations and Recommendations. International Journal of Neonatal Screening. 4: 6. PMID 33072932 DOI: 10.3390/Ijns4010006 |
0.381 |
|
2018 |
Goldenberg AJ, Lloyd-Puryear M, Brosco JP, Therrell B, Bush L, Berry S, Brower A, Bonhomme N, Bowdish B, Chrysler D, Clarke A, Crawford T, Goldman E, Hiner S, Howell RR, et al. Including ELSI research questions in newborn screening pilot studies. Genetics in Medicine : Official Journal of the American College of Medical Genetics. PMID 30100612 DOI: 10.1038/S41436-018-0101-X |
0.352 |
|
2018 |
Cooke Bailey JN, Crawford DC, Goldenberg A, Slaven A, Pencak J, Schachere M, Bush WS, Sedor JR, O'Toole JF. Willingness to Participate in a National Precision Medicine Cohort: Attitudes of Chronic Kidney Disease Patients at a Cleveland Public Hospital. Journal of Personalized Medicine. 8. PMID 29949895 DOI: 10.3390/Jpm8030021 |
0.411 |
|
2017 |
Rothwell E, Goldenberg A, Johnson E, Riches N, Tarini B, Botkin JR. An Assessment of a Shortened Consent Form for the Storage and Research Use of Residual Newborn Screening Blood Spots. Journal of Empirical Research On Human Research Ethics : Jerhre. 1556264617736199. PMID 29073807 DOI: 10.1177/1556264617736199 |
0.48 |
|
2016 |
Botkin JR, Rothwell E, Anderson RA, Rose NC, Dolan SM, Kuppermann M, Stark LA, Goldenberg A, Wong B. Prenatal Education of Parents About Newborn Screening and Residual Dried Blood Spots: A Randomized Clinical Trial. Jama Pediatrics. PMID 27043416 DOI: 10.1001/Jamapediatrics.2015.4850 |
0.362 |
|
2015 |
Lewis MH, Goldenberg AJ. Return of Results from Research Using Newborn Screening Dried Blood Samples. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 43: 559-68. PMID 26479566 DOI: 10.1111/jlme.12299 |
0.401 |
|
2015 |
Mester JL, Mercer M, Goldenberg A, Moore RA, Eng C, Sharp RR. Communicating with biobank participants: preferences for receiving and providing updates to researchers. Cancer Epidemiology, Biomarkers & Prevention : a Publication of the American Association For Cancer Research, Cosponsored by the American Society of Preventive Oncology. 24: 708-12. PMID 25597748 DOI: 10.1158/1055-9965.Epi-13-1375 |
0.407 |
|
2014 |
Botkin JR, Rothwell E, Anderson RA, Goldenberg A, Kuppermann M, Dolan SM, Rose NC, Stark L. What parents want to know about the storage and use of residual newborn bloodspots. American Journal of Medical Genetics. Part A. 164: 2739-44. PMID 25131714 DOI: 10.1002/Ajmg.A.36694 |
0.426 |
|
2014 |
Haldeman KM, Cadigan RJ, Davis A, Goldenberg A, Henderson GE, Lassiter D, Reavely E. Community engagement in US biobanking: multiplicity of meaning and method. Public Health Genomics. 17: 84-94. PMID 24556734 DOI: 10.1159/000357958 |
0.383 |
|
2014 |
Botkin JR, Lewis MH, Watson MS, Swoboda KJ, Anderson R, Berry SA, Bonhomme N, Brosco JP, Comeau AM, Goldenberg A, Goldman E, Therrell B, Levy-Fisch J, Tarini B, Wilfond B, et al. Parental permission for pilot newborn screening research: guidelines from the NBSTRN. Pediatrics. 133: e410-7. PMID 24394680 DOI: 10.1542/Peds.2013-2271 |
0.453 |
|
2014 |
Lisi EC, Goldenberg A, McCandless SE. Attitudes and experiences of healthcare providers regarding newborn screening for lysosomal disorders Molecular Genetics and Metabolism. 111. DOI: 10.1016/J.Ymgme.2013.12.154 |
0.315 |
|
2013 |
Botkin JR, Goldenberg AJ, Rothwell E, Anderson RA, Lewis MH. Retention and research use of residual newborn screening bloodspots. Pediatrics. 131: 120-7. PMID 23209103 DOI: 10.1542/Peds.2012-0852 |
0.325 |
|
2012 |
Rothwell E, Anderson R, Goldenberg A, Lewis MH, Stark L, Burbank M, Wong B, Botkin JR. Assessing public attitudes on the retention and use of residual newborn screening blood samples: a focus group study. Social Science & Medicine (1982). 74: 1305-9. PMID 22398141 DOI: 10.1016/J.Socscimed.2011.12.047 |
0.401 |
|
2012 |
Botkin JR, Rothwell E, Anderson R, Stark L, Goldenberg A, Lewis M, Burbank M, Wong B. Public attitudes regarding the use of residual newborn screening specimens for research. Pediatrics. 129: 231-8. PMID 22250018 DOI: 10.1542/Peds.2011-0970 |
0.472 |
|
2011 |
Lewis MH, Goldenberg A, Anderson R, Rothwell E, Botkin J. State laws regarding the retention and use of residual newborn screening blood samples. Pediatrics. 127: 703-12. PMID 21444595 DOI: 10.1542/Peds.2010-1468 |
0.392 |
|
2011 |
Rothwell EW, Anderson RA, Burbank MJ, Goldenberg AJ, Lewis MH, Stark LA, Wong B, Botkin JR. Concerns of newborn blood screening advisory committee members regarding storage and use of residual newborn screening blood spots. American Journal of Public Health. 101: 2111-6. PMID 21330580 DOI: 10.2105/Ajph.2010.200485 |
0.428 |
|
2010 |
Tarini BA, Goldenberg A, Singer D, Clark SJ, Butchart A, Davis MM. Not without my permission: parents' willingness to permit use of newborn screening samples for research. Public Health Genomics. 13: 125-30. PMID 19602864 DOI: 10.1159/000228724 |
0.395 |
|
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