Allison Werner-Lin, Ph.D.
Affiliations: | 2005 | University of Chicago, Chicago, IL |
Area:
Social WorkGoogle:
"Allison Werner-Lin"Parents
Sign in to add mentor| Sarah Gehlert | grad student | 2005 | Chicago | |
| (Young women at risk: Family development in the context of hereditary disease.) | ||||
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Publications
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| Wilsnack C, Rising CJ, Pearce EE, et al. (2024) Defining the complex needs of families with rare diseases-the example of telomere biology disorders. European Journal of Human Genetics : Ejhg |
| Werner-Lin A, Forbes Shepherd R, Young JL, et al. (2022) Embodied risk for families with Li-Fraumeni syndrome: Like electricity through my body. Social Science & Medicine (1982). 301: 114905 |
| Wilsnack C, Young JL, Merrill SL, et al. (2021) Family Identity and Roles in the Context of Li-Fraumeni Syndrome: "No One's Like Us Mutants". Health & Social Work |
| Forbes Shepherd R, Keogh LA, Werner-Lin A, et al. (2021) Benefits and burdens of risk management for young people with inherited cancer: A focus on Li-Fraumeni syndrome. Australian Journal of General Practice. 50: 538-544 |
| Forbes Shepherd R, Werner-Lin A, Keogh LA, et al. (2020) "I need to know if I'm going to die young": Adolescent and young adult experiences of genetic testing for Li-Fraumeni syndrome. Journal of Psychosocial Oncology. 1-20 |
| Werner-Lin A, Young JL, Wilsnack C, et al. (2020) Waiting and "weighted down": the challenge of anticipatory loss for individuals and families with Li-Fraumeni Syndrome. Familial Cancer |
| Forbes Shepherd R, Keogh LA, Werner-Lin A, et al. (2019) Health professionals' practice for young people with, or at risk of, Li-Fraumeni syndrome: An Australasian survey. Journal of Genetic Counseling |
| Pantaleao A, Young JL, Epstein NB, et al. (2019) Family Health Leaders: Lessons on Living with Li-Fraumeni Syndrome across Generations. Family Process |
| Young JL, Pantaleao A, Zaspel L, et al. (2018) Couples coping with screening burden and diagnostic uncertainty in Li-Fraumeni syndrome: Connection versus independence. Journal of Psychosocial Oncology. 1-16 |
| Ersig AL, Werner-Lin A, Hoskins L, et al. (2018) Legacies and Relationships: Diverse Social Networks and BRCA1/2 Risk Management Decisions and Actions. Journal of Family Nursing. 1074840718815844 |